Myeloma Forum | davidmarriott | Activity https://forum.myeloma.org.uk/members/Perkymite/activity/ Activity feed for davidmarriott. Mon, 06 Apr 2026 05:51:47 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 18bb795b550ca17b239b07bd643d9bb6 davidmarriott replied to the topic High Myeloma Incidence in the forum Off topic http://www.myeloma.org.uk/forums/topic/high-myeloma-incidence/page/4/#post-118658 Tue, 07 Oct 2014 08:35:48 +0100 I do not think anybody will, it is not a “big” cancer and the research required would, I suspect, take up a lot of cash.

Kindest regards -Vasbyt

David

]]> c0a99004243cae0dfee0998a96e03da5 davidmarriott replied to the topic Three Years! in the forum General http://www.myeloma.org.uk/forums/topic/three-years/#post-118645 Mon, 06 Oct 2014 18:46:52 +0100 Well done young man (I love using that phrase he he) With your attitude I can see another three years stretching out before you.

Keep going buddy

kindest regards – vasbyte

David

]]> 717ff1f6c21334ef3e741575e7535d52 davidmarriott replied to the topic Help needed! in the forum General http://www.myeloma.org.uk/forums/topic/help-needed-2/#post-118253 Sun, 21 Sep 2014 08:05:18 +0100 Signed number 3076.

]]> 6d3e27c97a31506cbdee1583b2685fef davidmarriott replied to the topic Greece? Again! Oh and cycle ten in the forum General http://www.myeloma.org.uk/forums/topic/greece-again-oh-and-cycle-ten/#post-118246 Sat, 20 Sep 2014 03:00:05 +0100 The garden has taken a hit this year Helen. I have reduced the borders and lawned most of it in. We just have three medium size planting ares two of which I have filled with perennials (I love penstemmons). My lovely hedge has gone, replaced by a very smart solid wood and lattice work fence. To be honest I am preparing things for Mo.

That…[Read more]

]]> b6f3ae364b08089a5898b688ffc9a6e0 davidmarriott replied to the topic TEST in the forum Under 50s http://www.myeloma.org.uk/forums/topic/test/#post-118242 Fri, 19 Sep 2014 13:54:50 +0100 ???????????????????????????????////

]]> a8234f22cc4357db8d3915a98b569b49 davidmarriott replied to the topic Constipation in the forum Side-effects http://www.myeloma.org.uk/forums/topic/constipation-2/#post-118241 Fri, 19 Sep 2014 13:53:27 +0100 I always use Tesco pitted prunes and Laxido I have 5 pitted prunes with my cerial and take the Laxido mid day well clear of any medicine I am taking.

kindest regards – vasbyte

David

]]> 9e75c90634d5168d68f482950d918f8c davidmarriott replied to the topic Greece? Again! Oh and cycle ten in the forum General http://www.myeloma.org.uk/forums/topic/greece-again-oh-and-cycle-ten/#post-118220 Fri, 19 Sep 2014 07:53:48 +0100 What a lovely place to get stuck.

I do not want to “count chickens” etc.. but it looks like my op yesterday was a success. Both kidneys are now draining well and the blood is starting to clear from both,which the Nurse tells me is a good sign this early after the op.

What makes a forum good, in my mind, is light harted banter that lifts the…[Read more]

]]> 51f1975ac8c922b489d9009bd94cf1de davidmarriott replied to the topic Greece? Again! Oh and cycle ten in the forum General http://www.myeloma.org.uk/forums/topic/greece-again-oh-and-cycle-ten/#post-118215 Thu, 18 Sep 2014 21:17:53 +0100 You two guys are getting up my nose!

I am sitting here, in my hospital bed, having just had my Kidney’s drained and ” stents” put in too keep my pee ways open and you two are off enjoying yourselves – HAVE YOU NO HEART. Wasn’t just one day lousy with bad food, warm larger and ice sheets blowing in from the north. :-))))

Well done kindest…[Read more]

]]> 8cfbc048cbb1b89c63a6caf2f2ee0d08 davidmarriott replied to the topic Collapsed vertebrae in the forum Related conditions http://www.myeloma.org.uk/forums/topic/collapsed-vertebrae/#post-118135 Tue, 16 Sep 2014 12:37:33 +0100 Hi Chuck, Sorry to hear you are going through it. I lost my neck vertebrae in 2009 to this decease. I was pulled of Velcade because of bad side affects namely PN. Went onto Revlimid and never looked back.

kindest regards – vasbyte

David

]]> 3fcb079a3f8ace62f3aa1ed527a847b7 davidmarriott replied to the topic Calcium levels in the forum General http://www.myeloma.org.uk/forums/topic/calcium-levels/#post-118118 Mon, 15 Sep 2014 15:15:03 +0100 Hi Ian, Been off line for awhile but today I picked up yours post. When I started out on the Myelomer trail July 2009 I was told to drink plenty of waster – 6 Pints a day were were recommended. I have been trying to do that every since. I do not always hit my “quouter” for one reason or another but I would say my minimum is 3 pints.

