Hi Helen,

My lungs are now functioning well. When I went for my Previgen? infusion last week and had my obs done my O2 reading was 99% so that’s good. Physically I’m coming along a bit slower though everyone seems surprised by how quickly I’ve progressed. I’m still doing my exercises and a few more as I’m aiming to build up my fitness as much as…[Read more]

Hi Helen,

My lungs are now functioning well. When I went for my Previgen? infusion last week and had my obs done my O2 reading was 99% so that’s good. Physically I’m coming along a bit slower though everyone seems surprised by how quickly I’ve progressed. I’m still doing my exercises and a few more as I’m aiming to build up my fitness as much as…[Read more]

Hi Leslie,

Welcome to the forum. Taking each day at a time is definitely the way to go. Live in the present because you can’t change yesterday and worrying about tomorrow spoils today. Saw that quote somewhere and it’s very true.

I was like you at diagnosis at last I knew what was going on. It was a relief to know and devastating at the same…[Read more]

Hiya.

Six inches is a lot of height to lose. I remember getting my height measured before one of the many scans I’ve had and I was five inches off my pre myeloma height though it was later in the day and I do get shorter as the day goes on.

Has your partners kidneys recovered? I had an ultra sound on my bladder last week and they also did my…[Read more]

Welcome to the forum Ed.

I’ve been a member since I was diagnosed in October 2011 and found the forum very helpful. I learnt a lot from the more experienced myeloma patients and carers and received lots of support.

No two journeys are the same with this bloody awful disease but if you have any questions or advice to give fire away. Even if you…[Read more]

Evening/Morning ( it’s 00:40) Richard,

It sounds like you’re doing okay I think small improvements are better than a big changes because rightly or wrongly I think if your condition improves rapidly it could go the other way rapidly too. Working and exercising will do you a world of good. The fitter you are the better you overcome the hurdles the…[Read more]

Hi Helen,

Sounds like you had a great time in Austria and it sounds like my type of place. We missed our Belgium Christmas markets trip this year so that’s three breaks away my pneumonia put paid too!

I try to do my Christmas shopping online with the aid of alcohol I hate shopping. Just got my credit card statement it’s eye watering. I blame the…[Read more]

Hi Scott.

Vision problems are a common side effect of some treatments and Dexamethasone can cause cataracts. Though seeing your not on it may not be myeloma related.

Every day is a gift.

Andy.

Hi Georgie.

Just a little titbit Dex can dehydrate you which will cause headaches. Is your father keeping up his fluid intake.

As to not responding to his first treatment that is not uncommon. Everyone has a different journey with myeloma and reaction to the drugs be it side effects or responding treatment wise can be very different.

I myself…[Read more]

Hi everyone.

It’s another no sleep annoying steriod night! Though it is the start of cycle 25.

Hi Annlynn I’m being treated at Stockton North Tees Hospital as my main hospital I’ve been around various others as treatment has demanded.

Hi Richard how are you getting along. I don’t get on here much and may of missed your posts – sorry.

As to my…[Read more]

Hi Tina.

Sorry to read that your PP’s are rising. Hopefully this rise will be very slow and that the Revilimid can hopefully beat them back into submission. You won’t have to have full on treatment till the myeloma starts to effect your health. That could be a long way off.

I’m sure your medics will be working on a plan for you.

Good luck I’ll…[Read more]

Phew it made it at the tenth time of asking xx

Hi Everyone.

Well it’s Dex insomnia time again. I’m still making steady progress. I still tire easy and my back is reminding me constantly that it’s not happy! The good news is I can make it to the pub for a drink and occasionally for a meal too though a lift in my sister in laws car helps and Steph has to go to the bar for me though I do…[Read more]

Ha – I knew it a little post complaining would get through. One more try at the long one then it’s tv time. XX

Hi Jan.

I think it’s a site problem I can’t post anything either though if you’re reading this it must of worked lol. Anyway I’m giving up posting tonight time to watch some tv curtesy of Dex.

Every day is a gift.

Andy xx

Hi Jan.

The sepsis was probably caused by the pneumonia. It’s when the bodies immune system goes into overdrive fighting an infection, I think. It can cause damage to your organs and can be fatal when serious as your organs shutdown.

Fortunately I think I’m making good progress along the road to recovery as I’m able to manage to get out a little…[Read more]

Hi all.

Well I’ll try this again since my original post has disappeared – I blame Dex!

Anyway it was just a little update of how I’m progressing. I’m feeling a lot better now and I’m  almost back to where I was before my extended holiday on the NHS. Physically I’m improving steadily. I had a visit from my Intermediate Care manager today and she…[Read more]

Hi Maureen.

It’s a small world isn’t it. We’ve been to Harrogate and Rockcliffe hall in the past few weeks.

We went to Harrogate with my brother and his wife and met up with our sister and her husband, who live there, to go to a concert in Harrogate.  We saw Squeeze and John Cooper Clark after a lovely meal in a nearby hotel. We went to…[Read more]

Hi Helen

I have never heard of a treatment called ESHAP. Going to have a look around to see if I can find anything about it. Whatever it is I hope it works for you.

Every day is a gift.

Andy xx