Myeloma Forum | PaulCreek | Friends Activity https://forum.myeloma.org.uk/members/OutdoorsPaul/activity/friends/ Activity feed for PaulCreek's friends. Sat, 11 Apr 2026 15:28:35 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 2458034bafa601e30887866b0fa9c7b4 Carol Bradley replied to the topic Pom cycle 18 in the forum Treatment http://www.myeloma.org.uk/forums/topic/pom-cycle-18/#post-123539 Thu, 13 Aug 2015 04:20:02 +0100 Hi Andy
Glad to hear your doing so well. Pleased to hear that you are coping so well with Pomalidomide – I am now on cycle 24 and just can’t believe where the time has gone. I too get the dreaded cramps – even in my hands if I grip something every now and again and a few other side effects that you know about well enough. My only real downside…[Read more]

]]> 922f3129ac4d5ebabce069fde5ded148 Carol Bradley replied to the topic Pomalidomide - can we compare results, please? in the forum Treatment http://www.myeloma.org.uk/forums/topic/pomalidomide-can-we-compare-results-please/#post-114143 Mon, 31 Mar 2014 10:49:33 +0100 Hi Sue
I have just started round 6 sand my opinion has c one down from 13 to 3 – phew! We were getting worried as nothing else seemed to be working for me until pomalidomide was offered.

The side effects are very little now it’s. into my system – in fact, the Dec is far worse!

Hope your ‘pp. comes down SOON

Love Carol xxx x

]]> b0795432b2b0088e739fe2bda96d4e82 Kerry Dowell replied to the topic Salford Triathlon Sunday 18th August in the forum Off topic http://www.myeloma.org.uk/forums/topic/salford-triathlon-sunday-18th-august/#post-52248 Wed, 21 Aug 2013 15:34:35 +0100 TEST

]]> 80e7ff974a0ca5934a55140fb1521b11 Carol Bradley replied to the topic New in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new/page/6/#post-87584 Mon, 20 May 2013 23:41:36 +0100 Welcome Anne
Sorry to meet you this way way-it takes a while to sink in but I hope it encourages you to know that many of us have enjoyed some success in battling this stupid cancer.I myself was diagnosed in 2005 and although I'm not as active active and sporty as I was I'm still kicking!
This is a great site with lots of nice people who are…[Read more]

]]> 526985675bdb6d4013cc19d84c29ce5c Carol Bradley replied to the topic SCT not worked -help in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-not-worked-help/page/2/#post-102552 Sat, 18 May 2013 14:10:28 +0100 Hi Christine
So sorry that things are rough but HOPE this helps. My act failed in Oct last year with a horrific 97% but they have finally got it down down with PAD.We have just been told that they are abandoning any further idea of a second act as I don't Ha ve enough stem cells so as am starting a low "consolidation" course of velcade on…[Read more]

]]> 12c28ec10fd4650e856fd4bd17fc42c1 Carol Bradley replied to the topic yet another relapse in the forum General http://www.myeloma.org.uk/forums/topic/yet-another-relapse#post-94948 Wed, 17 Apr 2013 19:05:51 +0100 Hi Terry
I have only just seen your post because I have been "out of things" for a while – chemo etc. getting ready for the second transplant having had the same rotten news as yourself. I don't blame you for being bitter but at least they found it early – mine seems to have becomr non secreter (not sure if that's exactly right)so the urine…[Read more]

]]> f78fce694c79c435bad619d18f2a1c9b Carol Bradley replied to the topic Second Stem Cell Transplant in the forum Treatment http://www.myeloma.org.uk/forums/topic/second-stem-cell-transplant#post-101026 Wed, 20 Mar 2013 15:53:59 +0000 Mari
As I explained to Nettie I am about to undergo my second transplant and your experiences and knowledge have encouraged me greatly to go ahead with a bit more confidence.
Many thanks and good luck to you both.
Carol xxx

]]> ab6caadd3ef60225d2f69e15fc7f848c Carol Bradley replied to the topic Second Stem Cell Transplant in the forum Treatment http://www.myeloma.org.uk/forums/topic/second-stem-cell-transplant#post-101024 Wed, 20 Mar 2013 15:51:51 +0000 Hi Nettie
I too am having to make the decision to go ahead with a second transplant – I was in remission for about 18months followin the first. Having read your very helpful personal experience I feel so much more confident in going ahead with my second procedure. I struggled greatly during and recovering from my first transplant which is…[Read more]