I wold…[Read more]

]]> 7c0d4ca8960a468eff6b799f8cd2844d davidmarriott replied to the topic SLIM in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/slim-my-soul/page/2/#post-118024 Mon, 08 Sep 2014 19:41:53 +0100 Hi Eve, I was gutted to read the posts regarding Slim’s demise. Through you we all got to know him well. I will think of you tomorrow when I go to my Son’s grave.

Please, please do not leave us.

My love and best wishes go out to you – Vasbyte

David

]]> 7ee1f7cb083eeb5bb68e5258385027cc davidmarriott replied to the topic Rev has stopped working.... in the forum Treatment http://www.myeloma.org.uk/forums/topic/rev-has-stopped-working/#post-118020 Mon, 08 Sep 2014 10:03:57 +0100 Hi Peter, I picked up “Spongy Foot” as I called it whilst going through my SCT in 2009/10. It then started to get a lot worse when I went onto Velcade. I only had three doses of Velcade before PN started to get worse. I still have a numbness in my right side calf muscle but it has not go any worse so I ignore it.

I, like most MM sufferers I…[Read more]

]]> 1a2712420ce53f5b6e364196b20c3c16 davidmarriott replied to the topic Rev has stopped working.... in the forum Treatment http://www.myeloma.org.uk/forums/topic/rev-has-stopped-working/#post-117991 Sat, 06 Sep 2014 09:37:27 +0100 Sorry to hear Rev has stopped for you I hope you have better luck on the next treatment whatever it is.

I only started on Rev in Nov 2013 and it has taken me into complete remission at the moment. They have pulled me off of it , 2 months ago now, whilst they try to sort out Prostate Cancer and a Skin cancer. My blood test Friday last was still…[Read more]

]]> 852965acf9dbe3a37c5c0a6527cd2f39 davidmarriott replied to the topic Another new member in the forum Newcomers http://www.myeloma.org.uk/forums/topic/another-new-member-2/#post-117689 Mon, 25 Aug 2014 09:49:17 +0100 Hi Stu, I like your attitude – just the right one to have when dealing with MM. I have had Myeloma since 2009, when I was 67, and it is only this year that I actually got into full remission so keep your positive attitude because you will find it a bumpy old ride with lots of ups and downs.

MM affects everybody differently but we have…[Read more]

]]> 883e4c53b43d8bf9edd02e004d8aa738 davidmarriott replied to the topic End stage in the forum Newcomers http://www.myeloma.org.uk/forums/topic/end-stage-2/#post-117667 Sun, 24 Aug 2014 09:45:41 +0100 Hi Eve, I loved your post. Not unexpected from such a strong person as yourself.

My family know of my wishes when I die. I am at the moment discussing my funeral service with my local vicar. I want to make it an opportunity to ask people to help each other. My granddaughter will read the parable of the Good Samaritan for example.

I will…[Read more]

]]> 5a65255dd332365fc32e7dfe6f74f489 davidmarriott replied to the topic Morphine Side Effect in the forum Side-effects http://www.myeloma.org.uk/forums/topic/morphine-side-effect/#post-117652 Sat, 23 Aug 2014 09:41:48 +0100 Hi Jeffery,

I was on ZoMorth for some time when I had a great deal of bone pain some time back. Zomorth is very addictive I found, and when I cam off it I went through “Cold Turkey” withdrawal. I had all you had plus I felt like death warmed up. I would lay in bed sweating madly but feel very very cold. I had ants under my skin crawling…[Read more]

]]> f3d86fdefd8a06468f1aee00ab866837 davidmarriott replied to the topic Is somebody trying to kill me? in the forum Off topic http://www.myeloma.org.uk/forums/topic/is-somebody-trying-to-kill-me/#post-117633 Thu, 21 Aug 2014 08:18:27 +0100 Some good news the Skin Cancer is only a mild form and they have taken some samples (ouch) and I now await a date to have them removed.

