Hello Dai
Just read Bilbo's song….wow made me cry straight away,such a descriptive song and so lovely.Thanks for sharing that.
cheers Paul

Hello Dai
Many thanks for the reply,since the posting I found out it was Bence jones and looked on the sites info leaflets which helped alot.
3-4 of my ribs have been weakened as have 1 vertebrae and the consultant put me down as in the "early stage" .So having Bisphosphate infusions once a month when visiting consultant.
I was…[Read more]

Hello Bridget
Just logged on and seen your post,good luck with the Radiotherapy.I got zapped when first diagnosed 4 week ago and was in some fair pain.No pain now just muscular aches.
You are a strong woman i think, so i am keeping my fingers and toes crossed for you.:-)
love Outdoors Paul

Hi Ellen
I have just been diagnosed with Lightchains Myeloma and I am 50% through my first cycle on Myeloma 11 trial RCD pathway.Is there any info out there on Lightchains,my consultant says its in the "early stage" I am 39 and male quite physically fit..except for the Myeloma!
thanks Paul

Thanks Gill for the posting,its early days but fingers and toes crossed!!:-D

Hi Mavis
Thank you for the lovely welcome to the site I attended my first consultants apt today and found out that I am a Lightchains Myeloma person…
So my consultant has told me that i dont produce para proteins its a different form.So sorry cant help on that one,completely agree about reading up on things and this web site is great…[Read more]

Hi Debs
Many thanks for the advice,just been to have my first consultant check since being discharged 13 days ago.I have Lychains Myeloma so now have a name to it!(As I am a walker I have Named It "Beinn Myeloma" my next mountain to climb!)
I am half way through my first cycle and finished taking a 4 day dose of Dexy.Side effects have…[Read more]

Thank you Stewart much appreciated.
Bridget thanks for the Revo advice you seem to have a wealth of good advice. and I think I will take the revo later in the evening.Today is my first day of the 4 days of high dose Dexy so I will be assessing myself as it goes.Went for blood test and away for 9.30 thoe it did involve 22 mile journey.Will try to…[Read more]

Hi All
Thanks for all the support and advice which i will take i promise!
Been on the RCD medication pathway for 11 days now so meds must be well into the system.I do have a slight sore throat and sometimes get a hot sweat usually after Revlamid in the evening. I was told to take Revlamid at "teatime" so duty fully taking at 5pm..could i…[Read more]

Positive thoughts to you both & keeping shouting loud.
Paul

Hi Russel
I was diagnosed about 11 days ago now and I am 39 so we not that far off in age i think.Theirs a shed load to take in for sure but this is definitely a site to find good sold support and some possibles answers to questions you have.Its still all new to me plates spinning here and there,medication,hospital apps,work,social…[Read more]

Hello Bridget,Elizabeth and charlie,
First of all many thanks for the replies,once i signed onto the site my broadband went down so I could not respond.Its still 50-50 so hence tapping out a reply now.
The advice about Dexatude I would agree with I have found my self a little spikey at times not like me as I am very liberal in fact quite…[Read more]

Hi all
Just been diagnosed with Myeloma 11 days ago and just out of hospital after tests and some radiotherapy.wow certainly a alot to take in!!The medical staff were fantastic and we are certainly lucky to have the NHS.I have started taking my first cycle of chemotherapy tablets the RCD route/Myeloma 11 trial.I am 39 and quite physically…[Read more]