Hi Keith
Just checking in to see how your coping with the new regime. How are you tolerating it?
I know you've just started but I hope it's going we'll with little or no side effects.
Good luck.
Andy

Hi Vicki & Colin
Hang in there Vicki I'm sure they will get to the bottom of Colin's pains. I haven't googled his new diagnosis so I won't pass comment on it. I've been reading up a lot about sct's lately ( allo sct's for personal reasons ) and they are frought with problems it is a major major reboot of the immune system. Unfortunately some…[Read more]

Thanks Eve
The tablets don't agree with me neither 🙁 will have to get some bananas when the shops open. Coffee and beer gave potassium in them too! Can feel a drink or 2 coming on tonight. 🙂
Have a great time in New Zealand hope everything goes well.
All the best
Andy xx

Hi Vicki & Colin.
I'm feeling good at the moment which is at odds to what I should be feeling given my situation but hey ho I'm not going to complain – well not too loudly. Get my latest pp results tomorrow at the vampire shop. They'll take the usual armful of blood as well hopefully my neutrophils will have improved a bit. Monday I'm of to see…[Read more]

Hi Peggy.
I was diagnosed in October 2010. I haven't had a sct yet and don't look like having a one till early next year. Everyone's journey with mm is different. Some make it to sct with only 3 cycles of chemo. some (rare) like me don't respond to the drugs at all. The majority fall somewhere in the middle.
My sct is going to have to be a…[Read more]

Hi Karen
A belated welcome to the forum I hope you find it a help. Sorry you've had to join us but truth be told none of us would choose to be here. I'm 54 diagnosed a year gone October after 18 months of back pain!!
Unfortunately for me I'm proving rather difficult to treat (a rare case) and have had lots of different treatments with little or…[Read more]

Hi Vicki & Colin.
Well Colin does seem to like that hospital food. From what I've read about SCTs you do spend you first weeks of "freedom" popping back and forth to hospital so I don't think Colin is unusual in that though his haste to get back was a little to keen. You must have gone through a wide range of emotions today but with that temp he…[Read more]

Hi Keith

I hope this new treatment works and gives you a decent remission. You've been through the mill recently you deserve some respite. My neutrophils were 0.6 that last blood test up from 0.4 so like you I've been Neutropenic for a few weeks now. My other bloods are ok now and my platelets gave gone up to the mid 120s. Hopefully my Neuts…[Read more]

Hi Carol
Sorry to hear that MM has reared it's ugly head again. I had 2 cycles of PAD when I had no response to my original treatment CDT. unfortunately for me I had no response to PAD either or any other treatment till I was put on Revlamid, cyclophosphamide and Dex.
PAD for some reason is Bortezomib (Velcade) , Doxorubicin and Dex. Where they…[Read more]

Hi Keith
I hope everything goes well with your BMB tomorrow and Wayne is gentle with you. Hopefully when you get the results you will be able to start to get your bloods back to normal.
I had my latest blood test Friday – everything was ok except my neutrophils which are now down to 0.4! On my rest week now so they're going to make a decision…[Read more]

Hi Keith
Sorry to hear your struggling with your bloods. My last blood test showed everything had recovered to acceptable levels except my neutrophils which were 0.6 I will have to see what they are on Fridays test. I'm assuming it's the Revlamid but the consultant is guessing it maybe the cyclophosphamide. It may also be a result of all the…[Read more]

Hi Vicki & Colin
Just letting you we're thinking about you. We hope everything goes well and Colin doesn't suffer too badly with side effects and is soon on the road to remission.
All the best
Andy & Steph xx

Hi Vicki & Colin
We hope everything goes to plan tomorrow and that Colin sails through the sct with the minimum of side effects.
All the best and good luck
Andy & Steph xx

Hi
I would like to thank everyone for all the good wishes. I must admit the thought of a sct had slipped from my radar and I was just coasting along. The meeting with the Prof. On Monday has brought it back into sharp focus. I knew an auto sct was off the cards for me and that an allo sct was ultimately the only way forward for me. Never the less…[Read more]

Hi Kerry
I think everyone has those feelings as a carer. I'm the one with MM but in a way my wife is suffering more. She has to worry about me, about her job which includes a hours drive either way, cooking, walking the dog etc etc and most of all what the future holds. I have damage to my back so I hardly ever drive now so I require lifts to the…[Read more]

Hi Polly
Sorry you have to start treatment. I started mine just over a year ago and have been through several different treatments but one thing has remained a constant that is the injections. I self inject tinzaparin daily to prevent blood clots I have from day one of my treatments. It's not too difficult and only sometimes a little bit painful…[Read more]

Hi Ali
We're pretty boring when we go to Greece we go to the same place, Kefalonia, same hotel, eat at the same restaurant and just laze by the pool reading whilst catching some sun! We used to go for long walks too but my back damage has put paid to that. Holiday insurance is a bit steep but necessary and planes are a good place to pick up…[Read more]