Hi Carryane
Oops , Just realised my post to you is up a few postings , should have replied to your last post !
Peter

Hi Chris
For some reason the guest wifi blocks out my e mails, son has tested my iPad @ home & it works fine, very strange
I can use the forum to get e mails out, my blackberry is ok , but painful on longer mail
I have a very dry mouth, did have ulcers , but drinking lots of tea has cured them , I am not usuall a tea drinker but coffee tastes…[Read more]

Hi Vanessa
I was diagnosedMM at end may last year, did six cycles of CDT, without any major problems , them stem cell harvest early dec , again no problems
Came into the Christie for SCT on 17th Jan , with MM @3 , specialist thinks he will get me into full remission
Day 1 killer chemo injection which made me quite ill for the night , then next…[Read more]

Hi Susan
Now you are here , welcome
I was diagnosed with MM at the end of may last year
My experience , along with a lot of the other good people on this site, is to get a much info as possible on MM
Be totally positive , you can overcome this & get on with your life , you can only look forward , not back as things were
Your life will change…[Read more]

Hi Chris & Tom
Thanks for your good wishes
My post popped up between two dated seventh Jan, not sure why
Anyway I am now locked in my cell at Christie
Presume today or is it tomorrow is classed as dat one plus following transplant
Would be nice to beat Toms record !
All the best
Peter

Hi to one & all out there
Came into the Christie yesterday , set upon straight away , Hickman , line installed & drugs into me in quick order
Late pm had my dose of killer chemo , but body did not take kindly to this , so late at night everthing went tits up
Super nigh nurse stuffed me full of drugs which by today did the trick, although I have…[Read more]

Hi All
Sorry to be different but I loved my four days on dex at 40 mg/ day, twice per three weeks
Took them as early as possible to get best effect, first day after a few hours I could feel them kicking in
Energy levels went up , pains in old spinal problem ( none MM ) largely disappeared , so much so just had epidural to keep the effect…[Read more]

Hi Sarah Jane
Ask your consultant for a copy of your last blood test
Mine show my result & alongside what the normal range/ s should be
All the best
Peter

Hi Tom
Thanks for the tip , very interesting article
Sounds like some good new drugs coming out of the States in the next year or two, we just have to keep going
Where there's life there's hope !
All the best
Peter

Hi Daniel
Apart from your dads consultant , you will get very good advice from the Myeloma UK ladies in Edinburgh
You really need to give them a call ASAP, it's there help & advice you really need
I agree with other posts 6 years MM free is a good result
Not sure what you mean by lumps ?
At 17 you need a bit of family backup from your two…[Read more]

Hi Chris
Thal = Thalidomide ?
Peter

Hi Tom
Apart from a slight cold over Christmas I am fitter than the butchers dog , not that his beast has MM
Wife has fattened me up over Christmas ready for any weight loss
Really determined to get back on alchohol , so it will be worth the diesel to get that pint off you !
Specialist thinks I am a tough old git , although with my poor…[Read more]

Hi Louise
It's a small world, I lived in hale, local schools etc , until I married, then went to sale, soon returned to park rd hale , then to the mount in altrincham, before moving to the Ribble valley twenty years ago.
Son & family still live in Halebarns
Your dad seems to have done really well, I got my pp down from 42 to 3 , what was your…[Read more]

Hi Chris
Happy new year
Thanks for your advice , I will make sure I overdose on ice !
I had a good briefing with my consultant Dr Mike Dennis at the Christie just before Christmas
I hope I am not stuck in the toilet with all the gear jangling around me ,but if it happens , it happens
I take your point on other posts re travelling fo Christie…[Read more]

Hi Steve
We had a great family Christmas & new year, feels like I have been on holiday until SCT starts on the 17th Jan at the Christie Manchester
Likewise I hope you & your family did also had a good Christmas break
Glad to hear you are back on the poison , it is an acquired taste. My consultant was amazed that I enjoyed it so much that I had…[Read more]

Hi Gill
Re my study / office wallpaper , brilliant observation , been there twenty years , we had forgotten what it was !
As the room is stuffed full of my bits & pieces , re decorating is not an option
Although Wife threatens to put all of it in a skip !
I hope you have a family to keep you company over Christmas
All the best to you & a…[Read more]

Hi Steve
To be blunt I would take MM very seriously . It is a silent killer at only 39 your life is , I would have thought very precious
If I were you I would take a long list of questions to your encologist & not leave until you get satisfactory answers
You need to mug up on MM , knowledge is power !
With a pp of 125 , very high I think ,…[Read more]

Hi Chris ,
Nice to hear from someone who has been to the same hospital
So far all the staff I have seen at the clinic have been superb , not that I have stayed over , as yet !
I have also been fattened up from my normal 100 kg to a fat 112 kg
I blame the steroids !
I intend to have a close shave before going in , not sure if beard will go ,…[Read more]

Hi Ann & Pete
Good luck for tomorrow
I spent five hours in the chair each day last mon & tues
Both hands were shackled with the in / out tubes
Coffee was offered regularly
Then I said what about toilet facilities , they said you can have a bottle , I said my hands are tied , they said don't worry we can help
No more coffee after that…[Read more]

Happy Christmas & a heathy new year to all in this exclusive club
My main wishes for 2013 is to hear a " wonder drug " is on its way & that we are all still talking to each other this time next , maybe a little older , but still here
Very best wishes
Peter