[NettieParticipant]

How about NOSOLOGY?

Nettie x

[NettieParticipant]

Just dropped in to see what this is all about! can I play?

YELLOW

love to all, Nettie xx

[NettieParticipant]

Dear Bridget

You will never cease to amaze me! after all you have been put through and are still having to put up with, you worry that others are having to go without their wooly hats!! you are an absolute gem 🙂 xxxxx:-)

Nettie xx

[NettieParticipant]

At last I found a way to publish part of the video on Facebook! hope this link works x

https://www.facebook.com/video/video.php?v=2324674670977

[NettieParticipant]

Hi Dai

Lorna has written an article about the abseil ~ it's on the Home page on the left hand side under Latest News ~ I still cannot upload the video it's about 2GHz! :-S

Nettie x

[NettieParticipant]

Thank you webTeam, I was failing to access the forum from the link at the bottom of the Take Action section on the Home page but all is back to normal now!
Nettie

[NettieParticipant]

No Dai, it's not only you! I 'snuck in' by clicking on one of the example postings! no doubt they will fix the glitch after the weekend!

Nettie x

[NettieParticipant]

Thank you, Myeloma UK, for including this new category which touches on a very emotive subject . Everyone grieves in their own way and we can now choose when we are ready to get involved in discussions raised here.

Thank you Tina for getting the new category off to a lighthearted start! I am so pleased to read you are able to view your video clips and enjoy the love and humour you shared with Pat – grief does not always need to be tears of sadness – tears of joy from happy memories are very important!

Love Nettie x

[NettieParticipant]

Hi Nadine
I am so pleased to see you have joined this forum and having read all the wonderful comments above, I really don't know if I can add anything helpful.
I was diagnosed in 2004 and only given five years. Well, seven years have passed and I have gone through two SCTs and at the moment have never felt better! The first SCT was pretty awful but I was very ill before it, but it put me into a good partial remission for four years (with the help of thalidomide).
When I relapsed in 2005 I was offered a place on the Myeloma X trial using VAD chemo (Velcade + Adriamycin + Dexamethazone) followed by my second SCT in Aberdeen. I have to say I was dreading the stay in hospital but it all went so well I was only kept in for three weeks and it has put me into total remission for the past two years.
Just being there for you Mum is the greatest help you can give. I am sure you all feel it is important to stay strong and positive and you are absolutely right – but sometimes there is nothing wrong with letting go and having a good sob, you are only human and sometimes it clears the air and gives you the chance to express how you all feel. This is such a cruel disease but there are so many options and more being researched so hold onto the positive attitude it really does help.
I hope you have all had a great holiday – what a wonderful idea to go away and spend some real quality time together – hope you got the insurance sorted – I always use MIA they are very helpful and not over expensive.
Keep posting and let us know how your Mum is getting on – there is always someone online (look at the time this is being posted!!)
Take care, love Nettie x

[NettieParticipant]

Hope this link to Photobucket will work!

http://photobucket.com/Nettie277

double click on each thumbnail to enlarge photo

[NettieParticipant]

I'm having trouble getting some photos on here so thought I would try the Facebook link instead – the video may take a lot longer!!
Nettie x

https://www.facebook.com/media/set/?set=a.2281069740881.2125040.1072947535&l=80134a6a80&type=1

Not working!

[NettieParticipant]

That is excellent news Dai 🙂
Now ENJOY your success!!!
Love Nettie x

[NettieParticipant]

Yee Ha!!!! I did it! 😀

What an amazing experience >:-) I have to say the worst bit was climbing over the rail and having to balance on a 6" wide steel girder before launching off ~ but that done (albeit after a few expletives passing my lips :'-( ) the descent was brilliant! wonderful views, despite the pouring rain, and hopefully some good photos and video which I will try to post asap.

Thanks guys for all your moral and financial support ~ couldn't have done it without you! 🙂 🙂

Love Nettie xx

P.S. It was great to meet Lorna from head office too!

[NettieParticipant]

Hi Gill

So sorry to hear Stephen's 'no so good news'. We all dread it but the prognosis is not necessarily certain. MM is such an individual disease that they cannot be that sure – the next treatment may the right one for Stephen and things could look far more positive. You have the right attitude – get out there and enjoy yourselves, leave the fretting to the professionals!

love and hugs to you both
Nettie xx

[NettieParticipant]

Great news David! always a worry – the day of an appointment – then you come out wondering why, but I guess we all do it!! Long may the good news last and the numbers keep falling ~ enjoy!

Nettie x

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