A day at a time is the best way during recovery from the transplant but then one day you will suddenly realise how much better everything is 🙂

Megan

Hello Les,

I am glad to hear your partner is recovering well from his SCT and blood and platelet transfusions are completely normal, my husband Phil had quite a few transfusions while he was in hospital for his SCT and a couple after he was sent home.

You don’t say what kind of pain your partner is experiencing? Everyone has a different journey…[Read more]

Hi Harmony,

I am also, like Jean, a supporter, it is my husband Phil who has Myeloma. I also found counselling very useful, I initially went when Phil finished his first line of treatment and just before his stem cell transplant. I had another five sessions this year as I was finding it hard to deal with everything even though Phil was off…[Read more]

Thanks Peter, Phil was very interested to read this as was I, we will look into it further.

Megan

Thanks Stuart, it is good to know the new spam filter is working! If it happens should we let you know or do you check the spam filter to find anything that isn’t spam and then post it for us?

Megan

Hi Stuart,

I posted a reply to PeteSilver on my blackberry this morning and although it was very, very slow it worked fine but I have just tried to post a response to Greg on the Info Please! thread using my iPad in the Treatment forum and it does not appear but when I try and post it again I am told there is a duplication error and my post will…[Read more]

Hello Greg,

Richard is right, the timescale is different for everyone depending on where they are being treated, when beds are available, what the protocol is at each hospital, etc, etc. The consultant will be able to tell you more when you see them. My husband Phil finished his first line treatment towards the end of October 2012, he had his…[Read more]

Hi Pete,

Is the Hyperbaric Oxygen something you do on the NHS or is it available privately in your area? Phil and I saw a show about an athlete who used the chamber to help recover from injury and the athlete said something about it helps to produce stem cells, is that the idea behind it for you? I know Phil would be very interested in any…[Read more]

Hi Stuart,

Thank you for trying to fix it for us, it seems better on my iPad now – quicker, the scrolling is not as jerky and no Internal Server errors.

Megan

Hi Chris,

Glad to hear from you, Phil had his SCT shortly after you in December and Thursday this week was the first day almost pill free for Phil as he was finally able to stop taking the acyclovir, the only pill left is adcal once a day and then Zometa once a month. Phil will have his first childhood vaccination on December 23rd.

Megan

Dear San,

I am sorry your Mum is having a rough time but I am glad her pain is being managed. It must be frustrating for you to not be able to visit but take care of yourself so you are better soon and able to go and see her.

I am thinking of you, your Mum and your family.

Megan

Hello Stuart and Andy,

You are not alone Andy :-). On the iPad the forum has slowed for me as well and I often get an Internal Server error when I try and read a post. I have also found that it is now not really possible to view or post things using my blackberry unless I am very patient, the old forum worked fine on my phone but I thought maybe…[Read more]

Hi Carol,

We can’t quite remember when Phil had these tests done but I think they were more to do with the SCT than with the harvesting. I think that you harvest the cells after your treatment has finished and then even if you do not go on to have the SCT immediately the cells are ready for when you need them. I am sure your consultant will let…[Read more]

Hi Tom,

Phil and I were both sad to hear your news but we know you will face this part of your journey with your can do attitude that has so inspired both of us since we joined this forum.

Phil had Velcade with dex and doxorubicin as his first line treatment and had very few side effects and responded well to the treatment. Neuropathy, as has…[Read more]

Hi Andy,

I hope the eventful holiday in Belgium was full of good events?

Good luck with cycle 22 and fingers crossed your PPs behave themselves.

Megan

Thanks Stuart, I do find them helpful, especially my own – so Phil and I can keep track of what has happened since his diagnosis 🙂

Megan

Hi Stuart,

The new forum looks very nice. I was wondering if the blurbs we wrote about ourselves could still be found somewhere? On the old forum if you clicked on the picture (avatar) that people had you could see the info they had provided about themselves but I can’t seem to find anything similar on this new forum.

I often found this…[Read more]

Hi David,

That is wonderful news especially as you haven’t noticed any side effects from the Rev.

Will you be doing a set number of cycles?

Megan

Hello Pauline and Marc,

I am so sorry you have had to join this forum but it is a wonderful place to ask questions and get support, everyone is very helpful and friendly.

My husband Phil was diagnosed with MM a year ago at the age of 43 and it was a shock. He started feeling unwell with back and rib pain in November 2011 and it took six…[Read more]

Thanks for this Alex,

I have printed this off as Phil would like to try it to see if it helps. Phil's back continues to improve although some days are better than others. If he can avoid having the kyphoplasty he would like to so hopefully these exercises will help him to continue to strengthen his back.

Megan