]]> b065af00146bf41fcec94e7e51e12a2e MichelleMcCartney replied to the topic Three little words...... in the forum General http://www.myeloma.org.uk/forums/topic/three-little-words/page/2/#post-94464 Thu, 21 Feb 2013 19:04:47 +0000 Congrats! That's wonderful. 😀

]]> d5d1789d6981545240dfe12036efbf72 MichelleMcCartney started the topic Article and stuff!!. in the forum General http://www.myeloma.org.uk/forums/topic/article-and-stuff Mon, 18 Feb 2013 21:29:38 +0000 Last week I wrote to Take A Break magazine about Phil. I spoke with them Friday and they contacted me this morning to confirm that they want to publish his story! I am chuffed to bits. Will update when I know when it will be in the shops. Also I have developed a Facebook page (Burton Myeloma Support Group) and Twitter page (@burtonmyelomasg). Hope…[Read more]

]]> d5734b95a402ec53c0dc3cba55bcf851 MichelleMcCartney replied to the topic Question.....maintenance treatment in the forum General http://www.myeloma.org.uk/forums/topic/questionmaintenance-treatment#post-94404 Sat, 16 Feb 2013 18:14:30 +0000 Hiya,
I would also ask about Thalidamide to see if it's an option..
All the best of luck..
Chelle xx

]]> dee0cbfd5c3ddc8c01266deadbb60f2c MichelleMcCartney started the topic Burton Supprt Group. in the forum General http://www.myeloma.org.uk/forums/topic/burton-supprt-group Sat, 16 Feb 2013 11:08:48 +0000 Hello everyone…
Just wanted to wish everyone a happy & healthy 2013.. I hope everyone is feeling well and has high spirits…
The next Burton Myeloma Support Group Meeting is 12 April @ 14:00.
If you or anyone wants information please feel free to contact me through here, 07872 562536 or burtonmyelomasg@yahoo.co.uk
All the best,
Chelle

]]> 17513e2286871a5ff98d014b5a23964c KerryDowell replied to the topic Just got a diagnosis in the forum Newcomers http://www.myeloma.org.uk/forums/topic/just-got-a-diagnosis#post-87077 Tue, 08 Jan 2013 18:50:00 +0000 Hiya there..

I am really sorry to hear of your diagnosis but please don't lose faith. My name is Kerry, it's my partner Melv that has Myeloma. He is 39 years old.

Myeloma seems so complicated doesn't it? So hard to get your head around but there is so many treatment options as I'm sure that you have found today.

How did your appointment…[Read more]

]]> b4f81f93b75c15476ea1fe60fda210d6 Carol Bradley replied to the topic Oh - Oh it's back in the forum General http://www.myeloma.org.uk/forums/topic/oh-oh-its-back/page/2/#post-93837 Sun, 02 Dec 2012 00:59:52 +0000 Thank you so much for your lovely message – I'm sure you know just what a real difference it makes.
You are right – I will be out on Harry again in a few months and we will have forgotten all about chemo.
love Carol xxxxx

]]> 3bb7d8ad0976b048187a90778e984a5e MichelleMcCartney replied to the topic Queen's Hospital Burton Suport Group in the forum General http://www.myeloma.org.uk/forums/topic/queens-hospital-burton-suport-group#post-91164 Thu, 29 Nov 2012 14:46:20 +0000 Hi Mike,
So wonderful to hear from you! You are more than welcome to come. The next meeting is 7 Dec @ 14:00. It's on thev1st floor Jubilee Wing Seminar Room. It's right behind reception. Where are you possibly aving you SCT. Hope to see you on the 7th, if you need anything before please don't hesitate to contact me: burtonmyelomasg@ahoo.co.uk or…[Read more]

]]> a58c0dad19cf33ceba59cc9c2e5f1c41 Carol Bradley replied to the topic Oh - Oh it's back in the forum General http://www.myeloma.org.uk/forums/topic/oh-oh-its-back#post-93823 Thu, 29 Nov 2012 01:29:07 +0000 Hi Eve

As you may have read I am feeling better now after starting treatment and meeting my Macmillan nurse – as our pals say on here "onwards and upwards" but I am sure I wouldn't have felt as relaxed and positive as this withoutall the support received from the kind friends on here.
love and a big thank you hug.
keep well love Carol…

