Dear Teresa.
Like Helen I don't have the words to ease your pain of the loss of Peter. Hopefully time will lessen the pain and your memories of Peter will be mainly of all the good times you shared together.
I found your post very emotional and brave.
I hope the future is kind for you and know that we are all thinking of you and your family…[Read more]

Hi everyone.
Thanks for all the good wishes for my appointment on Tuesday. I must admit the closer it gets the more anxious I'm becoming 🙁 Anyway as they say worrying never changes anything so I'm trying to be as positive about it as I can be.

Dear Teresa my back pain has eased off since my radiotherapy. So as long as I don't overdo…[Read more]

Dear Teresa.
We're so sad and sorry to hear about Peter. We hope you are managing to cope with your sad loss. We hope you have your family and friends support in this difficult time. It's difficult to find words of comfort for you but please know that we are thinking of you and your family in this time of sadness.

Lots of love
Andy & Steph…

Hi Michele.
Welcome to the forum that we'd all rather we had never heard of.
It's good you have come through your treatment well. As you'll know by now nearly everyone ones journey with MM is different so the more contributors we have the better the MM journeys are covered.
I look forward to reading your posts as you enjoy your long and…[Read more]

Hi all.
Just thought I'd add to the benefits discussion. I get the higher rate DLA and mid rate AA and I also get ESA. Just got my blue badge too. I had help with the DLA form from a charity at my hospital. My specialist nurse and consultant both told me about them. So I would advise everyone to ask for help with the form because it's a…[Read more]

Hi Paul.
Well done. Glad to see DT PACE did the trick for you. I hope the SCT goes smoothly and you have a long and successful remission.

All the best

Andy

Hi Mari.
Great news. Have a fantastic holiday.
Love Andy xx

Hi Mike.
Welcome to the forum. You'll find lots of support and friendly advice here.
Everyones MM journey is different as is their response to treatment and the drugs. Hopefully you'll sail through it to a stem cell transplant.
I was diagnosed at 53 too oct last year – unfortunately my back was quite badly damaged. I'd been on the sick 6…[Read more]

Hi Dai
Sorry to here your going through a tough time again.
I'm with you on looking ok whilst on the inside we are fighting MM. If I had a pound for everytime I was told I looked well I'd be a rich man. Sometimes when I'm not so well I want to shout 'I may look ok but inside I'm dying' but I don't and just smile. I think everyone is well…[Read more]

Hi everyone.
Thanks for all your good wishes
Here I am a day post radiotherapy with no major side effects as yet. Just a pleasant warming in the small of my back.
Helen I did have a numbness in my left leg and foot but it wasn't too bad – that has gradually reduced since I started on Revlamid – my nurse said the Revlamid sales person said…[Read more]

Hi Jen
It's good to hear your dads kidneys have improved. Sadly fatigue is something us MMers have to but up with – I find if I want to get anything done it has to be done in the morning because by 2pm I'm worn out and only good for reading or watching an old film on tv. You've got to listen to your body and not ignore aches and pains.
Sorry…[Read more]

Hi Dai.
That's good news. Hopefully you'll settle down back to a bit of 'normality' now.

All the best Dai.
Andy

Hi Teresa.
I'm having radiotherapy on my lower spine because there is an active area there that could be causing some back pain. So they want to zap it 😉
I've not got my appointment to see the Prof. yet though it seems his myeloma clinic is on a Tuesday as I've been told by people in the know. Hopefully I'll get an appointment through the…[Read more]

Hi Keith.
I think it's the Revlamid that causes the cramp. I get it also though not to bad. My feet and calves are the main culprits though I did used to get some stomach cramps too. I also suffer fatigue on the second day off dex. The reason I don't think it's dex causing the cramps is I've been on dex at the high level a while now whilst the…[Read more]

Hi Dai.
Sorry to hear you and Janet are not feeling well I hope you both have a speedy recovery.
It's strange how our different hospitals have different guide lines. I am told if I ever feel unwell or if my temperature stays over 37.5 for more the 3 hours or if it exceeds 38 to ring the hospital ASAP or if it's during the week in day unit…[Read more]

Hi Min.
Thanks for the info. I have met Prof Jackson before at a support group meeting and as you say he was very approachable and easy to talk too.
Hi Teresa.
Just posted to you under carers 😉 This will be my second dose of radiotherapy and it's not at the same site. Though it is close to it. I was just thinking about how my back will…[Read more]