Myeloma Forum | Sandra Blundell | Activity https://forum.myeloma.org.uk/members/Sandrabl/activity/ Activity feed for Sandra Blundell. Tue, 14 Apr 2026 14:35:36 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 7539db21b7a457b9038ffe77b429fc56 Sandra Blundell replied to the topic AL amyloidosis..... Cardiac Amyloidosis in the forum AL amyloidosis http://www.myeloma.org.uk/forums/topic/al-amyloidosis-cardiac-amyloidosis/page/2/#post-123485 Wed, 05 Aug 2015 08:21:04 +0100 Hi All

I started this post over a year ago and would like to give an update. I am 51, and have Cardiac Amyloidosis.

Firstly I would like to thank you Pat…… one thing stuck in my mind at the beginning of this battle and that was your words “There is a tomorrow and a tomorrow and a tomorrow” I have never forgotten this and you are so right :)…[Read more]

]]> 52c9d851c557cd96966ce698f4795b7c Sandra Blundell replied to the topic AL amyloidosis..... Cardiac Amyloidosis in the forum AL amyloidosis http://www.myeloma.org.uk/forums/topic/al-amyloidosis-cardiac-amyloidosis/#post-119851 Sat, 06 Dec 2014 16:22:56 +0000 Linsey you are just up the road from me….I have my treatment at Colchester general Hospital, although am under National Amyloidosis Centre in London. Colchester have never treated Cardiac Amyloidosis, but my haemotologist is now well on board and between him and london we manage well.

There has been no pattern to my treatment. I started chemo…[Read more]

]]> 5c93072f94a3cb586259c3f8549f7c45 Sandra Blundell replied to the topic AL amyloidosis..... Cardiac Amyloidosis in the forum AL amyloidosis http://www.myeloma.org.uk/forums/topic/al-amyloidosis-cardiac-amyloidosis/#post-119846 Fri, 05 Dec 2014 19:17:25 +0000 Linsey Hi

I am in Colchester and I think you may be local to me….. I am 50, have cardiac amy like you and have just finished cycle 7 of CVD….. any questions you have please ask. Sorry I havent replied before…. have had bad couple of weeks but am okay again now 🙂

Much love

Sandra

]]> d2469ec71ba989c0c9f6fffa6f79abca Sandra Blundell replied to the topic AL amyloidosis..... Cardiac Amyloidosis in the forum AL amyloidosis http://www.myeloma.org.uk/forums/topic/al-amyloidosis-cardiac-amyloidosis/#post-116135 Sun, 22 Jun 2014 13:30:03 +0100 Pat
Thank you so much for your reply. It is so lovely to hear from someone who can put my feelings into words and understand ….I have just finished cycle three of a possible eight and am due back to NAC in two weeks. Most days I am terrified that I wont wake up, but as you so rightly say there is a tomorrow and a tomorrow and a tomorrow …..I…[Read more]

]]> fcb33f5563f49a7aaa03be29b9dc7290 Sandrabl changed their profile picture https://forum.myeloma.org.uk/activity/p/25623/ Sat, 21 Jun 2014 12:52:11 +0100 0 b1d72670f9a24bda25e53f8817c90ec3 SandraBlundell started the topic AL amyloidosis..... Cardiac Amyloidosis in the forum AL amyloidosis http://www.myeloma.org.uk/forums/topic/al-amyloidosis-cardiac-amyloidosis/ Sat, 21 Jun 2014 12:47:46 +0100 Hi…. I am so relieved to have found this forum. I am 50 years old, diagnosed Cardiac Amyloidosis Feb 2014, currently undergoing velcade, dex, Cyclophosphamide treatment. Am under NAC , scared but still here….Any one else have cardiac amy?

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