]]> 87e05844a68d2ba0ec16435ecaeee041 Carol Bradley replied to the topic Oh - Oh it's back in the forum General http://www.myeloma.org.uk/forums/topic/oh-oh-its-back/page/2/#post-93830 Thu, 29 Nov 2012 01:22:23 +0000 Thanks Megan
I'm feeling much more positive now we have got started with things. Also I have met my Macmillan nurse for first time and feel as if I can ring someone with queries without bothering doctors with little things.
love and a hug
Carol xxxxx
😀

]]> a6d0304d362ce10e4600ae0164ee5fdf Carol Bradley replied to the topic Oh - Oh it's back in the forum General http://www.myeloma.org.uk/forums/topic/oh-oh-its-back/page/2/#post-93828 Thu, 29 Nov 2012 01:18:01 +0000 🙂 Thank you for your lovely message – just knowing people take the time to write when they are struggling with this themselves makes such a difference
Love Carol xxxxx

]]> f8c0d4d895a18773140f58f2bca1b608 Carol Bradley replied to the topic Oh - Oh it's back in the forum General http://www.myeloma.org.uk/forums/topic/oh-oh-its-back/page/2/#post-93833 Thu, 29 Nov 2012 01:14:28 +0000 Hi Liz
Thanks for that – it realy does help to know that people understand as,it's not always easy to be 100% honest with family and close friends.
Treatment going well so that's a big relief although I don't knoe if it's working yet!
love Carol xxx
😀

]]> 5ecd54c4550967bf7567b8c0e4b69401 Carol Bradley replied to the topic Oh - Oh it's back in the forum General http://www.myeloma.org.uk/forums/topic/oh-oh-its-back/page/2/#post-93825 Thu, 29 Nov 2012 01:04:55 +0000 David,
Just to let you know that after 2 weeks of treatment it's not as bad as I thought it would be even though it's early days. Am feeling much more positive after so many kind messages – they really have given me a lift!
Best wishes
love Carol xxxxx

]]> e6fe11ca1077b82257051ed3ee5c0597 Carol Bradley replied to the topic Oh - Oh it's back in the forum General http://www.myeloma.org.uk/forums/topic/oh-oh-its-back#post-93817 Thu, 29 Nov 2012 01:00:18 +0000 Thanks Joe
Lets hope you continue and have a good long run!!!
Thank you so much for the kind thoughts it has really helped me accept everything and just get on with it – there are such lovely people on this site.
Best wishes,
love Carol xxxx

]]> 8ae2c3ab35df0cd1cfb06aa4ad5f1d7c Carol Bradley replied to the topic Oh - Oh it's back in the forum General http://www.myeloma.org.uk/forums/topic/oh-oh-its-back#post-93814 Thu, 29 Nov 2012 00:56:16 +0000 Thanks Charlotte
Have cheered up a lot now after all the smashind messages.In fact, I feel a bit of a wimp when I think I have at least had a year off aggressive treatment when so many people are so ill and still waiting for doners etc.
Anyway treatment going better than thought it wouldbe sofarso good!

Love and many thanks for the"cheer"…[Read more]

]]> 337c1fab95ac2a7bff51bfec42a6dfb8 Carol Bradley replied to the topic Oh - Oh it's back in the forum General http://www.myeloma.org.uk/forums/topic/oh-oh-its-back#post-93824 Thu, 15 Nov 2012 19:50:45 +0000 Hi to you all
Thank you so much for your very kind thoughts – much appreciated. I knew it was back really by the fatigue and pain levels but we always hope for the best don't we?
Had Hickman in yesterday and will start chemo (PAD) on Monday so may not be on 'air' for a little while!

Best wishes to you all and fingers crossed that we don't…[Read more]

]]> 88a3b86f35c4d5e9e013d40ade9ff549 Carol Bradley replied to the topic Oh - Oh it's back in the forum General http://www.myeloma.org.uk/forums/topic/oh-oh-its-back#post-93819 Wed, 14 Nov 2012 02:39:16 +0000 Hi & Thanks so much Helen

As you can probably tell by the time of my reply I am on DEX and wide awake and twitchy!
Keep well you too.
Love Carol xxxxxx

]]> 9f44c007971d7cf7c544b9a34eb5d7c9 Carol Bradley replied to the topic Oh - Oh it's back in the forum General http://www.myeloma.org.uk/forums/topic/oh-oh-its-back#post-93816 Tue, 13 Nov 2012 21:26:51 +0000 Hi Joe
Many thanks and lets keep thinking that yours is going to go on for years to come so relax and enjoy!!
I have heard from a lady in America who was diagnosed thirteen years ago and is still going strong, so it does happen.
Take good care of yourself
Love Carol xxxxxx

