[OutdoorsPaulParticipant]

I just wanted to say thanks again for all your kind words. I have been looking regularly at this discussion forum and it warms my heart to know that Paul was thought of so highly by so many people. Thanks especially to Steve: you will be pleased to know that on the day Paul was admitted to hospital this last time we'd been out for a 5 mile walk across the moors. He was active to the end. And thanks too to you Dai – that made me smile. Paul never lost his patience, except when on Dex, and if I told him it was the Dex making him cross he would get even crosser!
Wishing you all hope and happy times,
Rachelxx

[OutdoorsPaulParticipant]

Thank you so much to everyone for your kind comments. It is warming to know that Paul was in touch with so many people and offered support to so many of you. That was Paul – always helpful and always on the look out for who needed rescuing. He was 'Our hero' to me and Chloe, the foster child we look after every few weeks.
With love to all of you. Rachelxxx

[OutdoorsPaulParticipant]

Sarah
Great news,its time to let your hair down abit;-)
cheers Paul

[OutdoorsPaulParticipant]

Hello Gail
I am so sorry to hear of Howards passing,your not alone we are all here for you…If you need to talk just log on and tell us,someone will respond!
You look after yourself
xxxxPaul

[OutdoorsPaulParticipant]

Hi Gill
So sorry to hear about Stephens passing,if you want to talk we are all here for you.
Big hug PaulXX

[OutdoorsPaulParticipant]

Hi Mavis
I have had similar "experiences" when in hospital (its the food and less mobility),when discharged I tend to eat prunes in my cereal with some all bran,fresh coffee in a morning,lots of fresh green vegetables and have tried the senna capsules.Always works after a few days.
I agree with Rose about the pain killers check with the medics first-they might even prescribe something to help you go.
take care paul:-)

[OutdoorsPaulParticipant]

Dai
A wonderful poem and so soothing to the soul,thanks for sharing it with us all.
cheers Paul

[OutdoorsPaulParticipant]

David
What great news!! i am so glad that treatment is lined up for you as well.Thats made my day:-)
cheers Paul

[OutdoorsPaulParticipant]

Hi Tina
Good to hear its all underway,keep us all posted.
cheers Paul

[OutdoorsPaulParticipant]

Hi jacqui
I to have Lightchain Myeloma and have been told a similar things to you,I to would go for the clinical trial.I am due for a "allo-graph" in December and also been offered a clinical trial for that.
take care Paul

[OutdoorsPaulParticipant]

Hi Wendy
Happy 1st Anniversary Immune system! enjoy the sunshine Wendy.
cheers paul

[OutdoorsPaulParticipant]

Hi Andy
Stick with it mate because it has taken me 3 different sorts of treatment in 12 months to get me to and through the SCT.They will get you to a point where you are ready for SCT.
Enjoy the lakes and maybe a Guinness or two?
cheers paul

[OutdoorsPaulParticipant]

Hi Eve & Slim
Fantastic news! I bet a large weight has been lifted from both your shoulders.I hope you both have a fantastic holiday:-) 🙂
cheers Paul

[OutdoorsPaulParticipant]

Hi Cathy
I had my SCT 30 days ago so still very fresh in mind.Your husband is in isolation(a single room) which is hard,nursing staff will be in checking but also keeping contact to a minimum.Try to see this as a good thing as it will help to keep infections brought in to a minimum in my opinion.My appetite took a noise dive after the transplant I was about 16 stone but lost nearly a stone in weight(could afford to lose it thoe! the steroids made me put on weight).The dietitian prescribed me some build up drinks to help in which they did.Its difficult to look forward to the food when you are feeling sickly and being sick.Hopefully your husband can pick away at food and maybe he might ask for something to be brought in to eat.Would agree with Michele to keep well hydrated. I was discharged at the 16 days mark as well,but I must stress its a individual thing and when the body's ready he WILL be discharged home.He will recover much better at home in his own bed and eating food he is used to.His bloods will be monitored after discharge at the clinic,mine are still up and down 30 days after the SCT.
take care Paul

[OutdoorsPaulParticipant]

Hi Gill
I had radiotherapy to neck/spine area when first diagnosed,this came up looking like bad sunburn.Nursing staff did fore worn me and gave me some cream for it.It went fairly quickly but has left me with a brownish patch on my throat area (looks like a permanent tan!).
take care paul

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