PeterJames replied to the topic Very Stressful in the forum General 12 years, 10 months ago
Hi Scott
I was diagnosed MM at the end of May this year, stage one thanks to a sharp eyed practice nurse who took my routine PSA blood test, did a full blood test not just the PSA one, found I was anaemic , as soon as the Doc told me this .
With My family being cancerous i knew I had a problem , which after about three weeks of tests MM was…[Read more]
PeterJames replied to the topic Someone to talk to in the forum Newcomers 12 years, 10 months ago
Hi Tom
Got my third cycle result today , pp at 8 , not sure if that's good or very good for number three cycle
BUPA is a definate bonus, I had some spinal ops at the Alexander Hospital in Cheadle Ches, this last few years
Just like being at the Hilton , lovely large very clean rooms great food, every whim attended to , sad to be kicked out…[Read more]
PeterJames replied to the topic Someone to talk to in the forum Newcomers 12 years, 10 months ago
Hi Tom
My specialist said as long as it was wet , drink it , now a dedicated drinker , was anyway!
Like you I was diagnosed by accident but at stage 1, little or no bone damage
Also very lucky to have been in BUPA since i was a spotty teenager, god bless my Dad !
Although I have claimed that much in the last few years, I'm surprised they…[Read more]
PeterJames replied to the topic 12 months since my stem cell transplant in the forum General 12 years, 10 months ago
Hi Wendy
Your account of the SCT is the best i have read, all info gratefully received
I am just finishing the third of six cycles, all seems to be going well ,no particular problems with the CDT i am on
Being teed up for my SCT at Christies in Jan
I am going to the MM 22 ndSept day at Radisson,ManchesterAirport, more than interested in all…[Read more]
PeterJames replied to the topic And the GOOD news is in the forum Off topic 12 years, 10 months ago
Hi David
Only diagnosed with MM this June, but have had my PSA monitored for many years with two or three biopsies
Prostate Cancer is our family Achilles heel
My PSA varies up& down all the time ,never more than 10 , but since I have been on the CDTregime it's gone slowly up without any dipping down,, just finishing my third cycle , the reading…[Read more]
PeterJames replied to the topic Revlimid in the forum Treatment 12 years, 10 months ago
Hi John
Very interesting to read your post, I hope I can get at leastv12 years
Diagnosed in June this year, just finished my 2nd of 6 cycles of CDT, PP down from. 46 to 10 which I think is quite good, SCT I hope in Jan @ Christies
I'm just a young 70 & still work ad a consultant engineer for a large laundry group with 40 laundries from IoW to…[Read more]
PeterJames replied to the topic Diagnosed this week in the forum Newcomers 12 years, 10 months ago
Hi Ozzy
I was diagnosed in June this year , my PP was 46
After the first two cycles it has dropped to 10 which I think / hope is pretty good with four more cycles of CDT to finish
Then an SCT at Christies in Jan
What I cannot seem to find out is what is classed as a good result , you are at 4 , I have read posts of 1 or zero
Zero is…[Read more]
PeterJames replied to the topic New member in the forum Newcomers 12 years, 10 months ago
Hi Vicki & Colin
I was diagnosed with MM this June, again by accident from an unconnected blood test for my PSA
I have to say steroids are great , all my arthitic pains go, also get somewhat hyper/ aggressive, god help anyone who cuts me up on the road!
Then for the following two days after steroids, tired & rundown , but all in a good cause
I…[Read more]
PeterJames replied to the topic Someone to talk to in the forum Newcomers 12 years, 10 months ago
Hi Tom
I was told to drink 3l per day of anything that was wet, so two or three beers & several reds gets me well on to the target
On a more serious note reading the many postings from people who have been diagnosed disastrously late , who now need new hips or or well past stage one
In my case there were on or two clues over the last 12 months…[Read more]
PeterJames replied to the topic Someone to talk to in the forum Newcomers 12 years, 10 months ago
Hi Michele
I now stick to Myeloma Uk & the USA lot
Also signed up to the Manchester Radisson Hotel open day on 22 nd Sept, where I hope to pick up a lot of info & advice
I' ve said to my family , if the Taliban find a cure in Helmand province I would be there tomorrow, failing that the radisson will do
Best wishes
Peter
PeterJames replied to the topic Someone to talk to in the forum Newcomers 12 years, 10 months ago
As a newly joined member of the MM society. i was diagnosed with MM in June this year.By a stroke of good fortune if that is the right word a routine blood test unconnected with MM showed i was anaemic which was enough my Doctor to send me off to see a specialist who made sure i was anaemic by draining off yet more blood every time he set eyes on…[Read more]