Hi Jet

Good for you – fantastic news!!!
Now all you have to do is get a little stronger day by day and not be too hard on yourself if you are a bit wobbly for a while.
So pleased for you.
Love Carol
xxx

Hi David
I like that – Vasbyte is so much quicker to say and repeat than "grit your teeth"

No, your right we´re not going to live forever but for a heck of a site longer than this myeloma intends arn´t we?!!!!

My husband,beloved horse Harry and his companion are leaving for Spain on Thursday and I will follow next week when they have a…[Read more]

Hi
[b][/b]Fantastic news!!![b][/b] So pleased for you both may it continue for a long, long time.
Thank you for letting us know – it´s a real boost.
Go away and enjoy your holiday you really have earned it!

Best Wishes

Love Carol
xxxx

Hi Amelie

Luckily my doctor is very kind and sympathetic – it´s just that after my being so poorly I think my itchy back comes rather low down in the order of things to worry about so I´m trying not to worry about it.
Hope things go well.
Love Carol xxx

Hi Bridget
Glad to hear your back up and running! Hope the morphine is helping with the pain although I know it must make you rather haaaaaazy!
They have given me oramorph to be used only at those times when the Tramadol just can´t calm the old back down but I haven´t been forced to use it thank goodness although I have come pretty c…[Read more]

Hi
MySuch a relief to hear there are others out there. Took my grandchildren shopping with me today as their teachers had closed the school for a training day. My four year old little grandson spent the first 10 minutes trying to negotiate how many items I could buy before we went to McDonalds and when I wouldnt play that game tried to negotiate…[Read more]

Hi Nadine and welcome
Hope this helps. I had my STC in Feb of this year and although I can´t say recovery was as quick as I would have liked I am now in remission so I can´t ask for more.
I do get very tired but on the other hand that could be because I look after three horses every day, do all the housework and cooking and shopping, laundry e…[Read more]

Hi Amelie
Sorry to reply so late but I have only just read this. I had my SCT in Feb of this year and yes, I am FED UP with my itchy back and my medical team see to think it´s to be accepted – just the result of the Melphalan and resulting very dry skin.
However, I´m going to investigate eosinophilic folliculitis further and see if I can get s…[Read more]

Hi Paul and welcome
I am on the Myeloma 11 trial with Revlimid. Hope this helps – I had my stem cell transplant in February and although I haven´t found recovery a swift process (I´m a horse rider and sailing kind of person so I´m sure you understand my lack of pacience!) my paraprotien level is now 00. Basically this means I am officially in…[Read more]

Dear Min

Please don´t be silent. Not only would we miss your kind, common sense approach you might just miss us too! Having been widowed I do know what a help friends can be when your going through such a traumatic time so pleae do make the most of us.

I´m really glad that the funeral went well – what a comfort for you all.

Try to t…[Read more]

Hi
I had my SCT in Feb and the last three months I have been back on Revlimid. In addition to the usual symptoms you mentioned I have felt quite strange at times. I describe it to my husband as being like a goldfish looking out as everything seems rather vague and distant. I have also had some worrying short term memory losses and there are…[Read more]

Hi Bridget
Thanks so much for letting us know how you are getting on. I often think of you but don´t want to pester.
Sorry you are suffering with the pain and just praying that they get on top of everything for you soon.
Prayers and very best wishes are with you
love Carol xxx

Hi Ivan – what fantastic news. I don´t understand all the "ins and outs" but I do know that such a drop indicates that they have the cancer on the run!
Best wishes for continued good news.
Carol xxx

Hi Keith and Helen

Luckily I didn´t have any problems like yours but I just wanted to send you my very best wishes as I know how under the weather you both must be feeling at present.

Keep your chins up – had my sct in Feb and for a little while wondered if I would ever feel stronger but yesterday I rode my new horse and cleaned lots of mud…[Read more]

Hello Graham

Just wanted to extend a very warm welcome to you. Seems we were diagnosed in the same year but I only had my stem cell transplant in Feb of this year and after further velcade am now in remission.

Good luck with the Harvest and very best wishes – hoping that the GMX has produced lots of the little wrigglers for future…[Read more]

Hi Aileen
Just popped into the site, saw your post and wanted to say welcome but really sorry that you find yourself needing to join us.
I have found this site to be a huge support and there is always someone who has had experience that they are willing to share with you or perhaps talk over what options etc.
Sometimes, I have even found…[Read more]

Hello Alexis

Just wanted to say welcome (but obviously sorry that you need to be here).
I too am on Revlimid and am always interested to share experiences with others who are also using or have used Revlimid.
Best wishes
Carol

Hi,
Just wanted to wish you both good luck on the op. I'm sure everything will go fine. I'd love to say don't worry but as a carer myself I know that's not possible. 🙂
Last year my husband got his flu jab so hopefully he is on the list this year. My GP's front desk can be awful. If you don't get a letter they won't do anything and don't want…[Read more]

Hi Julie
Smashing to hear from you – but so sorry for the news about your poor husband. The expression never rains but pours springs to mind – you both sound to be taking things as much in your stride as you can though and I hope you can go forward with your plans soon.

We went over to Spain to check out the house last week. Also, my husband,…[Read more]

Can´t add any advice but I did just want to wish you all well. I know what your saying about they don´t want to investigate because of her other issues but how does your Mum feel? I know when I was very very ill I was beginning to feel I was a huge long burden to my poor husband. It´s only now that I am much much better and life is returning to…[Read more]