RachelEdwards

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  • #87441

    Rudd
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    Hello your mums journey sound do similar to my mums
    She was diagnosed finally in October 2011 after
    Six months of severe back pain. Again was told
    That it was posture etc etc, but had X-ray and
    Nothing showed had blood tests and still no
    Diagnosis. Eventually mum lost the use of her legs and
    Was rushed to A&E where we received the bombshell
    Myeloma! She had surgery to rebuild her back
    And radio then chemo. Mum had her sct in October
    2012 which was very traumatic. Besides being
    Very poorly from high dose chemo, she fell over
    In hospital and broke her wrist. So another op.
    I don't think that anyone can tell you how difficult
    It is to rebuild after sct. It has taken until now for her to be
    Able to walk properly although she has limited
    Time that she can walk for. But she has done
    Amazingly well. I couldn't believe how your
    Experience resembled mine. It has completely
    Changed life. Also the way you look at things now.
    Mums levels had to be v low before transplant.
    Prior to sct she had injections to promote growth
    Before they harvest. It was a fantastic experience
    Watching the harvest. But the road is long and you need
    To be able to talk to people. It's such a difficult
    Thing to have to come to terms with. Now mum
    Has a bad cold and has been told by GP that
    Her red blood cells are larger than they should
    Be so More tests ! I really would love to know
    If anyone had experienced this? I could talk all
    Day do I am sorry to ramble. If I can help you
    With any thing I will. I hope your mum is okay
    I would like to know how she gets on. Keep posting
    Stay strong and there are so many lovely people
    To talk to best wishes to you and your family.

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