Sorry to hear about your diagnosis – my husband was diagnosed in October 2009 and just started CDT treatment in June this year so 4 years of being monitored – we never expected him to have the bonus of this time free of Myeloma! He found it hard to cope with psychologically particularly when he went for his appointments to monitor the para proteins
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His para proteins were originally diagnosed at 40, stayed around that level until the last few months until they reached 71! He has had no symptoms at all – the consultant picked up that his red blood count was going down and that he may develop anaemia, so advised that he start CDT.
We were both terrified after reading about all the side effects, but thankfully he has responded very well. His first 2 cycles were dramatic with three visits to hospital, due to high temperatures, but his third and fourth cycles have gone well – para proteins down to 21 after just two cycles!
Myeloma has taught us to take every day as it comes and to get the very most out of life and not spend time worrying about what might happen! Good luck with everything and hope that telling you of our experience helps.
Sab
