Excuse my flippancy eve but, though I don't believe I have myeloma,, I suspect that I do have something with a with similarly unpleasant prospects, not that life isn't pretty dismal now.

The symptoms of polymytosis are remarkably similar to what I have, moreso because they are unusual to appear together. It's been made worse for me because I…[Read more]

My symptoms just bear no relation to anyone else's, and to make matters worse I've got to stop eating again. It's not the first time, and it's not that I don't like eating, but it only makes matters far worse.That always appears to get misinterpreted as attention seeking, but I just want some relief, if only for a while. My current record is 12…[Read more]

The result.

The prime result is that Haematology are professional, efficient and talked to me, and that's been lacking with others I've dealt with. Only they did ask if I'd had a blood test prior to the appointment which would have been unlikely as I hand't been asked to arrange one. No problem – they did one on the spot.

My abdomen was…[Read more]

I have to admit that my relationship with the local Health Authority could best be described as having irretrievably broken down after what's happened before, but let's not go over that.

I was in an awful state when I got to rheumatology, so wasn't best pleased with what happened. I have no idea what is afflicting me but appointments of that…[Read more]

I suppose that i must wait until next Thursday before I know anything and it's a pointless waste of effort trying to second guess what might be going on.

The x ray survey was okay except that lying on my left shoulder is very painful. I'm not sure that it's a bone issue but that wasn't my diagnosis.

The visit to rheumatology today was very…[Read more]

Having had the bone marrow biopsy I've today received an appointment for an MRI scan of my spine.

That doesn't sound so good, and maybe I'm soon to become a card carrying member of the forum in spite of my protestations. It appears that I have passed on to step two of the investigative process.

It still doesn't explain why my abdomen is so…[Read more]

X ray skeletal survey tomorrow and Rheumatology the day after. That should be fun.

Feeling very ghastly and fragile and I still don't think it's myeloma but, whatever it is, I don't expect it to be nice.

Nurses always want me to move at double quick time and that leads to drama, which doesn't help.

That's correct Badger. Ever since I had kidney cancer it's been a figure close to my heart, if that doesn't sound contradictory).

They say that it indicates how well your kidneys function as a percentage, but don't get over excited if you're not 100% – no one is.

Unless it's very low no one will get too excited – say 20% or so, but you can…[Read more]

That's helpful Tom. My main affected areas are my abdomen and shoulder but, though I tend to feel awful most of the time, I am all 'singing and dancing' compared with other sufferers here. I don't want to think about any treatment making me feel worse than I do now but symptoms are beginning to accumulate and intensify at a worrying rate.

The…[Read more]

I'm trying hard to restrain myself – but it's not easy.

Being as objective as I can, I don't believe that I have myeloma, which is reassuring as that probably means I'm not a hypochondriac either, otherwise I'd settle on the worst possible diagnosis available. The only contrary view is that of my GP, who is very cautious by nature, and the…[Read more]

The bout of flu-like illness I had last week wasn't good enough so I repeated it again this week.

Having flu once a year is bad enough (for a man) but having ir repeat weekly is beyond a joke. My myeloma (as yet unconfirmed) appears to flare with flu like symptoms which makes it hard even to grin and bear it.

Next week is free from tests and…[Read more]

Thanks for the comment Bridget.

I had read one description of the biopsy experience which would unnerve anyone, but I believe it was a rare reaction. You can never dismiss anyone else's pain or experience, and even moreso with cancer as it affects people in so many different ways. It makes us unique in ways we don't like.

I had a local…[Read more]

Forgive me if I prattle on to myself, but this is one heck of a roller coaster ride, with not too many ups involved.

Since last Saturday evening I have been feeling utterly awful and barely capable of anything. The sensation has been like a flu virus with the feeling of being hung over too (though I don't drink alcohol). I can't get over how…[Read more]

Straight out myeloma is obviously a devastating illness and the histories of people I've read here are quite difficult to read.

The thing is that when my GP first mentioned bone cancer I totally disregarded it as I didn't consider my pains were significant enough, but my new found knowledge of all the variations and symptoms has opened my…[Read more]

I've come across a couple of interesting articles

http://asheducationbook.hematologylibrary.org/content/2005/1/340.full

Whatever else I am, I'm not asymptomatic, and this forum thread refers to something that happened to me

http://forum.choosehope.com/viewtopic.php?id=230

My body's a wreck and having been treated as a hypochondriac for…[Read more]

Apparently the paraprotein level before Christmas was 5 point something, which is nothing so I believe, but Just sitting down for a long period at the hospital left me a wreck.

They're doing all the checks and bone marrow too. If the tests come back negative I'm left with symptoms and no diagnosis which will be very frustrating, so I'm one of…[Read more]

The way things have developed I'm not on the best of terms with my Health Authority, which is exactly what happened with my kidney cancer. It's regrettable and unwelcome but unavoidable.

II presume that the haematology appointment is in reality just a blood test.

The result isn't of such significance to me as making the dreaded aches and…[Read more]

I've been advised by phone that I have a haematology appointment for this Thursday to go along with my rheumatology appointment on 9th February,

Many thank for the reply Mavis.

Suffice to say that I don't have too much confidence in the local hospital after my kidney cancer experience with them. You don't want to know what happened.

I'll be more than a little annoyed if they've been holding back information.

Being totally objective the course of my illness doesn't follow the…[Read more]

To be quite honest the banks favoured replacing mature and ethical staff with 'spivs' whose only purpose was to sell 'product'.

When I took a bank to the FOS it was because a bank sold investments to my mother, who like many elderly people is very trusting – big mistake.

The FOS is a very good body ti use in any banking dispute and it…[Read more]