Hi Jenny,

Have you spoken to a social worker at the hospital,they may be able to liase with the housing team at Camden Council, the ward manager would be able to put you and your dad in touch with them ? Get the ball rolling soon so they can start to plan for his discharge after surgery. Also have you considered looking out of London, we live in…[Read more]

Oh dear, Ive no idea whats happened with the font but hopefully its readable !

Hi Amanda
I understand your frustration with the benefits system, my husband was diagnosed with MM in Dec 2011 but we didn’t start to look into applying for benefits until March the next year. He was turned down for DLA which we applied for with help from the CAB, then again after his SCT. We didn’t appeal the decision at the time as we didn’t…[Read more]

Hi Tom,
my husband has just had his SCT at UCLH, following x4 PAD cycles, his Consultant is Dr Rabin. He stayed in the `hotel` which is called The Cotton Rooms, and went to the Ambulatory Care Unit in the Macmillan Centre daily for bloods/monitoring etc, he actually didn`t need to go into the isolation ward as he never developed any high…[Read more]

Hi Ann

This is my first post since joining the site, my husband has just finished 4 cycles of Dex/Velcade/Doxyrubicin as part of the PADIMAC trial and has suffered similar side effects, to the extent that he spent a week end in hospital wth a sub acute bowel obstruction where he needed a naso gastric tube. He is now having a few weeks off…[Read more]