Kindest regards – vasbyte

David

]]> 1ec44423f07562dbf64bf5d18dd377ce davidmarriott replied to the topic Remission no 1 is over in the forum Treatment http://www.myeloma.org.uk/forums/topic/remission-no-1-is-over/#post-117609 Wed, 20 Aug 2014 01:16:42 +0100 Hi Anthony, I only did 3 months on Velcade by which time I was getting bad PN. I was taken of Velcade and put on Revlimid. I have never been in remission since I started down the MM path, after SCT I got down to 2.9 pp However after 3 months on Revlimid I hit “excellent Remission”, my consultants words not mine, with uncountable PPs i.e.…[Read more]

]]> 04444365728c608d73625264baf9f242 davidmarriott replied to the topic It's lonely, feel like we don't know in the forum General http://www.myeloma.org.uk/forums/topic/its-lonely-feel-like-we-dont-know/#post-117608 Wed, 20 Aug 2014 01:08:27 +0100 Hi John, It is very bewildering when you first start down the MM path. I started on the path of 5 years ago so do not give up. Carol has given some good advice and information. I was 66 when first diagnosed and had a transplant at 67. I have always kept my self fit and active and this counted a great deal in the decision to let me have a…[Read more]

]]> bbc7bb675bbaa3e97c3335ae936ca756 davidmarriott replied to the topic Taking a break in treatment, advice please in the forum Newcomers http://www.myeloma.org.uk/forums/topic/taking-a-break-in-treatment-advice-please/#post-117607 Wed, 20 Aug 2014 00:59:59 +0100 I am on my 10th cycle of Revlimid and have been taken off treatment for a month whilst I underwent a Prostate operation and had a couple of teeth out. I expect to go back on treatment at the end of Aug. In the grand scheme of things, I was informed, this should not make a lot of difference. I go in Friday to see my Consultant and it will be…[Read more]

]]> f93e7596b5cb0c26894b2686bdf2dbe1 davidmarriott replied to the topic Off to hospital today! in the forum Off topic http://www.myeloma.org.uk/forums/topic/off-to-hospital-today/#post-117583 Sun, 17 Aug 2014 02:38:53 +0100 Op was not a success I am afraid. However not a complete failure yet. They had to put the Catheter back in and in 3 weeks they will take it out again and I will “try to live without it” if I cannot it means a permanent Catheter for me!!!

kind regards – Vasbyte

David

]]> 5fa2acbb0eb29fbe331c7699df2d6a2b davidmarriott replied to the topic Is somebody trying to kill me? in the forum Off topic http://www.myeloma.org.uk/forums/topic/is-somebody-trying-to-kill-me/#post-117557 Wed, 13 Aug 2014 04:17:44 +0100 Thanks all for the kind posts. Yes, they are thinking of cutting out some more of my head. My appointment is later this month when they will decide what to do.

From January it has been a really troublesome year. July/August has been a real problem month of one thing after another. Biopsy on my head, Two teeth extracted, Operation to core out…[Read more]

]]> 501fd9d0bce235a2206847c40f501a63 davidmarriott replied to the topic Back on the roller coaster in the forum General http://www.myeloma.org.uk/forums/topic/back-on-the-roller-coaster/page/4/#post-117556 Wed, 13 Aug 2014 02:17:09 +0100 Not to well Andy I now have skin Cancer to add to my list of cancers! I have an appointment with them at the end of the month when they are gong to cut a slice out of my head!!!! Not going to be much left of me at this rate.

MY teeth extraction, on the 27th, proved a real tough one they could not get the top one out and had to cut it in 4 and…[Read more]

]]> 7b88455153a87a02c13bc619861485fd davidmarriott started the topic Off to hospital today! in the forum Off topic http://www.myeloma.org.uk/forums/topic/off-to-hospital-today/ Wed, 13 Aug 2014 01:48:05 +0100 I am off to hospital today to have my Prostate Operation. Easiest way to describe what they are going to do is that it is like “coring an apple” only they are doing it to my Prostate gland. Cannot say I am looking forward to the operation but if it gets rid of the cafeter and bag then I will be a happy bunny. However, I am told it only has a…[Read more]

]]> 88c59a9794484500a79431dd062fdd84 davidmarriott replied to the topic Cancer Drug Fund in the forum Off topic http://www.myeloma.org.uk/forums/topic/cancer-drug-fund/#post-117552 Wed, 13 Aug 2014 01:39:14 +0100 Yep signed.