]]> 917378044ca833578fb12f6598419a48 Carol Bradley replied to the topic Oh - Oh it's back in the forum General http://www.myeloma.org.uk/forums/topic/oh-oh-its-back#post-93812 Tue, 13 Nov 2012 21:24:46 +0000 Hi Keith
Many thanks for the prompt reply – especially when you are going through the mill at present and over past years.
The general information is great but I suppose just hearing from someone in a similar position helps me to treat the situation in a calmer fashion too!
I'm very reticent about another transplant as mine didn't go too well…[Read more]

]]> 51ad32c6c952687c83e7010d8ad55265 Carol Bradley started the topic Oh - Oh it's back. in the forum General http://www.myeloma.org.uk/forums/topic/oh-oh-its-back Tue, 13 Nov 2012 14:12:31 +0000 Hi everyone,

Sorry to be a bit glum but I am trying to be really positive at home but know I can be honest on here – after being in remission for a while my specialist tells me it is back and is putting me on PAD. I had three units of blood today. will have platelet treament and Hickman line in on Wednesday and hope to feel much stronger by…[Read more]

]]> 435b4f7e79965dd23d8ca2ff9d0a147f KerryDowell replied to the topic hospital again..... in the forum Under 50s http://www.myeloma.org.uk/forums/topic/hospital-again1352321101#post-107048 Fri, 09 Nov 2012 20:18:58 +0000 Hi guys – Thank you so much for your messages. It really is overwhelming receiving encouraging messages from you all. Thank you – I am so glad I have joined this site.

I hope this finds you all well – lots of love and best wishes.

Take care Love Kerry xxx

]]> 9b7494e2e039c5b1da0e454a011fdbc9 KerryDowell replied to the topic Hospital again...... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hospital-again#post-86893 Fri, 09 Nov 2012 20:10:26 +0000 Hiya Wink… Thank you for your message.

You are right, it is the damage that MM causes that is the really problem! I always say that if Melv just had Cancer to accept without the disabilities that it has caused, he approach it with determination and fight with everything he had. However, as he is slowly losing 'who he is' due to no longer…[Read more]

]]> 4fec91fdb35d5f2a9c358ff24b1817a3 KerryDowell replied to the topic Hospital again...... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hospital-again#post-86891 Fri, 09 Nov 2012 20:03:25 +0000 Hi Megan – Thank you for your message.

It sounds like you have both have it tough too. I'm sorry.

I understand what you are saying about the beg of the MM journey and we are so happy and positive regarding the PP levels, it's fantastic and a step in the right direction regarding the Myeloma. However, the damage that the Myeloma has caused…[Read more]

]]> 01c589354f6c2d6f0bdf8c724706f190 KerryDowell started the topic hospital again...... in the forum Under 50s http://www.myeloma.org.uk/forums/topic/hospital-again1352321101 Wed, 07 Nov 2012 20:45:01 +0000 Hiya guys….

Unfortunately Melvin has been in hospital again. We were so happy after finding out his IgG levels had come down a little last Tuesday..from pp 55 to 37! Then on Sunday night he became in excruciating pain again with his lower back and the left side of his lower body (it was the right before)…so 999 again and in he went. I tried…[Read more]

]]> 5765032b95240aa98462636618d67013 KerryDowell started the topic Hospital again....... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hospital-again Wed, 07 Nov 2012 20:44:00 +0000 Hiya guys….

Unfortunately Melvin has been in hospital again. We were so happy after finding out his IgG levels had come down a little last Tuesday..from pp 55 to 37! Then on Sunday night he became in excruciating pain again with his lower back and the left side of his lower body (it was the right before)…so 999 again and in he went. I tried…[Read more]

]]> 1dfcfa42dcf5c2f995c28e0bde6f020e KerryDowell replied to the topic Waiting in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/waiting#post-107899 Sat, 03 Nov 2012 19:32:36 +0000 Oh Sue… :-(. I know that I haven't spoken to you before, I'm quite new. It's also my partner who has MM.

I often wonder *how* you do cope and accept that news??!! If I can be honest, I don't have any advise to give – other than love each other and make this time more special than you have any other.

I am so very sorry Sue…

Thinking…[Read more]

]]> d2f7b1ea76818c85ed2ccfe15dbd41a1 KerryDowell replied to the topic Staging??? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/staging#post-86860 Fri, 26 Oct 2012 21:48:22 +0100 Thank you Mavis – I tend to agree I think. If you have MM..you have it regardless!

