ANNJONES

  • Thanks mate, maybe I should call myself Tommy to avoid confusion 🙂

    You sound good, I'm irritated it's getting in the way of an interesting working life for me.
    I hope to return although I realise that I'll be having to take life in a different way than before.

    best wishes

    Tommy

  • Thanks Vicki, I hope your husband goes from strength to strength.
    As a matter of interest how is he bearing up from what is a month or so after his SCT?

    I've done a lot of research into myeloma and although I'm thoroughly pissed off that my disease has developed sooner than I hoped it would, I'm hoping we're moving into a period of it being a…[Read more]

  • Megan thanks so much for the reply.

    I'd be interested to know of any other side-effects that your partner suffered (hairloss etc). Also did he take time off work. I had 9 months off last year and would prefer to work as long as possible this time. I realise i can't work during the stem cell treatment.

    Perhaps I'm being completely mad…[Read more]

  • Charlotte please don't panic. I'm sure if you request one they will arrange if for you.

    I was at Mount Vernon, but the team is the UCLH team as they cover both hospitals. My next treatment will be at UCLH but all the scanning takes place at Mount Vernon which is north west london.

  • Hi Charlotte thanks for the kind words. Kind words go a long way even on the internet 🙂

    After my treatment for Plasmacytoma I was on a 3 month blood test regime and a yearly MRI scan. I only finished my radio treatment in Feb, so this MRI scan was to confirm that the treatment had dealt with my shoulder – which it successfully…[Read more]

  • Hi Charlotte,

    I've copied this from another post I made.

    [quote]I've just been diagnosed as having MM after being in remission from Plasmacytoma for 6 months.

    Plasmacytoma is also known as solitary plasmacytoma as it's an incidence of a single lesion rather than multiple (hence multiple myeloma). In many cases it doesn't progress to full…[Read more]

  • Hello everyone

    My name is Tom, I'm 46 and live in London.

    I've just been diagnosed as having MM after being in remission from Plasmacytoma for 6 months.

    Plasmacytoma is also known as solitary plasmacytoma as it's an incidence of a single lesion rather than multiple (hence multiple myeloma). In many cases it doesn't progress to full…[Read more]