Myeloma Forum | NicolaCroxall | Activity https://forum.myeloma.org.uk/members/Nicola2708/activity/ Activity feed for NicolaCroxall. Thu, 23 Apr 2026 04:47:32 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 54f45d89dc082c3073c4bb6c89c49e4e NicolaCroxall replied to the topic charity night in the forum General http://www.myeloma.org.uk/forums/topic/charity-night#post-93269 Sun, 05 Aug 2012 19:47:24 +0100 Yes thats what i thought, i have a terrible fear of heights, but this might just get me over that. Be worth it for the money I would raise. Want to do a black tie event next spring as well, but need to plan that. Plus it helps keeping busy like this, putting my energy in to something so worth while.

Nick x

]]> cb0dde169b5571380810f13ade9c3dad NicolaCroxall replied to the topic charity night in the forum General http://www.myeloma.org.uk/forums/topic/charity-night#post-93267 Sun, 05 Aug 2012 18:57:12 +0100 Thanks Deb

Didnt think it would take so much organising, rotas to do BBQ, making sure mitch will be ok behind the bar, music getting raffle and Auction prizes. But it is all so worth while..I intend to do lots more events as well. Want to make dads wish reality for him.

Tom its The Boot Inn
Gladstone street
ibstock…[Read more]

]]> 2c23dc7735376ec320d17e8a603061d7 NicolaCroxall replied to the topic charity night in the forum General http://www.myeloma.org.uk/forums/topic/charity-night#post-93264 Sat, 04 Aug 2012 10:15:10 +0100 Hi tom

how are you? Were in ibstock, leicestershire. Lol would help if i d of put that wouldnt it. Xx

]]> 6844b6edcd66be51abca42d7ee43785e NicolaCroxall started the topic charity night. in the forum General http://www.myeloma.org.uk/forums/topic/charity-night Wed, 01 Aug 2012 18:17:41 +0100 Hi all. Hope everyone is ok and enjoyed the lovely weather last week. Ive organised my first charity event for the 11th August. Everyone has been really generous. Im quite excited and hoping to raise as much as possible. If any of you are local to the event be lovely to meet everyone. Xx

]]> 36ce31fb8288bee0ce9a05768c08d62e NicolaCroxall replied to the topic Bridget... 10:30am today and beyond in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/bridget-1030am-today-and-beyond/page/2/#post-107654 Sat, 07 Jul 2012 16:49:52 +0100 First time ive been on here for a long time, bridget you were a lovely lady and offered me great words of kindness when my dad was first diagnosed and later passed sway. I hope your children realise what a wonderful lady youwere. Good night and god bless. Heaven has gained a beautifull angel xx

]]> 28ae9d6c87950e7645d1c6be2e003fe0 NicolaCroxall replied to the topic Another 3 months in the forum General http://www.myeloma.org.uk/forums/topic/another-3-months1333128671/page/2/#post-92415 Thu, 12 Apr 2012 12:20:09 +0100 Yay you go David

what a lovely thing to read. Hope your coughs much better, and managed to enjoy some off the lovely sunshine we had.

love and best wishes

Nicola

]]> 4e55ad4bc0b34d7111d0f528aba8e9bc NicolaCroxall replied to the topic bereavment in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/bereavment#post-107564 Thu, 12 Apr 2012 12:03:55 +0100 hi stephen

all we can do is one step at a time, baby steps as my friend says. i agree with eve though spent lots of time with my children help, they make me laugh and cry all at the same time.

love

nicola

]]> e400495d6217dd697710a406516d4348 NicolaCroxall replied to the topic Don't google it, I couldn't even spell it! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/dont-google-it-i-couldnt-even-spell-it/page/2/#post-85765 Wed, 04 Apr 2012 13:51:23 +0100 Hi Neelie

Its really good to rant ive only been a member on here for a little while but its been a great place to come to have a rant, or get information. There is always someone here with kinds words and support. Your Dad is now in the right place and im sure he will be getting the best care possible. My advice would to always write down the…[Read more]

]]> 5520cd8cf7cb55223a640f3b6abeeaac NicolaCroxall started the topic WHAT TO DO NOW.... in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/what-to-do-now Wed, 04 Apr 2012 13:35:57 +0100 Good afternoon guys

Id like to thank all off you for your kind words and prayers. We buried Dad on the 23rd of march, It was a beautiful day, the sun shone bright just how he liked it. The landlord from dads local gave him a fabulous wake, my dad was a very lucky man or should i say we were very lucky to have dad in our lifes. Over 300 people…[Read more]

]]> 1264dc145cf42ca8179781a77832d887 NicolaCroxall replied to the topic My beautiful brother in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/my-beautiful-brother#post-107546 Wed, 04 Apr 2012 13:11:09 +0100 Dearest Jean

I Lost my dad 3 weeks ago today, it feels like a great big hole has been left in my life. So i can understand how much you must miss your brother, like you we were there to hold his hand. People keep telling me time is a great healer, may be this is true. Hope Alex was able to enjoy some of her birthday.

