Thanks all,
It is good to be in remission.
It is still painful – since SCT – to get up from prostrate or to sit too long or to stand too long. During CTD this was controlled by the steroids etc. I don't like taking pain killers and avoided using the MST etc during the last year. Can I expect any reduction in spinal and lower rib pain over time? I don't exercise but I do mild stretch and bend of torso as maintenance.
I have a desk with computer job which is fairly low stress and am well supported by my colleagues and bosses.
I am coming to the end of the sick note I took for the SCT treatment – my transplant doctor indicated at least two months minimum for recovery of my immune system etc but my family are urging me to take more time off. I worked during most of the treatment to date and while I am aware I cannot lose my job; I know I will not be able to get another! I may still need to have my neck stabilised and the bones repaired so will continue to wear a collar until July, at least, and may need further time off work for that. However, during the nine months treatment so far, the scans of my neck have shown poor condition in the cervical bones with no improvement.
Obviously, I am bored at home and want to make the most of my present situation.
Thanks for any related experience that you can offer.
