Norcliffe-HaighLisa

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  • #87626

    Skyblue1
    Participant

    Thank you to everybody for your replies to my message. I would like to reply to you all individually but I am unsure how to do this! I can't seem to link my replies up to the person I want to!

    I will certainly be looking out for any if the signs of myeloma from now on in all my family members. Does anybody know if you can routinely request the blood tests on the nhs it whether I would have to go private in order to do this. How have your children gone about this Dai?

    Michele, I also feel like it falls on deaf ears and I am constantly told that it is just pure coincidence, but there are so many cases on the Internet and in medical journals which show genogram a identifying family members. I have also thought like Perkymite points out that the one case out of many families is only a small minority. I also cannot help thinking that a link is yet to be discovered by the medical professionals authorised to conduct such research.

    Thank you to you all for the best wishes passed on. Each of you will know how much myeloma affects the lives of those around you.

    Take care
    🙂
    Xxxx

    #87624

    Skyblue1
    Participant

    Thank you very much for your reply Dawn,

    I am sorry to hear about your diagnosis. I also understand the surreal feeling as life sometimes does not feel like it is your own but like you are in some sort of dream.

    There is some research regarding links between people developing lupus and developing some forms of cancer, and although this is in a single person, it surely suggests some form of a link!? I'm no medical expert but my life seems to have been spent for the last 3 years understanding myeloma and the associated topics!!!

    I dont want to sound nosy or pry, and feel free not to answer if u like, but just wondered what treatment you were having.

    Remain positive and take care

    X

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