Hi Chris… drop me a note at

Phil.kelly2@btinternet.com

and I will send you the link,

Cheers,

Phil

So sorry to hear this, I was lucky enough to meet Keith several times through MMUK and he was such a good guy. In fact I think Keith was the first person I ever spoke with at a Myeloma info day and it helped me greatly finding someone so down to earth at a time when I was still in denial about the whole thing.

Hi all…. got the shock of my life yesterday… found cheap travel insurance with the AA on line.

A week in Vegas for me and Mrs K cost us only £19! I was on the verge of signing up with another best offer of £120 with http://www.payingtoomuch.com
then chanced it with the AA. Fully declared my Myeloma (2 x SCT and in remission). This time l…[Read more]

or email Phil: phil.kelly2@btinternet.com

Hi Keith, sorry to hear you have hit the rocks again. I did get passing out symptoms on Velcade and it turned out to be nerve damage caused by the Velcade in my parasympathetic nervouse system…. that affects your blood pressure response to things like standing up. It is known as Postural hypotension… basically your body doesn't react quick…[Read more]

We are up for anarchy and resistance at any age …… Justt have to keep sweariness off here! Send me a note if you want to have a look in. Phil

Thanks discussed with doc that muscle stuff in legs is more likely steroid related than V.

Hi Keith, know where you are coming from resenting the myeloma coming back just when you get back on track….. I was really lucky getting 4 years out of my SCT but ironically I was feeling good for the first time when it came back! I have been SO determined to keep doing stuff this time…. Tho its getting harder. Jealous of your platelet counts!…[Read more]

Hi Keith, good to hear its going ok. Have just started cycle 4 of V and the fatigue effects see to be cumulative. Worse tho they seem to be harder to predict when bad days will hit. Still way easier than CVAD though.

Anyone else had muscle weakness with V?

Dai, great news…. Go for it! Best thing I have done since getting ill! Keep us posted, Phil.

No worries on the bone biopsies but did come close to leaping off the trolley last summer when they tried to start liver biopsy without sedation!

Great to hear….. You just gotta go for it….. The amount of cash I have spent on new amps etc is a closely guarded secret!

Hi Wendy and sorry you need to join the gang…just send me a note at phil.kelly2@btintinternet.com
and you will receive an invite to join. I just need your email address to do so. Phil

…weddings, bar mitzvahs and acoustic greenhouse openings all considered! Especially if home made wine on offer. I rediscovered my stash of 15 year old home made port at Christmas…an absolute revelation! it was undrinkable about 6 years ago!

Hey Keith, they aint gonna get us yet! Feeling rough today so will respond properly
Soon

Me too! Bad luck mate, hang in there! Phil

Hi Keith and Gaye, been away for a while so interested to see how you are both doing. Good news on getting the drug Gaye, good luck with it! Keith…. Sorry to hear about the relapse….. My relapse hit in October last year and I am mid 2nd cycle of Velcade….. Way nicer than CVAD! But starting to feel a bit drained…. Let me know if you want to…[Read more]

Or drop me a note and I can invite you in at
phil.kelly2@btinternet.com

Phil