[OutdoorsPaulParticipant]

Hi David
Sorry to hear the recent news,you are such a strong person and have lots of character!;-) .Its time to deep deep again and Vasbyte my friend.
Paul

[OutdoorsPaulParticipant]

Hi Gill & Stephen
So sorry to hear about Stephens on going problems,just to say that I am sending lots of positive thoughts to the both of you.Take care with all the driving Gill.
love PaulX

[OutdoorsPaulParticipant]

Hi Chloe
My consultant began the process of looking for a match once we knew that this was the route i was to travel.I dont know how long it took really but it did not seem that long,sorry could not be more exact.
take care Paul

[OutdoorsPaulParticipant]

Hi Chloe
By meaning "mini SCT" and looking for a match I presume your dad is having what is called an Allo graph transplant.I am going forward for my allo graph within the next 6 months and an excellent match has been found for me.You should get an apt with the consultant heading the team to discuss the procedure and answer questions.My advice is to ask ask ask the more you know the better equipped you and your dad are.

you and your dad take care..Paul

[OutdoorsPaulParticipant]

Hi Mavis
Yes i read jets blog/post,she is truly an inspiration and provides insight into my next step.
cheers Paul

[OutdoorsPaulParticipant]

Hi Michele
I to am similar about the clothing I have used while being in hospital,even thoe its been through the wash its the associations they have.I am sure that it will wear off in time.Taken the dog out this morning with my wife Rachel and have now spent at least 3hrs snoozing!Where we live is quite rural so there is little public interaction should you choose,so good for keeping away unwanted germs.
cheers Paul (the hermit)

[OutdoorsPaulParticipant]

Hi all
Thanks for the kind words of support,well it happened yesterday as planned and the smell of sweet corn followed.
I am unsure if there is a second batch in cold storage at this moment in time ,they used 8 bags so I suspect I got it all back but I will ask.I am struggling with internet connection but will up date when I can:-D
cheers Paul

[OutdoorsPaulParticipant]

Hi Scott
Sorry to hear about the lightchain readings going up,but you are right we just need to carry on fighting and getting on with our life.Hope you had a great time in Spain and I will keep my fingers crossed for you.
cheers Paul

[OutdoorsPaulParticipant]

Hi Carol
Thanks for the lovely post,your horse looks huge! you must certainly have got some strength to ride him and the weather looks good to.
lots love Paulxx

[OutdoorsPaulParticipant]

Hi Carol / Helen
I am coming to the end of my first cycle of DT pace with no real side effects other than feeling tired late evening/early mornings and my hair is disappearing rather quickly.I am due back into hospital next Monday for 4 days chemo and Dex.We have booked a cottage in Alnmouth Northumberland in early July which will be nice and Rachels Graduation is in the same week at Manchester uni (she has worked so hard for this).Otherwise thinking positive thoughts and keeping my fingers crossed and just getting on with things.

Carol-I am in Halifax on the 9th July so looks like we on slightly different rota,hope you are keeping well and getting about.

lots of love Paul

[OutdoorsPaulParticipant]

Siobhan
Really sorry to hear about the passing of your mum,she was so helpful to me when I first came onto the site.
love Paul

[OutdoorsPaulParticipant]

Hi Roy
One word sums it up "inspirational!"
cheers Paul

[OutdoorsPaulParticipant]

Hello all
Took the dog out of a walk yesterday and today for 1hr and my legs are starting to feel better.Seem to have put on some Dex weight on again I feel like a budha.
Inst it amazing how the sun and wind on your face just makes things better:-)
cheers Paul

[OutdoorsPaulParticipant]

Hello All
Got out of Hospital late Friday night after 5 days in hooked up with 3 IV lines.Side effects wise just the usual Dex hiccups and feeling abit tired first thing in a morning.Taking things a little easy this week as 5 days on the ward have made my legs like jelly.So its fingers crossed ! Feeling positive again about meds and just getting back on with life.Hopefully going away this weekend…we will just follow the sun.
Thanks everyone for being so supportive when I felt abit low.
cheers Paul:-)

[OutdoorsPaulParticipant]

Hello all
Really appreciate the support!
Dai-Thanks for the article, I have found it very helpful and its injected some positive juices back into me.

Andy-Thanks for the insight on your stay in hospital,it does seem we are similar in our issues.
Going to wales this weekend and weather is good so looking forward before hospital on Monday.Fingers crossed this treatment does the job .
cheers Paul

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