David

]]> 00c408c1fc6c3d213c70d041dcc61634 davidmarriott replied to the topic Back on the roller coaster in the forum General http://www.myeloma.org.uk/forums/topic/back-on-the-roller-coaster/page/4/#post-117551 Wed, 13 Aug 2014 01:34:44 +0100 I did well on Rev and Dex going to “excellent” Remission withing a couple of months. I have been off it for nearly a month now whilst I await my Prostate Operation, which is today. I expect to go back on it at the end of the month, I think I see the consultant on the 22nd. The only problem I have with it is the cycle of Constipation and loose…[Read more]

]]> 7822e556824107df6d7723c2946c5f86 davidmarriott replied to the topic Bloods for 3 monthly clinic, what if???? in the forum General http://www.myeloma.org.uk/forums/topic/bloods-for-3-monthly-clinic-what-if/#post-117539 Tue, 12 Aug 2014 15:14:50 +0100 Best of Luck Karen I hope all is well.

Kind regards Vasbyte

David

]]> 5a154b955c9c7300ccca9ac302bdf303 davidmarriott replied to the topic Small things lead to big things! in the forum Off topic http://www.myeloma.org.uk/forums/topic/small-things-lead-to-big-things/#post-117510 Fri, 08 Aug 2014 13:48:19 +0100 I would not say they are “ignored”. however most of us have our own problems to solve and our own fund raising.

Well done for your work keep it up.

Kind regards – ~Vasbyte

David

]]> aff5fd24d2c8ff41172aeb9fb9ad4d4f davidmarriott replied to the topic Tom? in the forum Off topic http://www.myeloma.org.uk/forums/topic/tom/#post-117494 Fri, 08 Aug 2014 08:02:50 +0100 Glad you are still going well Tom. I had bad PN with Velcade. They just took me off it and I went straight onto Revlimide which I have found much better with minimum side affects. Plus it took me in to remission which I had not managed to achieve since I started in 2009.

Kindest regards – vasbyte

David

]]> d248f507353430e8e6fecf47c4172a19 davidmarriott started the topic Tom? in the forum Off topic http://www.myeloma.org.uk/forums/topic/tom/ Wed, 06 Aug 2014 13:09:59 +0100 I haven’t seen Tom on here recently is he still posting?

David

]]> 2b5d9a750f9f0d28ac5c37ce4e42bc30 davidmarriott replied to the topic Is somebody trying to kill me? in the forum Off topic http://www.myeloma.org.uk/forums/topic/is-somebody-trying-to-kill-me/#post-117443 Tue, 05 Aug 2014 14:16:09 +0100 You are absolutely right Eve.

Anyway, I have already met God, he was the RSM of the 1st Parachute Regiment, and he told me several times, when I was a young Sergeant, exactly what he was going to do with several bits of my body when he had finished with me. Said at 500 decibels 2 inches from my right ear, whilst I stood frozen to the spot So I…[Read more]

]]> aefbfa58ef7a7002370cf32bbacf9ffb davidmarriott replied to the topic Is somebody trying to kill me? in the forum Off topic http://www.myeloma.org.uk/forums/topic/is-somebody-trying-to-kill-me/#post-117418 Mon, 04 Aug 2014 22:03:07 +0100 You may be right there Richard: I repent, I repent. I repent!

We do not mention those days Don, although over 59 years ago my wife of 52 years reads this forum!!!! (p.s. yes they were great days shhh).

I repent, I repent. I repent

I have not heard that said Maureen. The Cancer is on my head and the first thing they asked was whether I was…[Read more]

]]> 2c0021783e7ee7068e3ff08b8012d789 davidmarriott started the topic Is somebody trying to kill me? in the forum Off topic http://www.myeloma.org.uk/forums/topic/is-somebody-trying-to-kill-me/ Mon, 04 Aug 2014 18:35:46 +0100 My wife thinks I am paranoid but I am certain somebody is trying to kill me.

Fist I have Myeloma next I find I have Prostate Cancer and blow me down if I do not find out today that I now have Skin Cancer!!!!!!

I am sure somebody is trying to kill me.

