Myeloma Forum | ANNJONES | Activity https://forum.myeloma.org.uk/members/Sonny/activity/ Activity feed for ANNJONES. Sat, 11 Apr 2026 12:16:26 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 7866cbc9b7f42af40deda1baa869cd38 ANNJONES replied to the topic Looking for accommodation for my father (newly diagnosed Myeloma patient). in the forum General http://www.myeloma.org.uk/forums/topic/looking-for-accommodation-for-my-father-newly-diagnosed-myeloma-patient/#post-127616 Tue, 12 Apr 2016 22:02:09 +0100 Hi Jenny,

Have you spoken to a social worker at the hospital,they may be able to liase with the housing team at Camden Council, the ward manager would be able to put you and your dad in touch with them ? Get the ball rolling soon so they can start to plan for his discharge after surgery. Also have you considered looking out of London, we live in…[Read more]

]]> 565d860138c1334267e0bca2629aeeaa ANNJONES replied to the topic Benefit Assessmsent / Claim - Where do I go from here? in the forum General http://www.myeloma.org.uk/forums/topic/benefit-assessmsent-claim-where-do-i-go-from-here/#post-118909 Sun, 19 Oct 2014 23:49:38 +0100 Oh dear, Ive no idea whats happened with the font but hopefully its readable !

]]> 9f2263bd84804af7a58379d865258b40 ANNJONES replied to the topic Benefit Assessmsent / Claim - Where do I go from here? in the forum General http://www.myeloma.org.uk/forums/topic/benefit-assessmsent-claim-where-do-i-go-from-here/#post-118908 Sun, 19 Oct 2014 23:46:37 +0100 Hi Amanda
I understand your frustration with the benefits system, my husband was diagnosed with MM in Dec 2011 but we didn’t start to look into applying for benefits until March the next year. He was turned down for DLA which we applied for with help from the CAB, then again after his SCT. We didn’t appeal the decision at the time as we didn’t…[Read more]

]]> c42bf6c7f87bafd8825c6c25d8dccf17 ANNJONES replied to the topic UCLH in the forum Treatment http://www.myeloma.org.uk/forums/topic/uclh#post-101175 Tue, 11 Dec 2012 23:16:32 +0000 Hi Tom,
my husband has just had his SCT at UCLH, following x4 PAD cycles, his Consultant is Dr Rabin. He stayed in the `hotel` which is called The Cotton Rooms, and went to the Ambulatory Care Unit in the Macmillan Centre daily for bloods/monitoring etc, he actually didn`t need to go into the isolation ward as he never developed any high…[Read more]

]]> 5c56e11a6ea126c6212aa1a8b849f346 ANNJONES replied to the topic Tiredness and stomach discomfort in the forum General http://www.myeloma.org.uk/forums/topic/tiredness-and-stomach-discomfort#post-92611 Sat, 28 Apr 2012 13:42:38 +0100 Hi Ann

This is my first post since joining the site, my husband has just finished 4 cycles of Dex/Velcade/Doxyrubicin as part of the PADIMAC trial and has suffered similar side effects, to the extent that he spent a week end in hospital wth a sub acute bowel obstruction where he needed a naso gastric tube. He is now having a few weeks off…[Read more]

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