my mum is in her 70s…my Dad has spoken to the MacMillan nurse and they're going to chat after my mum's next PP result on monday, but it seems that we are going to try one cycle of the cyclophosphamide – the original drug that got her proteins down after the initial diagnosis, but with the awful side effects. At least she can stay at…[Read more]

My mum was diagnosed 2 years ago, relapsed last year and we have been trying different drugs, the last being Bendomustine.

But none have kept the slow steady rise of her PP at bay. She is now always tired, she has blood transfusions every few weeks, and moving about at all is a great hardship. So she came off the Bendomustine three weeks…[Read more]