PaulCreek

  • CarolBradley1 replied to the topic Oh – Oh it's back in the forum General 12 years ago

    Thanks Joe
    Lets hope you continue and have a good long run!!!
    Thank you so much for the kind thoughts it has really helped me accept everything and just get on with it – there are such lovely people on this site.
    Best wishes,
    love Carol xxxx

  • CarolBradley1 replied to the topic Oh – Oh it's back in the forum General 12 years ago

    Thanks Charlotte
    Have cheered up a lot now after all the smashind messages.In fact, I feel a bit of a wimp when I think I have at least had a year off aggressive treatment when so many people are so ill and still waiting for doners etc.
    Anyway treatment going better than thought it wouldbe sofarso good!

    Love and many thanks for the"cheer"…[Read more]

  • CarolBradley1 replied to the topic Oh – Oh it's back in the forum General 12 years ago

    Hi to you all
    Thank you so much for your very kind thoughts – much appreciated. I knew it was back really by the fatigue and pain levels but we always hope for the best don't we?
    Had Hickman in yesterday and will start chemo (PAD) on Monday so may not be on 'air' for a little while!

    Best wishes to you all and fingers crossed that we don't…[Read more]

  • CarolBradley1 replied to the topic Oh – Oh it's back in the forum General 12 years ago

    Hi & Thanks so much Helen

    As you can probably tell by the time of my reply I am on DEX and wide awake and twitchy!
    Keep well you too.
    Love Carol xxxxxx

  • CarolBradley1 replied to the topic Oh – Oh it's back in the forum General 12 years ago

    Hi Joe
    Many thanks and lets keep thinking that yours is going to go on for years to come so relax and enjoy!!
    I have heard from a lady in America who was diagnosed thirteen years ago and is still going strong, so it does happen.
    Take good care of yourself
    Love Carol xxxxxx

  • CarolBradley1 replied to the topic Oh – Oh it's back in the forum General 12 years ago

    Hi Keith
    Many thanks for the prompt reply – especially when you are going through the mill at present and over past years.
    The general information is great but I suppose just hearing from someone in a similar position helps me to treat the situation in a calmer fashion too!
    I'm very reticent about another transplant as mine didn't go too well…[Read more]

  • CarolBradley1 started the topic Oh – Oh it's back. in the forum General 12 years ago

    Hi everyone,

    Sorry to be a bit glum but I am trying to be really positive at home but know I can be honest on here – after being in remission for a while my specialist tells me it is back and is putting me on PAD. I had three units of blood today. will have platelet treament and Hickman line in on Wednesday and hope to feel much stronger by…[Read more]

  • keznmel replied to the topic hospital again….. in the forum Under 50s 12 years ago

    Hi guys – Thank you so much for your messages. It really is overwhelming receiving encouraging messages from you all. Thank you – I am so glad I have joined this site.

    I hope this finds you all well – lots of love and best wishes.

    Take care Love Kerry xxx

  • keznmel replied to the topic Hospital again…… in the forum Newcomers 12 years ago

    Hiya Wink… Thank you for your message.

    You are right, it is the damage that MM causes that is the really problem! I always say that if Melv just had Cancer to accept without the disabilities that it has caused, he approach it with determination and fight with everything he had. However, as he is slowly losing 'who he is' due to no longer…[Read more]

  • keznmel replied to the topic Hospital again…… in the forum Newcomers 12 years ago

    Hi Megan – Thank you for your message.

    It sounds like you have both have it tough too. I'm sorry.

    I understand what you are saying about the beg of the MM journey and we are so happy and positive regarding the PP levels, it's fantastic and a step in the right direction regarding the Myeloma. However, the damage that the Myeloma has caused…[Read more]

  • keznmel started the topic hospital again…… in the forum Under 50s 12 years ago

    Hiya guys….

    Unfortunately Melvin has been in hospital again. We were so happy after finding out his IgG levels had come down a little last Tuesday..from pp 55 to 37! Then on Sunday night he became in excruciating pain again with his lower back and the left side of his lower body (it was the right before)…so 999 again and in he went. I tried…[Read more]

  • keznmel started the topic Hospital again……. in the forum Newcomers 12 years ago

    Hiya guys….

    Unfortunately Melvin has been in hospital again. We were so happy after finding out his IgG levels had come down a little last Tuesday..from pp 55 to 37! Then on Sunday night he became in excruciating pain again with his lower back and the left side of his lower body (it was the right before)…so 999 again and in he went. I tried…[Read more]

  • keznmel replied to the topic Waiting in the forum End of Life and Grief 12 years ago

    Oh Sue… :-(. I know that I haven't spoken to you before, I'm quite new. It's also my partner who has MM.

    I often wonder *how* you do cope and accept that news??!! If I can be honest, I don't have any advise to give – other than love each other and make this time more special than you have any other.

    I am so very sorry Sue…

    Thinking…[Read more]

  • keznmel replied to the topic Staging??? in the forum Newcomers 12 years, 1 month ago

    Thank you Mavis – I tend to agree I think. If you have MM..you have it regardless!

    I hope this finds you well – take care xxx

  • keznmel replied to the topic Staging??? in the forum Newcomers 12 years, 1 month ago

    Hi Eve

    Thank you for getting back to me with that. I have read lots of literature and have sort of worked it out myself ( i think). I understand the process of MM and what it all entails – I'm a bit of a researcher and send myself crazy looking up this and that! I also ask for copies of the information and always take my note book and pen and…[Read more]

  • keznmel started the topic Staging???. in the forum Newcomers 12 years, 1 month ago

    Hiya

    I was just sitting here reading some posts and I just thought I would reach out and ask about staging. We haven't been told what stage Melvin is with the Myeloma. When I asked at the last consultation, I was told that due to Myeloma being an incurable type of Cancer, they don't stage it. basically, if you have Myeloma, you have Myeloma…[Read more]

  • Hi Peter…

    You explained just how Melvin is. He said if it wasn't for the inability to work or resume normal activities due to the spinal cord compression, he would be able to live quite a 'normal' life while on the Dex. However – he suffers such a come down when he stops…like you, he feels so tired, almost lifeless. Only waking to eat most…[Read more]

  • keznmel replied to the topic Recently diagnosed in the forum Newcomers 12 years, 1 month ago

    Hi Mike

    I'm sorry that you are going through a tough time at the moment. It's my partner who is 39 who has Myeloma, and is also on the MXI trial, RCD. He is at the end of the 2nd cycle at the moment. I noticed that you go to the QE hospital in Birmingham. We live in Birmingham and Melvin will be having his SCT at the QE. What a fantastic…[Read more]

  • Hi Tom

    I have another person helping me with it all so I'm not totally on my own. Although I complain for being stressed at the moment, I feel like I need to inject all of my frustrations and emotions into something productive…if you understand what I'm saying. I may regret it, it may exhaust me but I feel I need something to focus on other…[Read more]

  • keznmel replied to the topic I feel so miserable! in the forum Newcomers 12 years, 1 month ago

    Thank you for your message Jo. People always say that I am coping really well and sometimes I agree. It may be the false smiles and 'I'm fine thanks' that I often reply when asked how I am. The way I see it – I have to cope, I have no choice. Who else is going to look after everything..Melvin and the children? Just sometimes, like now – I just…[Read more]

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