Kindest Regards – Vasbyte

David

]]> 700df5a4a13e7b254e7ab1987f1da10e davidmarriott replied to the topic Newcomer just diagnosed with multiple myeloma. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/newcomer-just-diagnosed-with-multiple-myeloma/#post-117397 Fri, 01 Aug 2014 20:23:13 +0100 Hi Bryn, At 37 you must have been shattered to hear the bad news. I am 71 and I was 66 when diagnosed, then 5 years ago this was considered an old mans decease, but I see more and more youngsters. I am not really up on the latest treatments now, having settled into a routine with the treatment I get and am happy with.

However the difference…[Read more]

]]> 615b3d436524feed85f6dd329b6158d5 davidmarriott replied to the topic Next treatment Revlimid in the forum Treatment http://www.myeloma.org.uk/forums/topic/next-treatment-revlimid/#post-117393 Fri, 01 Aug 2014 15:24:33 +0100 I seem to move between Constipation and very loose bowls that can explode at any moment. I won’t recount some of the problems I have had. I am off Chemo at the moment and my bowels have quickly gone back to normal.

When on Chemo I note bowl movements on my calendar and as soon as I see a gap I start taking Laxatives to help. Not a lot just…[Read more]

]]> 794f50eaca3d132b0ca38b508e1f0dcb davidmarriott replied to the topic Help needed! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/help-needed/#post-117392 Fri, 01 Aug 2014 15:12:57 +0100 Treatments have moved on since your Uncle Tom died. Dying will still be traumatic I know but I suspect your Dad will live a lot longer than you imagine at the moment.

I started out on this road in 2009, the prognosis then was “Sale by Date” Jul 2011, I am still here! And I have Prostate Cancer to go with the Myeloma. I went down the normal…[Read more]

]]> 78b5949abb1211aaba0f326c8d2e7a4e davidmarriott replied to the topic Short break from CDT - now on 5th cycle in the forum Treatment http://www.myeloma.org.uk/forums/topic/short-break-from-cdt-now-on-5th-cycle/#post-117336 Wed, 30 Jul 2014 19:38:10 +0100 It sounds as if you are going in the right direction Andrea. Most of the Chemo seems to give the sleepless nights etc…

Keep going it is all worth it in the end.

Kindest regards – vasbyte

David

]]> becf2740310d755273dbe4bdb0f0f3f3 davidmarriott replied to the topic Off Chemo for a month in the forum General http://www.myeloma.org.uk/forums/topic/off-chemo-for-a-month/#post-117308 Tue, 29 Jul 2014 23:27:30 +0100 Thanks Andy, I am not on a Dex night, although it would have been if I was still on Chemo, just cannot sleep at the moment. Everybody ask why they have stopped the chemo but I have no clear answer at the moment. It is certainly something to do with the operation on my Prostate Gland on the 13th August. I will ask the Consultant when I next…[Read more]

]]> c19ac1bf4dd53357c002ca54ab7268df davidmarriott replied to the topic PIP in the forum General http://www.myeloma.org.uk/forums/topic/pip/#post-117307 Tue, 29 Jul 2014 23:16:46 +0100 I did the same, the Macmillan nurse at Musgrove Park Hospital. I got the indefinite level when I I re-applied after 18 months.

Is PIP the replacement that is being brought in, not up to date nowadays LOL.

KIndest regards – vasbyte

p.s. Teeth out tomorrow afternoon – just not looking for ward to it.

]]> 8d232f57d10c497526153258fb00b26d davidmarriott replied to the topic Off Chemo for a month in the forum General http://www.myeloma.org.uk/forums/topic/off-chemo-for-a-month/#post-117060 Fri, 25 Jul 2014 08:25:49 +0100 yes, got to agree I miss Dai’s comments.

]]> bfc83a4e85e59257a3be6f33f0fb99fb davidmarriott replied to the topic Off Chemo for a month in the forum General http://www.myeloma.org.uk/forums/topic/off-chemo-for-a-month/#post-117054 Thu, 24 Jul 2014 23:11:40 +0100 Hi Megan, my neuropathy is about the same. I call it spongy feet because that is what it feels like. I also have a numbness on the right hand side of my right leg, at hip levle. I only really notice these things at night, During the day they just fade into the background.

You are right Eve, I have done so much since 2009. Coffin is finished…[Read more]

]]> 9160c043e692933fddecd7841d3a13b7 davidmarriott replied to the topic And cycle 8 begins in the forum Treatment http://www.myeloma.org.uk/forums/topic/and-cycle-8-begins/#post-117049 Thu, 24 Jul 2014 22:44:32 +0100 Well done Andy, just keep going, keep bl**dy well going.

