[Rosiemonkey31Participant]

Thanks Mavis, he’s pretty comfortable and moved to a small cottage hospital in his local town. No we don’t have any support from the myeloma nurses that all stopped when he was taken so poorly. However, the nurses in the little hospital are doing a great job, really personalised care, he even has sherry with his Sunday lunch! All the best to everyone on here. My thoughts are with you all. X

[Rosiemonkey31Participant]

Hi, thanks for the responses. Sadly my Dad’s fight is nearing it’s end, we were told last Thursday that he has at most 6 months. I guess he has a particularly virulent form of MM. Thanks you for your support. Keep fighting and keep enjoying life. Best wishes.

[Rosiemonkey31Participant]

Thank you Carol for your response. Yes from what I have read on here I have gathered information which i had no idea about and think we need to get a second opinion and have him transferred to a different hospital ASAP. I think we have been too reliant upon the opinion of one consultant but you trust these people and assume they know what is best. Poor Dad he is on the elective list to have his leg pinned (as that is about to break too) it should have been done on Monday but has been cancelled and again today fingers crossed for tomorrow. However this will only leave him with one functioning limb. I shall try to get him transferred to Nottingham City hospital (near me) if I can possibly speak to the consultant there and fingers crossed trying to stay positive!

[Rosiemonkey31Participant]

Hi sorry to barge in on this conversation I wasn’t sure how to start a new thread. my dad has just relapse for the second time. His first chemo was a trial lenaolidamide and cyclophosphamide, second chemo was velcade. The consultant has said there are no other treatment options but I see on here that there seem to be all sorts of combination of drugs and new drugs available. He’s in hospital as his arm and collar bones have broken due to myeloma. I suppose my questions are how has dad got into this state and are there other drug options and is dad just receiving very poor care? We’ve been trying for days to get hold of his consultant. It’s so frustrating that there is no one we are able to talk to.

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