Hi Keith,

I was in the Day-Case Unit yesterday for bloods etc and signed up for the Bendamustine… which I will start on Monday. Consult at 10.10 then a short wait until 11.30 for my Bendamustine.:-)

My treatment is slightly different to yours. Bendamustine on Days 1 & 8 with daily Thalidomide every evening throughout treatment and 40mg…[Read more]

Hi All,

Xmas came and went quietly… just me and Janet due to Flu Bugs, colds and sore throats spread evenly amongst all the immediate family… the most devastating with young Alfie (6) going down with his first grown up flu… which stopped us spending Xmas day with the family. 😛

At the Day-Case this afternoon… bloods checked and…[Read more]

Hi Keith,

One of the factors in taking me off Revlimid was a Platelet reading of 90, My Platelets had dropped over 4 months from 150 to 120 to 100 to 90… and their concern was that if the Platelets kept dropping they might not be able to get them back under control! Looking at your readings their reasoning seems a tad dubious.:-/

While…[Read more]

[i][b]Nadolig Llawen a Blwyddyn Newydd D[/i]da.[/b]

Merry Xmas & A Happy New year to all who sail this board. I wish you peace and small joys, happiness… fine but contentment better. I hope that MM stays in the background… unseen and unheard for a few days at the very least. 😎

Much love:-D

Dai.

Hi All,

Thank you all for your messages of support… I'll try to answer some of the points raised over the week-end. 🙂

I'm sitting up in bed watching re-runs of Top Gear on Dave waiting for Janet to arrive with my going home clothes. I've been through the discharge process, got all my meds and I am free to leave when my 'True-Love' TM…[Read more]

Hi Ann and Pete,

Wishing you the very best of luck withe whole Harvest Procedure.:-)

I had five days in the chair, with 2 Pleriaxafor injections to help the stem cells out. I achieved 1.2 million which gave me enough for my single SCT. Here's hoping your journey is much easier.;-)

Dai.

Hi Andy,

The slim chance of an auto SCT is quite good given the previous answers. 😉

Cycle 10 is good, you may well go to and past the median for Revlimid which currently stands at 30 months/cycles… I really hope you do. 🙂

Dai.

From my laptop in Room 2, Fletcher ward, City Hospital, Nottingham. 🙁

Hi Terry.

I start Bendamustine next Monday but Scott and Keith have already started treatment and may well be better informed about the treatment.:-)

I have had 2 DVT's in the past couple of years… Left Leg in the Summer of 2011 and the Right Leg in the Summer of 2012. Both swelled up like 'Tree Trunks' and both took several week to come…[Read more]

Hi Peter,

It's good to see you posting here… we met over lunch at the Nottingham INFOday a good couple of years ago… I am an advocate of less is more and I have followed Dr Berenson for about the same amount of time… you may well have put me onto him, or at least the reportage from the US MM conferences.

I also believe that our medics…[Read more]

Hi Charlie,

I had my only PE following extensive radiotherapy a month or so after being diagnosed with Secondary Bone Cancer – Primary Unknown (it took another year and a move from Pembrokeshire to Nottingham before I was properly diagnosed – long story).

My frontline treatment was CDT (Cyclophosphamide/Dexamethasone/Thalidomide) – so…[Read more]

Hi jean,

I have been following the thread and one point in particular… the untimely and shocking death of our good friend Paul. 🙁

Paul's death was truly shocking … he was young, fit and seemingly doing very well in his recovery following his SCT. Because of his relative youth and fitness perhaps we thought him invulnerable to…[Read more]

Thank you Sussanah and Tina,

I am going to phone Sarah, my specialist MM Nurse to ask about a PICC Line because getting a Cannula fitted is a major operation with me. I know you have mentioned this before Tina… I believe I asked about the procedure during my Velcade treatment but they said something about 'not doing them in Nottingham' or…[Read more]

Hi Liz, Tom & Jo,:-)

The fact that they have told me that they have applied for funding for Bendamustine makes me feel sure that it will be granted. After that it's a matter of waiting for dates for the start of treatment. 😐

I am a little bit wary of the daily Thalidomide because, apparently, that was the drug responsible for my…[Read more]

H Sarah,

i've been there and had that sort of 'care' Each at my own 'City' hospital and at the Queen's Medical Centre, it has occurred at the 'initial Assessment Units', where they diagnose your problem before moving you to the 'specialist' ward.

The staff are usually overwhelmed, under-trained and have not got a chance of understanding the…[Read more]

Thank you all very much indeed. 🙂

Janet joined me in my cough come dribble-sniff and treated herself with proprietary medicines, while i stuck to the AB's and Vick. 😎

The good news is that we are both much better and the dribble-sniffs and cold-coughs both seem to be receding nicely… and best of all the A/B's seem to have the C:…[Read more]