[PamHParticipant]

Hi Christin

I stumbled upon this site when my dad was in the early stages of diagosis and I was lost. Your post caught my eye, mainly because your dad is so young. My dad was 82 and your situation really put my own into perspective. My dad was too frail even for the bone marrow test because he had recently had a stroke and was fading fast and yet I was so worried about whether or not he had cancer and what he had ahead of him. Turns out, he only had a couple of weeks. He died on Saturday.

I wanted to come on and wish you and your family the very best of luck with your journey. You seem like an amazingly strong person and I am sure your mum and dad appreciate all the support and love you give them. I hope for the very best outcome for you all.

Take care

Pam x

[PamHParticipant]

Just a brief note to let those of you who have been kind enough to offer me some words of support that Dad passed away at 12:40am on Saturday 6th. He was wonderful. Never cried out or seemed distressed. The home called us to let us know that he was a little unsettled and they'd given him something to help so we left to go straight up. We were there within 20 mins but got a call just as we turned into the car park to say he'd gone. So we sat with him for a while and said our goodbyes. He looked so serene and peaceful. He was ready to go in the end. Bless him. I'll miss him so much.

[PamHParticipant]

Thank you all for your supportive replies.

I am home from a break from sitting at dad's bedside in his care home. He was discharged last Monday after the blood and urine tests showed that he did indeed have levels of paraprotein but in "insignificant" quantities. However without the biopsy the doctor could not diagnose myeloma and we were advised to continue as before but to monitor for infection.

My sister came back from her holiday on Sunday and thank goodness she did. Dad's condition has deteriorated so quickly and he is not long for this world. He is comfortable, settled but not eating or drinking and as we're taking this break, his carers are taking it in turns to sit with him so they can call us when it is imminent, suggesting it could be tonight.

My time in your world was brief but very scary. I was amazed at some of your stories and my heart goes out to each and every one of you touched by this illness. And my admiration for dealing with it as well as you do. I wish you all well on your journeys.

Pam xx

[PamHParticipant]

Not sure if I've had good news or not. Dad's bone scan is back and was negative for any signs of myeloma.

His blood and urine tests aren't back yet but the nurse said they were with the Haematologist which suggests there is something, and also that they were testing because something had already shown up in the urine. He's eating and drinking but looks terrible. Nurse said she thought he was doing ok and to try not to worry.

Thank you all for your support, it is appreciated especially since you all have so much to deal with as it is.

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