Phoebe replied to the topic Our Journey in the forum Newcomers 12 years, 1 month ago
Thank you all for your lovely messages. I have read many of the posts on the site and believe each of you are inspirational in your roles as patients, carers and family members. Its been very helpful to gain such a wealth of shared knowledge from reading the threads, especially the logs regarding treatment which describes the process and what to…[Read more]
Phoebe replied to the topic Dad and his secret in the forum Newcomers 12 years, 1 month ago
Hi Bev,
It's certainly a difficult situation for you to be in, but as Eve has said it may be their way of coping and not wanting to worry you.
When i first read your post it struck me personally as we have not yet shared the MM diagnosis with our children and their ages range from 16-26yrs old. They just think that my husband has 'funny blood'…[Read more]
Phoebe started the topic Our Journey. in the forum Newcomers 12 years, 1 month ago
My husband was diagnosed with MGUS in 1994 aged 34 following a routine blood test which indicated high levels of paraprotein. He had a bone marrow biopsy and MRi and no other problems were found, which was good news and he was monitored every year. We knew very little about the condition at this time and put it to the back of our minds as he was…[Read more]
