https://forum.myeloma.org.uk/members/Robertmaurice/activity/ Activity feed for BattenRobert. Mon, 06 Apr 2026 05:59:01 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 b7e74c398cbe7e20d4694005b308e225 http://www.myeloma.org.uk/forums/topic/myeloma-xi-trial-and-maintenance-treatment-following-stem-cell-transplant/#post-120354 Sat, 17 Jan 2015 17:44:27 +0000 Hi Angela
I was on the Myeloma X1 trial and was randomised to the RCD induction treatment which was followed by an SCT. After this I was randomised to the lenalidomide/vorinastat maintenance regimen. However After thinking long and hard I decided against taking it and so I was removed from the trial. My basic reason was that I wanted to be free of…[Read more]

]]> 4e9ef817b49d90bd534a981e685a827c http://www.myeloma.org.uk/forums/topic/paraproteins-2/#post-120350 Sat, 17 Jan 2015 17:28:28 +0000 Hi hes042
I don’t think you have anything to worry about. The stability of the paraprotein level is much more important than the actual level. I met someone recently whose level had been around 20 for 10 years and the doctors were not going to do anything about it until it reached 30. My own case is entirely different. After both my first course…[Read more]

]]> e30b09170ab0e83a23635239bf5af533 http://www.myeloma.org.uk/forums/topic/first-relapse-treatment-options/#post-119802 Tue, 02 Dec 2014 20:18:52 +0000 Hi Linda
I was dagnosed with myeloma in Sept 2011. I had 4 cycles of RCD ( lenalidomide) on the Myeloma X1 Trial. My paraprotein reduced from 69 to zero. In May 2012 I had a SCT. After a long recovery my remission lasted till October 2013. I was put onto Velcade and Dexamephazone. Each treatment cycle was twice a week (injections) for 2 weeks and…[Read more]

]]> 56ba8f35a56d2cca3acde3b79dcb269b http://www.myeloma.org.uk/forums/topic/peripheral-neuropathy1384707699/#post-115001 Thu, 08 May 2014 17:32:58 +0100 Following my first relapse I began a course of Velcade and Dexemethasone. After 3 cycles I was in complete remission and was offered a second SCT. I turned this down when I was told my remission would probably last only 12 months. I think I have an aggressive form of MM. So I carried on with the Velcade. The neuropathy in my feet started after the…[Read more]

]]> 95f1b7665511416a2b32468fb539daec http://www.myeloma.org.uk/forums/topic/hello-to-all#post-85655 Sun, 27 May 2012 15:58:36 +0100 Hello Jacqui
This is my first attempt at writing to the site I was diagnosed with MM in October last year. My paraprotein level reduced to zero after 4 cycles. I am on the Myeloma X1 trial which uses Revlamid instead of thalidomide. I also went in for Analagous Stem Cell Transplantation and had the collection in mid-April. I am starting the…[Read more]

]]> 84cccb66e65dfcfbb44879d1ec5d4df9 http://www.myeloma.org.uk/forums/topic/my-husband-has-just-been-told-he-has-got-myeloma#post-85868 Wed, 02 May 2012 11:42:34 +0100 Hi Ann. I was diagnosed with myeloma last October with the same symptom of upper back pain, nothing else. I have always been very fit, but ,funnily enough the diagnosis did not come as a shock and did not cause me any distress. Right from the start my consultant told me that after induction treatment (Revlamid And Cyclophosomde and Dexomephasone)…[Read more]

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