Hi Jean

Ian’s FLC are rising and his BMB showed 20% plasma cells so he is going on velcade on 24 March. Consultant said he was borderline and normally they would wait and see as his FLC decreased a little this month but due to his past history they are not taking chances so he will be on velcade for 6 cycles . I hope he doesn’t have too many…[Read more]

Hi Jean

Sorry to hear Frank has shingles and hope he gets relief soon.

As for MRI scan 8 weeks! I would be shouting from the rooftop. Ian had pain in his back and got an MRI scan within 2 weeks. He also had pain i would his hip when we saw consultant on Monday and he got an x ray within 30 mins. Go to your gp and they might be able to help…[Read more]

Eve

Phoned Maggie and she informed me that it is the same MRI scanner but with new software but it is not readily available yet. It still has to be proved. She thought that due to Ian’s 20% plasma cells from BMB that is any he will be starting treatment but he is on the border line.

Our specialised unit for myeloma is in Dundee and she suggested…[Read more]

Hi Dick

We do not have the new MRI scan in Scotland but we do have privateinsurance so it might be worth looking into that.

Hope you are making good progress after your SCT .

Maureen

Hi Eve

Consultant only said Ian would have to1 injection of velcade a week and be monitored every month. Going for pre assessment next Wednesday so I will take my notebook and ask questions.

No trials on this site showing for Scotland.

Hope Slim is responding to treatment .

Maureen x

Hi all

Thanks for your good wishes.

Eva nice to know you are responding treatment, we must meet in Edinburgh when you are better.

Saw consultant today and even though Ian’s FLC went down a little he will start Velcade on24 March. We must get away for a few days before.
Eve
I ask consultant about new MRI scan and he didn’t know about it. Also…[Read more]

Hi Angela

My husband Ian was diagnosed in October 2012 and chose the nhs as consultant advised that he would se the same doctors. He has had really good treatment and advice from all staff.

Wishing you well.

Maureen x

Hi Andy

Good news. Enjoy your beer.

Maureen

Good news David hope you get a long remission and enjoy your holiday.

Maureen x

Hi Tom

It was a good bottle of red.

Hope you aren’t having too many side effects from the drugs.

Maureen x

Hi Tom

Ian’s BMB showed 20% plasma cells but all bloods and kidney function normal. Got at least 1 months reprieve before he starts treatment again.

Start counting sheep when you’re drinking the vodka. lol

Wine for us tonight.

Onwards and upwards.

Maureen

Hi Andy

Another hospital stay but Steph was good catching it quick. How long are you on antibiotics?

Ian’s had 6 weeks of antibiotics for his back wound which will be finishing soon.

Maureen

Hi David

Glad you got it sorted out. Myeloma site is great for information.

Hope you will be well for your break away.

Maureen

Hi Sarah

Don’t give up hope. My husband was told he might never walk again and is now walking with sticks and can climb the stairs. Be positive and take one day at a time.

My husband drank lucazade which gave him energy.

Maureen

Hi Tom

Hope all goes well with the new treatment and you don’t have too want side effects.

Keep drinking the vodka and it’ll help to kill of the mm lol.

Maureen

Hi Sarah

It will be good to have your husband home. Ian is now walking with sticks and getting stronger. We got a grant for a wet room with hand rails. He also has a riser recline chair, Comdex also used in the shower and a hospital bed. Speak to your social worker if you need anything.

Maureen x

Hi David

Sorry to hear you are having a hard time. Hope you get that holiday. What insurance company do you use?

We have planned our first getaway but only for one night. We are having at treat at Gleneagles Hotel. Will look at booking somewhere warm if Ian is well.

Maureen

Hi Sarah

Ian wasn’t advised to avoid any types of food but I do wash fruit thoroughly and we only eat red meat once a week. Was told to eat lots of proteins to heal wounds and I also give him a teaspoon ogre manuka honey every day as it is good for the immune system.

Hope M is home soon

Maureen x