I hope this finds you well – take care xxx

]]> cc2901b80bd78cf2aa01cc53140a0987 KerryDowell replied to the topic Staging??? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/staging#post-86861 Fri, 26 Oct 2012 21:47:06 +0100 Hi Eve

Thank you for getting back to me with that. I have read lots of literature and have sort of worked it out myself ( i think). I understand the process of MM and what it all entails – I'm a bit of a researcher and send myself crazy looking up this and that! I also ask for copies of the information and always take my note book and pen and…[Read more]

]]> df815b55c5d00e2e4aed323bab71227f KerryDowell started the topic Staging???. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/staging Wed, 24 Oct 2012 23:20:45 +0100 Hiya

I was just sitting here reading some posts and I just thought I would reach out and ask about staging. We haven't been told what stage Melvin is with the Myeloma. When I asked at the last consultation, I was told that due to Myeloma being an incurable type of Cancer, they don't stage it. basically, if you have Myeloma, you have Myeloma…[Read more]

]]> a5f551773d1ecb808e26ec52db276700 KerryDowell replied to the topic SMM has become Myeloma - immediate treatment in the forum Newcomers http://www.myeloma.org.uk/forums/topic/smm-has-become-myeloma-immediate-treatment#post-86812 Wed, 24 Oct 2012 23:08:21 +0100 Hi Peter…

You explained just how Melvin is. He said if it wasn't for the inability to work or resume normal activities due to the spinal cord compression, he would be able to live quite a 'normal' life while on the Dex. However – he suffers such a come down when he stops…like you, he feels so tired, almost lifeless. Only waking to eat most…[Read more]

]]> 80fd4c779558728dab0f17167ac07b05 KerryDowell replied to the topic Recently diagnosed in the forum Newcomers http://www.myeloma.org.uk/forums/topic/recently-diagnosed1349773412#post-86737 Wed, 24 Oct 2012 22:21:15 +0100 Hi Mike

I'm sorry that you are going through a tough time at the moment. It's my partner who is 39 who has Myeloma, and is also on the MXI trial, RCD. He is at the end of the 2nd cycle at the moment. I noticed that you go to the QE hospital in Birmingham. We live in Birmingham and Melvin will be having his SCT at the QE. What a fantastic…[Read more]

]]> 4093699fcc3c6d1176f414143ca12486 KerryDowell replied to the topic Any advise about organizing a fundraising event.... in the forum General http://www.myeloma.org.uk/forums/topic/any-advise-about-organizing-a-fundraising-event#post-93719 Wed, 24 Oct 2012 22:12:57 +0100 Hi Tom

I have another person helping me with it all so I'm not totally on my own. Although I complain for being stressed at the moment, I feel like I need to inject all of my frustrations and emotions into something productive…if you understand what I'm saying. I may regret it, it may exhaust me but I feel I need something to focus on other…[Read more]

]]> 3565da2d3c3f50cde90787bfff4dff06 KerryDowell replied to the topic I feel so miserable! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/i-feel-so-miserable#post-86854 Wed, 24 Oct 2012 21:52:25 +0100 Thank you for your message Jo. People always say that I am coping really well and sometimes I agree. It may be the false smiles and 'I'm fine thanks' that I often reply when asked how I am. The way I see it – I have to cope, I have no choice. Who else is going to look after everything..Melvin and the children? Just sometimes, like now – I just…[Read more]

]]> aabcdb5c6ad29cfd43ab40b542f2a36e KerryDowell replied to the topic I feel so miserable! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/i-feel-so-miserable#post-86852 Wed, 24 Oct 2012 21:47:55 +0100 Thank you for your message Andy. It's very tough for all isn't it? Life completely changes when something like this sets up residence in your life and future. We have been referred to a Counselor individually and as a family, so our three children and myself and Melv can go. However..we haven't been yet as the Counselor cancelled the past two…[Read more]

]]> fc2c8e400eb313eb41dfbd039ec0562a KerryDowell replied to the topic So angry..fed up...angry..... in the forum Under 50s http://www.myeloma.org.uk/forums/topic/so-angryfed-upangry#post-107042 Wed, 24 Oct 2012 21:35:54 +0100 Thank you Helen..what a day I had yesterday! I do feel a little better today, although my moods are all over the place. Our twin boys, who are 11 years old have gone off for a little break with my mum. Suddenly my shoulders seemed to drop. We have a daughter who is 16 and she is still home with us but she is so independent. She is revising for her…[Read more]

]]> dd1e87838a0e67e6ed5b299d7d6f6cab KerryDowell replied to the topic SMM has become Myeloma - immediate treatment in the forum Newcomers http://www.myeloma.org.uk/forums/topic/smm-has-become-myeloma-immediate-treatment#post-86810 Wed, 24 Oct 2012 21:25:37 +0100 Hi Sarah Jane..