I had the suspicious scab cut out of my head two days back now. Still sore, I have the stitches out in about 7 days. When I will get the results I do not know. I suddenly realized walking around the hospital just how many old men seem to have plaster patched on the their heads, just…[Read more]

]]> 08d3721f86f668718b040bafc64114a0 davidmarriott started the topic Off Chemo for a month in the forum General http://www.myeloma.org.uk/forums/topic/off-chemo-for-a-month/ Wed, 23 Jul 2014 08:26:37 +0100 They have pulled me off Rev and Dex (still got to take Clexane though) whilst I prepare for the operation on my Prostate on the 13th August. A whole month no Chemo. That means no Dex nights!!! I will be interested to see the Blood Readings at the end of August.

Had a lump cut out of my head yesterday which has gone off for examination. Am I…[Read more]

]]> 25903ff6c8a0a9bb9486c690ffb91c01 davidmarriott replied to the topic Next treatment Revlimid in the forum Treatment http://www.myeloma.org.uk/forums/topic/next-treatment-revlimid/#post-116921 Mon, 21 Jul 2014 10:36:25 +0100 Hi, Yes my consultant told me that they are not quite sure what Dex actually does but it does seem to aid Revilimide to do its job. I go for my monthly check up on Friday. I am on my 10th cycle – I think of Rev. Let you know how I get on.

Kindest regards – vasbyte

David

]]> 7b6e12158f43c53a0baed6f3abe2ee21 davidmarriott replied to the topic PIP in the forum General http://www.myeloma.org.uk/forums/topic/pip/#post-116920 Mon, 21 Jul 2014 10:32:39 +0100 Well yes, but at least you have now got it. :-)) Well done.

Kindest regards – Vasbyte

David

]]> 8af4ec1aef0e84233862815cd4c472cd davidmarriott replied to the topic Rattling through a bit too fast in the forum General http://www.myeloma.org.uk/forums/topic/rattling-through-a-bit-too-fast/page/3/#post-116906 Sun, 20 Jul 2014 01:38:31 +0100 Hi Annette, not to wordy at all thank you for the reply. I was diagnosed in 2009 after breaking my neck getting out of bed one morning. I have been down the normal pathway and had an SCT although I was 69/70 at the time. I never made it into remission and the second line Velcade failed for me, I had terrible PN.

I went onto Revlimide nine…[Read more]

]]> 9a0d2cd1ec584253cc62cd6e5844defe davidmarriott replied to the topic Rattling through a bit too fast in the forum General http://www.myeloma.org.uk/forums/topic/rattling-through-a-bit-too-fast/page/2/#post-116875 Fri, 18 Jul 2014 11:56:56 +0100 Hi Annette 4.5 years on Revlimid and this is your first treatment! That is worth a WOW. Am I miss reading this, did you not have CTD or SCT before going onto Revlimid?

What dose of Revlimide are you taking and are you taking steroids with it?

Kind regards – vasbyte

David

]]> b7c11a76a716186aaab81cc171163e19 davidmarriott replied to the topic The story so far.... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/the-story-so-far-2/#post-116655 Tue, 15 Jul 2014 20:47:38 +0100 Best of Luck Don. What more can you really say :-)))

Kind Regards – vasbyte

David

]]> ac4fbcf0f51564b3266fa39bd6894d54 davidmarriott replied to the topic Velcade not working in the forum Treatment http://www.myeloma.org.uk/forums/topic/velcade-not-working/#post-116480 Tue, 08 Jul 2014 18:47:57 +0100 And Me, I had three cycles of Velcade and had bad PN.

I went straight onto Revlimide and within 3 cycles was in “excellent Remission” – Consultants words. All blood readings at normal levels and no sign of Myeloma. This is the first time in 6 years that I have gone into remission. 25 mg Rev for 21 days and 7 days off with now 10 mg Dex (was 20…[Read more]

]]> 0efc6e1e3e91c1e794a7da7424086724 davidmarriott replied to the topic Stem cell transplant booked for Wednesday 9th July 2014 in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-booked-for-wednesday-9th-july-2015/#post-116429 Sun, 06 Jul 2014 05:16:27 +0100 Hi Deborah, Firstly the best of luck with your SCT.

When I had mine in 2010 I thanked the lord I had taken in my Laptop and Mobile phone. I would otherwise have been bored to death! ~Do not forget their chargers.

I had a really bad sore mouth and found great difficulty in eating anything, which all tasted and smelt fowl anyway. A Thai…[Read more]

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