Much love to you…[Read more]

]]> a8deefed48ec73f4b62f4ada96f5e2a5 NicolaCroxall replied to the topic RIP DAD 14/03/12 in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/rip-dad-140312#post-107503 Sat, 17 Mar 2012 00:11:41 +0000 Dear Helen

Thank you so much for all your kind words over the last few months. How you feeling your self. Any more thoughts on getting that puppy. xxx

]]> b8a0887ad1e618d01783cece3396176b NicolaCroxall started the topic RIP DAD 14/03/12. in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/rip-dad-140312 Fri, 16 Mar 2012 22:57:20 +0000 Just wanted to let you all know dad finaly went off to become an angel. I know he is no longer in pain. We held his hand as he took his last breath. Its selfish but i wish i could have had longer, i miss him so much already. Feel so far away from him. Love you daddy cool xxxx

]]> 75e2470517865b9225267763ec6d60c0 NicolaCroxall replied to the topic We have reached the end of our battle in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/we-have-reached-the-end-of-our-battle#post-107467 Mon, 12 Mar 2012 08:07:53 +0000 It's Monday morning, dads still hanging in there, after a distressing day yesterday they have managed to get to grips with the pain he was in. We just keep talking to him letting him know that we love him. He shouts out ocassiontionly. But has not regained consciousness since Friday. Xx

]]> cfd5785a73c0858a8f993c49babe9db0 NicolaCroxall replied to the topic We have reached the end of our battle in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/we-have-reached-the-end-of-our-battle#post-107476 Sat, 10 Mar 2012 18:09:39 +0000 Dads now receiving pathway care, no more medical intervention. All tubes have been removed. We just waiting cx thank you love to you all x

]]> 180b146803c2a66a882cb0396901d183 NicolaCroxall replied to the topic We have reached the end of our battle in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/we-have-reached-the-end-of-our-battle#post-107479 Sat, 10 Mar 2012 01:21:50 +0000 thank you bridget and helen,

Im really quite frightened and dad looks really scared in eyes, Cant belive how quick its happened. we wont be leaving him. we wont to to do all the care our selfs. thank you for your ongoing support. xxx

]]> 3d1bf42944ba2ae432821633cf1d8dc1 NicolaCroxall started the topic We have reached the end of our battle. in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/we-have-reached-the-end-of-our-battle Fri, 09 Mar 2012 23:51:07 +0000 tonight we our preparing to say goodbye to my dad as of this afternoon, the doctors have revoked all active treatments. Dads kidneys have now going in to failure and theres nothing they can do. Were trying to get him home, but been told it will be 48hrs because its the weekend. We dont think he will hold out that long. I would like to thank…[Read more]

]]> 17cda650ebbd03d7bdb08cb7272f740d NicolaCroxall replied to the topic velacade not worked in the forum Treatment http://www.myeloma.org.uk/forums/topic/velacade-not-worked#post-98991 Thu, 08 Mar 2012 22:07:26 +0000 hi helen

im hoping it has some affect when we get started on it. as yet a transplants looking unlikely. wont even really discuss it with us. Im scared to go see him, he always seems to get so down in hospital. how are you helen xx

]]> aeee98151f5b79e2b2d132915a8fb149 NicolaCroxall replied to the topic velacade not worked in the forum Treatment http://www.myeloma.org.uk/forums/topic/velacade-not-worked#post-98996 Thu, 08 Mar 2012 19:26:53 +0000 hi
thanks for all your replies, keith it is lenolidomide. Dad(micky) was supposed to start to day when we visited out patients. Unfortunately this wasn't to be the case. Bloods showed high levels of calcium again, infection and poor kidney funtion. So instead of starting the new regime dad(micky) has now been addmitted. He cried for the first…[Read more]

]]> 649f870af4ac3a38d0450eab53cdc04a NicolaCroxall replied to the topic velacade not worked in the forum Treatment http://www.myeloma.org.uk/forums/topic/velacade-not-worked#post-98999 Tue, 06 Mar 2012 16:15:44 +0000 Thank you Keith and Bridget,

It's so heart warming that you take the time out to reply. Especially when you have so much going on in your own life's. Must admitt to have been sticking my head in the sand, it's a far calmer place to be especially after a few glasses of wine lol. It's not the revlimid it be begins with L. He started on that…[Read more]

