LesleyJamalaldini

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  • #87407

    Phoebe
    Participant

    Thank you all for your lovely messages. I have read many of the posts on the site and believe each of you are inspirational in your roles as patients, carers and family members. Its been very helpful to gain such a wealth of shared knowledge from reading the threads, especially the logs regarding treatment which describes the process and what to expect.

    Eva- I have a daughter who also experiences depression and appreciate some of the effects this can have on the individual and as a parent. Its great that you can provide him with reassurance and be the 'rock' that all children need no matter their age.
    Phoebe

    #87379

    Phoebe
    Participant

    Hi Bev,
    It's certainly a difficult situation for you to be in, but as Eve has said it may be their way of coping and not wanting to worry you.
    When i first read your post it struck me personally as we have not yet shared the MM diagnosis with our children and their ages range from 16-26yrs old. They just think that my husband has 'funny blood' that requires monitoring by a Haematologist every 3 months and injections of G-CSF due to his neutropenia.
    We decided not to tell them until my husband required 'active treatment' as he is currently asymptomatic. I felt my children had enough to deal with following the effects of my husband's meningitis and amputations. Three of them are still in education and we want them to be able to concentrate on their studies.
    Of course everyone's situation is different and people come to terms with things in different ways. It may be helpful if you can provide your family with practical and emotional support which enables them to get over your father's surgery and any debilitating effects that remain. I wish you and your family all the best.
    Phoebe

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