PaulCreek

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Viewing 2 posts - 106 through 107 (of 107 total)
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  • #106870

    OutdoorsPaul
    Participant

    Hello Bridget,Elizabeth and charlie,
    First of all many thanks for the replies,once i signed onto the site my broadband went down so I could not respond.Its still 50-50 so hence tapping out a reply now.
    The advice about Dexatude I would agree with I have found my self a little spikey at times not like me as I am very liberal in fact quite horizontal some might say!
    I have a slight sore throat maybe side effects or dry bread?My wife and family,friends have all been helping out and the advice you guys are giving is dont be afraid to let some one help out I will take the advice and when tired and sit down.Work are being supportive at the moment which helps. I am a member of a mountain rescue team where i live the team are allowing my to carry on with a role with fundraising/practical support to the team ect.I have taken myself off the "call out list" as I suspect that's a little ambitious at that moment!I completely agree about being positive when you can because then darker moments do appear when you dont expect them.
    I have another question..I take revlamid at 5pm ish 2hrs later have a hot flush and durring the night my pillow is soaked so I presume this is a side effect? It does not happen durring the day.Any ideas?I will send scotty an e-mail for an invite to under 50s site.I hope this makes it onto the post board fingers crossed!!
    take care all and I will write soon
    cheers paul

    #106867

    OutdoorsPaul
    Participant

    Hi all
    Just been diagnosed with Myeloma 11 days ago and just out of hospital after tests and some radiotherapy.wow certainly a alot to take in!!The medical staff were fantastic and we are certainly lucky to have the NHS.I have started taking my first cycle of chemotherapy tablets the RCD route/Myeloma 11 trial.I am 39 and quite physically active hill walking,birdwatcher and enjoy camping with my wife.I have been reading some of the posts while waiting to sign up and have taken alot of strength from what I have read.One of the points i will take note of is "listen to my body".I do feel a little lethargic/tired legs if over done something.My appetite at the moment is like race horse! I can eat normally but "by gum!!"
    Hope to chat along the way and make new friends, I am sure I will have lots of questions.
    cheers Paul

Viewing 2 posts - 106 through 107 (of 107 total)