Myeloma Forum | Sharon | Activity

Sharon replied to the topic Greetings Joining the happy band in the forum Newcomers

Mon, 10 Dec 2012 00:44:19 +0000

Sorry you've had to join us Tom :{
If the Myeloma's not really having any harmful effect as yet, why are you having a SCT so soon? This is a very individual disease as I'm sure you know (or will come to know) but I was asymptomatic (no symptoms) for 4 yrs and wanted to put treatment off for as long as possible. I have spine damage but I'm on…[Read more]

Sharon replied to the topic Recently diagnosed in the forum Newcomers

Mon, 26 Nov 2012 01:16:58 +0000

Hi Mike,
I was also 19 in 1989 so we're about the same age. I've got 2 young kids who I also adore. Myeloma certainly knows how to pick its victims.
Do you think the impact of the accident triggered the Myeloma? They say a "shock" is often the trigger. With me it was probably giving birth!
6 months later I had excruciating knee pain and…[Read more]

Sharon replied to the topic Confused in the forum Treatment

Wed, 31 Oct 2012 23:42:09 +0000

Hi Peggy, I went through it at the beginning of the year and yes, the GCSF injections are the norm I think. Good luck with the harvest and everything that follows.
Sharon x

Sharon replied to the topic Relapsed MM in the forum General

Wed, 31 Oct 2012 23:25:37 +0000

Winston!
We met at the Birmingham Infoday. Sat at the same table for lunch (and very nice it was too!)
I was sorry to hear you'd relapsed after such a long time but you're an inspiration. I'm quite a negative thinker and need to hear about more people like yourself, who've done well from their first transplant.
I had my transplant in January…[Read more]

Sharon replied to the topic Sad news in the forum Under 50s

Tue, 23 Oct 2012 11:38:15 +0100

Rachel, I'm so sorry for you and your family. I was at the Infoday on Saturday when I found out about Paul and I have to say I was shocked and deeply saddened. We were at more or less the same point with our treatment. I had my transplant in January and came very close to losing my life. Paul seemed to be doing so well. Damn this disease.
Wish I…[Read more]

Sharon replied to the topic Just Diagnosed in the forum Newcomers

Sun, 29 Jul 2012 00:06:27 +0100

Bit miffed to read that some of you are finding it difficult to claim benefits. Please contact Macmillan for advice. They sorted things really swiftly for me and at 41 I qualify for full DLA and have a lovely new Motability car. I never thought for a minute I'd qualify but apparently I DO. Living with Myeloma isn't easy whatever age you are. If…[Read more]

Sharon replied to the topic The Rash in the forum Side-effects

Fri, 22 Jun 2012 09:58:16 +0100

Hi Sarah. I rarely check in on this site nowadays but saw your post this morning and felt I should reply. I had my SCT in January this year and have been struggling with illness ever since. I came home from hospital after my transplant and had to go back in less than a week later with a blood infection. The day I was coming home I developed an…[Read more]

Sharon replied to the topic thalidomide in the forum Side-effects

Mon, 01 Aug 2011 23:09:59 +0100

Hi, just an updade after my meeting with my consultant today. It's a differnt member of the team I see for my reviews and although very nice, he's just not been listening to me and telling me I have no option but to put up with it really. Well my consultant was a little more sympathetic, checked the protocol for the trial and has altered my Dex…[Read more]

Sharon replied to the topic thalidomide in the forum Side-effects

Wed, 27 Jul 2011 15:13:03 +0100

Thank you Min and Bridget for your replies. I really appreciate it. I gave Ellen a call today and explained how I felt. She suggested I bring forward my next appointment with the doctor and discuss other options regarding treatment. I do feel like I'm being weak but then again why be a martyr and suffer? I'm also terrified that if I do go down a…[Read more]

Sharon replied to the topic thalidomide in the forum Side-effects

Tue, 26 Jul 2011 21:04:23 +0100

Hi, I'm not that familiar with this site since it all changed and not sure if this is the right place to add my post but it is relevant to Thalidomide.
I'm on the Myeloma XI Trial and got "picked" for Thalidomide as part of my chemotherapy before my SCT. I'd been asymptomatic for 4 years but my PP levels had crept up to 59 and I was anaemic along…[Read more]

Sharon replied to the topic Myeloma XI Trial in the forum Treatment

Tue, 10 May 2011 07:51:37 +0100

Well I'm so sorry to hear about everything you've all been through with the loss of your Dad and the substandard care you feel you've received. The reason I'm at Sheffield is because I wasn't happy with the level of care I was getting at Doncaster and I have to say, despite a bit of a trek, I've been very happy with Sheffield so far.
I do…[Read more]

Sharon replied to the topic Myeloma XI Trial in the forum Treatment

Thu, 05 May 2011 10:48:20 +0100

Just what I need to read after getting the call to go into Sheffield for a few days for a BMB, Zometa and the Myeloma XI Trial. Myeloma effects us all differently as do the drugs we need to take to fight it. I haven't the time to write much now but I've felt increasingly wobbly over the past month or 2 and the time has come for me to take that…[Read more]