]]> daa98fd80fcc1188250bfb5d31b87169 NicolaCroxall started the topic velacade not worked. in the forum Treatment http://www.myeloma.org.uk/forums/topic/velacade-not-worked Mon, 05 Mar 2012 21:06:43 +0000 hi guys, sorry not been around for a while, just been reading through the post and lools like "the B*****D that is myeloma is taking hold all over the place. Sadly dads course of velcade hasnt worked. so there starting a third stage treatment a 2nd generation drug sounding like thmilomide same sort of family as that drug. Dads praprotein levels…[Read more]

]]> 0eb97a30cbbbc81ab472b42a263a7974 NicolaCroxall replied to the topic Velacade in the forum Treatment http://www.myeloma.org.uk/forums/topic/velacade#post-98691 Tue, 10 Jan 2012 22:51:29 +0000 Hi Bridget

Thank you for taking the time out to reply, you would have laughed even louder if you had heard him refer to dick head in front of his consultant, think she thought he was calling it her lol.

Yes break is def needed for all. He's had a rough trot since end of November, after was taken of drug trial because wasn't working, and…[Read more]

]]> f7ab8fd3fb5589def555e17a704703ba NicolaCroxall started the topic Velacade. in the forum Treatment http://www.myeloma.org.uk/forums/topic/velacade Tue, 10 Jan 2012 20:48:52 +0000 Well after the bad constipation, another week stay in hospital and a blood tranfusion before being allowed out today.They have deceided to give dad ( Micky ) a treatment break for a another week, to give him chance to get a bit stronger. His para proteins today were 48, I know it's not good but having read some post it could be worse.

His new…[Read more]

]]> e68d4195e4a395818d6af95a05b26f72 NicolaCroxall replied to the topic The Holiday Is Over in the forum Treatment http://www.myeloma.org.uk/forums/topic/the-holiday-is-over#post-98643 Tue, 10 Jan 2012 20:17:00 +0000 Hi Bridget

I'm sorry to read your news, you have offered lots of kind words to me the last week.I send you my love and an ear if needed.

Love and hugs

Nicola and Micky

]]> 6482ab6b62653e225330227632617848 NicolaCroxall replied to the topic It was only a transfusion.... in the forum Carers http://www.myeloma.org.uk/forums/topic/it-was-only-a-transfusion#post-106209 Mon, 09 Jan 2012 21:28:53 +0000 Hi chelle
I'm new to this as well. My dad was disgnosed in august and it's been battle after battle. Kept my emotions in check till just befor Christmas, and had a complete break down in the hospital corridor when the TVcard dispenser didn't work. Had a good cry and sat and spoke to my dads Specalist nurse. She has been a good point of contact…[Read more]

]]> df5c92ba0cea0d7f73c487683bdaf150 NicolaCroxall replied to the topic Where do I start? in the forum Carers http://www.myeloma.org.uk/forums/topic/where-do-i-start#post-106237 Mon, 09 Jan 2012 21:11:50 +0000 Hi edd

I'm very new to this site, have made a couple of post myself. My toughest times so far is having to remain strong and in control. And leave the break downs and screaming for my husband who without a doubt has held me up. My dad was diagnosed in august of this year, after suffering back and rib pain for over a year. I agree with live each…[Read more]

]]> 2a2e5a056d5954f1a1136c5c079d3b2b NicolaCroxall replied to the topic REMISSION. in the forum General http://www.myeloma.org.uk/forums/topic/remission/page/2/#post-91982 Mon, 09 Jan 2012 20:20:34 +0000 Hi eve, I'm still very new to this site but have read through lots of post, it's lovely to see your happy news, looks like 2012 is your year. Hope you find a nice cruise for you and slim and enjoy some quality time together.

Love
Nicola

]]> 91d3ff98f11c6d050d0ff345ceb81306 NicolaCroxall replied to the topic WORST DAY YET in the forum Newcomers http://www.myeloma.org.uk/forums/topic/worst-day-yet#post-85460 Mon, 09 Jan 2012 19:14:33 +0000 Thank you Bridget, here's hoping.:-) . Everyday is certainly a new challenge. I've been to work today needed some normality myself lol. Although dad has rang me about 20 times bless him. He's awaiting a transfusion as we speak as his heamagloban levels are 8.1. Which are low. Think normal levels are 14.9.