It is my partner Melvin who has MM. He is 39 years old and like you had SMM and then one day went to the hospital to find PP levels had increased and he started Myeloma XI and also is on RCD.

Melvin is at the end of cycle 2 and I think he has coped quite well so far. Unfortunately he isn't working due to his L3/L4 vertebrae…[Read more]

]]> 67de2a44ca59f82f345ddeb4a925d553 KerryDowell started the topic Any advise about organizing a fundraising event..... in the forum General http://www.myeloma.org.uk/forums/topic/any-advise-about-organizing-a-fundraising-event Wed, 24 Oct 2012 20:13:26 +0100 Hiya – I am in the process of organizing a Myeloma charity event in February 2013 and so far have got some very generous local dance acts and performers donating their time. I am wanting to do a raffle or an auction and want to approach local retail outlets and supermarkets for their support with donating prizes.

Has anyone else had any…[Read more]

]]> 48724a2a29386603ae17a0349e3a23d2 KerryDowell replied to the topic I feel so miserable! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/i-feel-so-miserable#post-86848 Tue, 23 Oct 2012 23:41:45 +0100 Hi Eve – thank you for your message. I agree with you – I am grieving and I think going through each stage slowly. Today and right now I feel angry…the denial has been with me since 2010 when Melvin was diagnosed.

I hope you are well – take care and thank you again. xxx

]]> 9a6d142b88814289f15c06bf8bbef67e KerryDowell replied to the topic I feel so miserable! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/i-feel-so-miserable#post-86849 Tue, 23 Oct 2012 23:38:58 +0100 Hi Vicky – thank you so much for your message. reading what you wrote was like I was telling the story…just how I feel. I have also thought about using all of this in a positive way, maybe volunteering somewhere or studying maybe?! Who knows.

I hope that Colin is OK at the moment – how are you doing?

Take care xxx

]]> bf3b8d48bc1a97264b5f0ec2bd00a196 KerryDowell replied to the topic I feel so miserable! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/i-feel-so-miserable#post-86850 Tue, 23 Oct 2012 23:34:54 +0100 Hiya Tom – thank you for your message. We have something else in common..In May 2007 I was diagnosed with Fibrosarcoma, cancer of the soft tissue and I finally went into remission in June 2010 ..as Melvin was diagnosed with MM in the December. I have to agree with you regarding the comparison of feelings – I felt more in control when I was the…[Read more]

]]> 8b0d033d6129ff96e36b9a9e1f3462e7 KerryDowell replied to the topic Still angry in the forum Carers http://www.myeloma.org.uk/forums/topic/still-angry#post-106508 Tue, 23 Oct 2012 20:12:49 +0100 Hi Lorna..

My partner Melvin was diagnosed with a Solitary Plasmacytoma on 15th December 2010, so our journey started nearly two years ago. Reflecting back to those days, I felt scared and unsure of what it all meant, I remember that. It was almost like I went through some kind of grieving stage??! Things have really progressed for Melvin now…[Read more]

]]> b1120dc68dca037abf8d79f3beb74f53 KerryDowell started the topic I feel so miserable!. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/i-feel-so-miserable Tue, 23 Oct 2012 19:59:46 +0100 Today I'm feeling suffocated! I'm frustrated and just feel like going upstairs packing a huge bag and running away so I can 'breathe'! My head is full off so much…'Has Melvin had his meds? How is his pain? What shall I cook for tea? Did I make the dentist appointment for Atlanta (our daughter)? How about the optitions for Dior (our son)? Has the…[Read more]

]]> e12f28df35d88a08e7ee80b0e6b6b841 KerryDowell replied to the topic I feel so angry, frustrated, fed up...blar blar blar..... in the forum Carers http://www.myeloma.org.uk/forums/topic/i-feel-so-angry-frustrated-fed-upblar-blar-blar#post-106511 Tue, 23 Oct 2012 19:23:09 +0100 Thank you for your message Jean. Guilt is a very powerful emotion isn't it? I think it can be a visitor in most situations. Unfortunately, I over think absolutely everything too and scrutinize myself..'have I done enough?' etc..

We have been referred to Counselling, although the last two appointments were cancelled due to the Counselor being…[Read more]

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