Nettie replied to the topic Timely reminder – me on YouTube… in the forum Off topic 12 years, 8 months ago
Wow! Dai I am so impressed ~ this is excellent ~ a man of many talents, thanks so much for sharing this.
Love Nettie xx
Nettie replied to the topic What is stem cell transplant really like? in the forum Under 50s 12 years, 8 months ago
Hi Penny
You are not alone in the Highlands – I live up in Dunnet (Thurso) and had my second SCT in Aberdeen in 2009. The staff at Aberdeen are great and they even provided me with a Wii Sport machine to keep me moving and relieve the boredom! You may even be entertained by Steven (Seagull) who knocks on the window every morning expecting to…[Read more]
Nettie replied to the topic Relapse after 5 years in the forum Newcomers 12 years, 8 months ago
Hi Janet
I am so sorry to read that you were given the news we all dread – but please don't despair! It is quite normal to completely forget to ask 'what now?' because you tend to blank everything when you are sitting in the consultant's office, but now you have had some time to come to terms with the news give the hospital a ring and either…[Read more]
Nettie replied to the topic Treatment failed in the forum General 12 years, 12 months ago
Hi Chrissie
I have been away for a while but just looked in and have been reading your posts. I am so sorry to see the heartbreak you are going through and the uphill struggle David is enduring. This disease really is a b****r but I am so pleased you have found this site as there is so much to be gained from all the wonderful people you meet…[Read more]
Nettie replied to the topic Try singing this when you have a down moment in the forum Off topic 13 years, 1 month ago
😀 Brilliant!! thank you for sharing this David, it has really brightened my day! 🙂
Love Nettie x
Nettie replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 13 years, 1 month ago
🙂 no offence taken Gill – just trying to find new words for the game:-)
Love Nettie x
BELATED
Nettie replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 13 years, 1 month ago
….. not sure that I deserve that when Nosology can be found in just about every dictionary but I'm not one for 'poking my nose' where it is not wanted so …. I will find another DERIVATIVE x:-)
Nettie replied to the topic Que Sera… Week-end Lurgy Strikes Again… in the forum Treatment 13 years, 1 month ago
Hello Dai
I am pleased to hear you are back home – when you went 'quiet' on the forum I thought that you had gone to the B&B! You are the fourth person I know of who has had a bad reaction to the jabs in the past week so maybe there really is something in it this year that is causing a problem – the only time I reacted badly to it was when the…[Read more]
Nettie replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 13 years, 1 month ago
Something we all could do with
RELAXATION!
Nettie x
Nettie replied to the topic Que Sera… Week-end Lurgy Strikes Again… in the forum Treatment 13 years, 1 month ago
🙁 So sorry to hear you are suffering with the dreaded "Weekend Lurgy" Dai! 🙁 ~ isn't it just amazing that it always seems to happen on a Friday afternoon when you either feel you don't want to disturb the medical fraternity or simply cannot get a reply from them!! At least you have a Doc who errs on the cautious side and has made everyone…[Read more]
Nettie replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 13 years, 1 month ago
😀 ha ha – thought that one would get you thinking David 😛 xx
Nettie replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 13 years, 1 month ago
How about NOSOLOGY?
Nettie x
Nettie replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 13 years, 1 month ago
Just dropped in to see what this is all about! can I play?
YELLOW
love to all, Nettie xx
Nettie replied to the topic Apologies in the forum Off topic 13 years, 1 month ago
Dear Bridget
You will never cease to amaze me! after all you have been put through and are still having to put up with, you worry that others are having to go without their wooly hats!! you are an absolute gem 🙂 xxxxx:-)
Nettie xx
Nettie replied to the topic Nettie's finally gone mad!!!! in the forum General 13 years, 1 month ago
At last I found a way to publish part of the video on Facebook! hope this link works x
Nettie replied to the topic Page Not Found in the forum General 13 years, 1 month ago
Hi Dai
Lorna has written an article about the abseil ~ it's on the Home page on the left hand side under Latest News ~ I still cannot upload the video it's about 2GHz! :-S
Nettie x
Nettie replied to the topic Page Not Found in the forum General 13 years, 1 month ago
Thank you webTeam, I was failing to access the forum from the link at the bottom of the Take Action section on the Home page but all is back to normal now!
Nettie
Nettie replied to the topic Page Not Found in the forum General 13 years, 1 month ago
No Dai, it's not only you! I 'snuck in' by clicking on one of the example postings! no doubt they will fix the glitch after the weekend!
Nettie x
Nettie replied to the topic Patrick – still making me laugh! in the forum End of Life and Grief 13 years, 1 month ago
Thank you, Myeloma UK, for including this new category which touches on a very emotive subject . Everyone grieves in their own way and we can now choose when we are ready to get involved in discussions raised here.
Thank you Tina for getting the new category off to a lighthearted start! I am so pleased to read you are able to view your video…[Read more]
Nettie replied to the topic Advice Please! in the forum Newcomers 13 years, 1 month ago
Hi Nadine
I am so pleased to see you have joined this forum and having read all the wonderful comments above, I really don't know if I can add anything helpful.
I was diagnosed in 2004 and only given five years. Well, seven years have passed and I have gone through two SCTs and at the moment have never felt better! The first SCT was pretty…[Read more]