Tom my dads name is Michel or Micky…[Read more]

]]> 730314bb0ec9fa4896c9e2dcce44f7f5 NicolaCroxall replied to the topic WORST DAY YET in the forum Newcomers http://www.myeloma.org.uk/forums/topic/worst-day-yet#post-85457 Sun, 08 Jan 2012 21:45:41 +0000 Thanks Tom, he seems alot more perky today. Would imagine that now all that build up is out the pressure has gone and the pain. We spoke about what he asked me to do today, he's feels unhappy about what his life's going to offer, he's not going to be able to return to work if we get him fit enough due to MM attacking his spine and his color bone…[Read more]

]]> a68208072368f962afaf0551b7d6d463 NicolaCroxall replied to the topic HELP in the forum Newcomers http://www.myeloma.org.uk/forums/topic/help#post-85390 Sun, 08 Jan 2012 20:12:33 +0000 Thank you Pamela, I've spoken to ward manager several times and the consultant as well, I no the nurses are busy but there is such things as basic care, it's really helping being on here every ones been so helpful.

Love Nicola xx

]]> 147c3593600258a3c28ce4d30e11e60a NicolaCroxall replied to the topic Parent diagnosed last year & MM still thinks its boss! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/parent-diagnosed-last-year-mm-still-thinks-its-boss#post-85470 Sun, 08 Jan 2012 19:29:09 +0000 hi Bridget

I only joined this site a week ago after plucking up the courage to write things down. So far my dads not had much look with his treatment, un like your mum he's struggling to stay positive. Which we try to keep his mood up beat. It's so nice to come on here and read about other people's journey's, and that positive things do happen…[Read more]

]]> a598b841554aa93bb1ebfeaddabe2538 NicolaCroxall replied to the topic WORST DAY YET in the forum Newcomers http://www.myeloma.org.uk/forums/topic/worst-day-yet#post-85455 Sun, 08 Jan 2012 19:17:56 +0000 Thank you all so much for your responses, and very kind words. Finally after 5 days dad has passed the poo, from several suppositories and lots of oral laxative sulution. Left him very sore.. Tired and bit scared to eat as he's worried about causing another build up. I wish I could do more to take his pain away, I'd take it for him. Mavis I have…[Read more]

]]> 664d54b438b21333dcd9be6a47ad1fef NicolaCroxall replied to the topic HELP in the forum Newcomers http://www.myeloma.org.uk/forums/topic/help#post-85388 Fri, 06 Jan 2012 01:07:38 +0000 Thanks eve, that's my plan. We don't have a carer at the minute, I've been granted flexible hours, so between me an my husband we've managed. But we do need a little extra help. Which was what assessment was for, but will need to wait again now. Thank you for you help xx

]]> 117792a642c0be3b787abfca1c394e46 NicolaCroxall started the topic WORST DAY YET. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/worst-day-yet Fri, 06 Jan 2012 01:05:31 +0000 Have been at hospital all day with dad, just come to have a coffee.. Caffine hit while at last he has a little sleep. Today dad was given suppositories to help move the build up in his bowl, he's been catherteized as he's not passing urine, the doctor said this is because of the constipation. Not sure how that work. He's been seeping poo nearly…[Read more]

]]> 9f546cfb09f68fd9f40fa792970a3fd8 NicolaCroxall replied to the topic HELP in the forum Newcomers http://www.myeloma.org.uk/forums/topic/help#post-85386 Wed, 04 Jan 2012 23:20:11 +0000 They said they were happy to let him go home, returning twice a week for his chemo injections. We were released with morphine patches, and liquid morphine which is available for him every 2hrs. The other drugs I'm not sure as there not here at the minute.. We were due a nurse out today to help arrange support in the home but I had to cancel as we…[Read more]

]]> 56bfab38e7c63f1a2e45e8359c81937b NicolaCroxall replied to the topic HELP in the forum Newcomers http://www.myeloma.org.uk/forums/topic/help#post-85383 Wed, 04 Jan 2012 22:12:46 +0000 Thanks Mavis, how very kind of you to reply. I've spoken with doctors specialist nurse, they've said while there concerned, they still want to carry out this cycle of chemo. Ive had the discussion about dad not having to go through more than needed. The first lot of chemo had no effect which was tablet form along with 6 session of radio therapy on…[Read more]

]]> a98cb080f3c92b14149c3f42d6fd723e NicolaCroxall started the topic HELP. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/help Wed, 04 Jan 2012 21:20:03 +0000 Hi been reading through this site since my dad was diagnosed in august. Just need some help or advice anything anyone can offer. Dads been really poorly the last 7 weeks and has had to remain in hospital. He's now half the man we new weight loss, he also lost about a foot in height. Hes had lots of Infections and for around 5 weeks didn't know…[Read more]

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