RussellNortham

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  • #106798

    Russell
    Participant

    Also in my tests nothing was found in my Urine??

    Also the Plasma cells where less then 5% from the Asiprate sample?

    #106797

    Russell
    Participant

    Hi Everyone, thankyou so much for your support it really does make a difference. i feel like my family and friends are taking it worse then me!

    Ok i have had a call from my Hematologist who took a Bone marrow sample, Aspirit and blood samples? i think thats what it was, well he took three different things from me!

    right im not sure what significance this has but he has said from looking at the Aspirate taken from my bone marrow there is little sign of Myeloma but he has said he needs to wait on the Bone marrow biopsy before he can make a 100% diagnosis. he said to not get too excited that he might not have taken enough cells but the bone marrow results will provide him with the information needed which wont be available until Tuesday. Is this good? or should i really not get my hopes up? He is confused why nothing has showed up as scans etc show hot spots on my skeleton etc.

    he did say he would refer me back to the shoulder speacilist if nothing was found so he can do a biopsy on my should which showed up the initial blobs on my bones.

    There is so much information to digest i dont know what questions to ask!

    thanks again

    Russell

    #106791

    Russell
    Participant

    Hi Andy,

    I found out a few days ago I have Myeloma. I went to my GP with a shoulder injury and it wasn't until two MRI's, CT's xrays and a bone marrow sample (which hurt) it was discovered to be Myeloma. I am yet to find out what stage I am at and what options that are open to be but I will find out on Friday. I am 28 and keep thinking I will wake up with this all being a dream. I honestly do not know what to even expect reading things on the Internet about survival rates which are scarring the he'll out of me! I haven't started Chemo yet.

    All I hear is that myeloma sufferers average age is 70 which doesn't make me feel any better. My upper torso hurts I can't run because if pain despite pain killers,

    Thanks worryingly

    Russell

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