Hi Vicki
I was diagnosed in Aug 11 with MM the Bence jones type,if you have any questions i will try to help.
cheers paul

Hi Dai
Glad to read you are back home and building your strength back up.
cheers Paul

Andy glad to see you back on track again.
cheers Paul

Eve
I am so sorry to hear this news,my thoughts are with you and your family.
love Paul

Hi Pete
Glad you now active on the web site.When first diagnosed I had a tumor in lower neck/top of back area which was treated with radiotherapy so far successfully. medical team were worried it would cause compression on spinal cord and loose mobility.As i say this has not happened and it has been treated.
MM also causes bone damage to…[Read more]

Hi Pete/Ann
I was diagnosed with Myeloma last Aug which started with back pain (which i still get).I am 40 so one of the younger end on the site.Just completed 4 cycles of PADS and getting ready for Stem cell transplant (SCT)in early June.If you have any questions about your Myeloma ask you're medical team,and of course this site…[Read more]

Hi David and Wendy
Great to hear both you're good news keep on keeping on!
cheers Paul

Hi Lynda
I am on PADS induction which includes Valcade this "mixture" has brought down my PP from 2300 down to 37 after only 3 cycles so it works. (I got the myeloma bounce when I came out of remission i.e it came back during Myeloma 11 trail).So pass onto Pete to stay optimistic.
I am now lined up for stem cell harvest 23/24/25 may…[Read more]

Hi Tony
I was diagnosed in Aug 11 with light chains myeloma (Bence Jones)type,started off on the myeloma 11 trial which worked well and got me into remission but unfortunately my myeloma came back.Now on PADS induction and its working as my levels have come right down.I am due for Stem cell transplant (SCT) early June and allo graph…[Read more]

Hi Helen
The "right of the ostrich" love it….!:-D I may use that right at some stage myself.
keep us up dated
cheers Paul

Hi Helen
I think i maybe able to help,i have had 2 occupational health interviews.Now i had the choice either to attend at their offices or have a "over the phone interview".I had the over the phone version which saved me a 24 mile round trip.
After the "interview" you will/should receive a written report of the meeting,below are the…[Read more]

Hi Sarah
Always good to hear great news like that…Henry well done that man!!:-)
Cheers paul

Hi Andy
I asked my consultant about alcohol and she says 2 small glasses of red wine is allowed on a weekend.(or equivalent)
Personally i think your body will tell you whats right, and going out every so often is a good thing.
I am currently on valcade,Dex,Doxorubicin and on 1 week take all three and my sense taste goes completely out of…[Read more]

Hi Mavis
My consultant told me last week after my PET scan that my left ribs and sternum were were weaker(lesions).My consultant is great and she knows that I ride a mountain bike (when meds allow me!) which inst often enough.She now tells me "stay off the bike till after SCT"
All these things can come out of the blue abit and change…[Read more]

Hello Steph and Andy
Glad you finding the site both informative and supportive,your right its a whole new ball game but there's lots of people on here who can give good advice.:-D

Hi Kirsty
I was diagnosed last Aug at 39 and it was abit of a bomb shell as well,but the people on this site a great and always happy to support where can.I turned 40 in December and currently on valcade injections and awaiting stem cell transplant.You will come across medical jargon….if unsure just ask we are all on a learning…[Read more]

Thanks for the info Bridget,I will give that a shot.Hope you enjoying the lovely sunshine.Just for your info on the Benefits issues i managed to claim Employment support allowance so i have entered the system!!!thanks for the support.
Love outdoors Paul
PS Rachel and I off to Scotland next week to small Island called Cumbrae for 4…[Read more]

Hi Eve
Unsure if I have read your e-mail right but here goes.I have received my letter for SCT.The process explained to me is as follows.
I had tests for heart,lungs and CT and MRI and only one still to do is a dental check.That should be fine as i go often.
My cyclo priming is on 14th May with harvest due 23rd/24th/25th May at St James…[Read more]

Hi Eve
Fantastic news on slims move towards SCT, may the sun keep shining on your corner of Kent:-)
cheers Paul

Dai
I am currently on the PADs route and taking Dex.Week 1 of my cycle i take Dex over 4 days,which is 40mg per day.
I get the hiccups,upper body weight stomach/chest/neck.I also get some hot sweats at night and my pillow can be wet.So dehydration could be an issue but I drink between 2-3 pints of fluids a day.
I do feel "wired" when on Dex…[Read more]