Hi Dave,
Difficult isn't it? I am in very good partial remission at the moment my bone marrow being 2% and paraproteins 1. The computer randomisation process could equally well have put me on no maintenance then I wouldn't have had to even think about making a decision!!
Its great not being on tablets at the moment but I do wonder if continuing maintenance with the trial would have any benefit to myself but no one can give answers to this question until the trials have finished. I also wonder if at some point I may regret not continuing with the trial if subsequent benefits are found. One other thought I have is to start the maintenance but stop it if I have reactions. My consultant tells me that if and when the myeloma returns I would not be treated with Revlimid anyway – they would use Velcrade.
All very difficult, particularly in my current situation where I need to be as fit and healthy as possible.
Good luck with your decision.
Neil.
