Well, dad was discharged from hospital when the doctors said medically they couldn't do any more for him on the ward, he could continue his medication at home and would be monitored via outpatient clinics. The 'gentle chemo' appeared to have slowed down the effects of the myeloma and his kidney function at the time was reasonably stable but still very poor. Looking back he was very tired and very weak, but not in any noticeable pain.
Taking in enough fluid to keep his kidney function stable remained the main issue, he gradually became physically weaker and more tired and started sleeping more and more, which really compounded the problem. I am very sorry to say that three weeks after discharge dad passed away peacefully at home with his family at his bedside. Although the doctor's certificate says myeloma, it was kidney failure which took him.
We learned a lot about the NHS, Hospice@Home, Macmillan and private care agencies during this time. I would like to put on record my particular thanks to the staff from the Crossroads agency and the Sandwell district nurses, who were both professional and individually helpful in his last few weeks and days. My 87-year-old mother, who is registered blind, found great comfort through this, in particular by the exceptional care and support given by some of the Crossroads girls. They know who they are…
And thank you for the supportive posts and suggestions above – they were very much appreciated. Dad was late in being diagnosed, by which time his kidneys had been badly damaged. At 90 years of age he fought his uphill struggle with dignity and a real appreciation of the people who were helping him.
Martin
