Hope all goes well with the SCT?

We attended an information day in Glasgow and would recommend it.

Good luck

Maureen

Hi David, Megan and Eve

Thanks for your replies. I spoke to Maggie and she informed me that as Ian had an infection it is possible that is why the FLC could have risen. I also asked the consultant if he would give Ian cyclophosphamide he said no as if his FLC rise again he will change to revlimid. Maggie advised me to go for a second opinion if…[Read more]

Hi Jean

Good to hear Mike is getting stronger. Enjoy your holiday.

We are hoping to get away for a week at the end of June but haven’t decided where.

Maureen x

Hi Helen

Nice to hear you had a lovely 60th birthday and all the family were good to you. I had mine last year when Ian was in hospital. My daughter treated me to 3 days in Nice and my son gave us vouchers to use at Gleneagles. It was a real treat.

Hope you are doing well.

Maureen x

Hi Sarah

It must feel like M is going through a really rough time, but there is light at the end of the tunnel. My hubby Ian had sepsis, c diff and mrsa when he was in hospital and in isolation. We both were scared and anxious most of the time, as he also couldn’t walk. Roll on one year and 4 months, he is walking and we have had short breaks…[Read more]

You must be pleased with results. Good luck with SCT. Hope it gives you a long remission .

Maureen x

Hi Sarah

My husband had back pain which was mild initially, went to gp sent away with pain killers. Took 7 months to be diagnosed, by which time he was in considerable pain. We went privately for an MRI scan and they found a huge mass on his spine. He did have bloods taken but they didn’t show anything sinister as he has light chain myeloma and…[Read more]

Sarah

Enjoy the bank holiday and have a nice bottle of red.

Maureen x

Sarah

I take one day at a time and try not to look to far ahead. Ian is walking much better and now walks a little without sticks so do not give up hope that M will progress. Hope the treatment is not too harsh on him.

Thinking of you both

Maureen x

Sorry to hear that younhave relapsed. Hopefully you will get treatment which doesn’t have too many side effects and will give you a long remission.

Would you go for another SCT?

Maureen

Izzie

My husband will have to make the decision to go for SCT if he reaches remission. It must be very frightening but if it was me I would always wonder what if.

Hope all goes well and you will get a long remission .

Maureen

Jean

Hope the results of the MRI are good and you get away ok. Are you going somewhere nice?

Maureen x

Sarah

Good luck with the new treatment, you certainly deserve it.

Maureen x

Jean

Hope you got good news today. I dread meetings with consultant too.

Maureen x

Dick

Ian had Neuropathy with CTD on previous cycles . He has noticed a slight change in his legs but nothing to be concerned about yet!

Have your FLC reduced?

Maureen

Staying at Rockliffe Hall, got a very good deal. Plan to visit Durham and Harogate

Maureen

Hi Helen

Enjoy your retirement. I was wary of retiring but now I don’t know how I fitted work in. An hour extra in bed, and taking it easy. Out for coffees, massage and breaks away. I also do pilates and sing in Rock Choir.

Ian finished first cycle of 6. Results on 28 th. Fingers crossed it’s working. Off for a few days tomorrow to Darlington…[Read more]