2 out of the 3 we knew in a our village on the Island were Electrical Engineers, one was a Telecom Engineer. I worked with an electrical firm for a year!!!???
Totally confused. Another friend, was a postman. Maybe there is nothing to relate anything with. Maybe all questions should be asked. Diet, life style, job. Etc etc. x x

There has to be some common denominator. A friend of ours who investigated it in depth, while she was suffering from it, felt it was plastics and would have nothing with plastic at all. That is so difficult these days.
Don’t know, chemicals or areas. Wouldn’t it be wonderful to be able to work it out.

X x

Onwards and Upwards as Tom says.
Charlie

Thanks for keeping us all Upwards and Onwards.
Love Charlie and Mary

Best Wishes
Charlie

Love Charlie and Mary

Thanks, it is great to know that I won't have to keep the dogs away totally. Can't wait until it is all over. Are you in remission?

Love Us x:-S

Love Us x

Did you just keep the animals away? I am the most undomesticated person, I shall have to practice.

A whole new way of life!!!

Love Charlie & Mary 😛

How long does it take until your immune system is back to normal?

Love Charlie & Mary

Thanks so much for your replies. Makes me feel that I have to change my whole way of life and continuously clean. Don't know what to do about the dogs. Has anyone else got animals? They are so germy!!!
I suppose we just have to get on with it and cope.

Is it best that Charlie has a room alone after Stem Cell? If so, I must…[Read more]

When will you know? Is it wonderful not being on any medication?
Really hope it goes well.

Love Us x x:-)

I am the most undomesticated person ever. I have to practice – I think!!!
It is so tempting just to see the grandchildren regardless but we must change our whole way of thinking. It is going to be so hard. We do not know how everyone copes.
We wish we had never heard of Myeloma.
Deap breath.
Love charlie & Mary>:-(

How long does it take until you are fit again? Should Charlie be totally isolated?
How does everyone cope?

Love Us x:-S

Love Us x:-D

Love Charlie & Mary:-S

I go tomorrow to be randomised on the trials. Stem Cell or Velcade.
I just wanted to know, what are you like when you come out of hospital? Will I be able to walk up the stairs? How do you feel? Does the rcovery take ages?

Love charlie & Mary

I am OK at the moment, back on all my drugs to get the paras down ready for stem cell. Not looking forward to it. Where are you on the trials?
It is all so confusing, would love it to be all over and remission – fingers crossed.

As Tom says Upwards & Onwards.
Love Charlie 😀

I have been on Clexane injections from the beginning because I had previously had PE's. They have now upped the dose.
Don't fancy going back on thalidomide. We are still thinking about our options. It is all so difficult.
It is good that your Mum is in hospital as it takes so much worry away knowing they are looking after…[Read more]

Does anyone know what excersise is recommended when you have Myeloma.
I would still like to keep fit but do not know what is good and what is not.

Thanks for your help. Happy New Year.

Charlie:-D

I have been trying to reply to you but this new computer is so confusing.
I was fine until they put the Thalidomide up from 100 to 150. I took this for two days and then collapsed one morning – rushed to the hospital, collapsed again, resucitated, then kept in hospital. Taken off Thalidomide, which they said caused it and my doctor in…[Read more]

I cannot get back onto our discussion with this new computer. I had a PE and DVT in 2001 after an operation on my leg following a motorbike accident. I told the hospital this so they wre aware. I was then put on Clexane 40mg along with CDT. This was fine for a few months. then they decided to up the Thalidomide from 100 to 150 mg.…[Read more]

So sorry I have taken so long to reply, been having trouble with the computer.
So sorry to hear about your poor Mum, it must be dreadful for you and her.
It sounds really similar, I just went funny and collapsed. They have taken me off Thalidomide completely, in fact, I am off everything until January but am having a bone marrow…[Read more]

Upwards & Onwards as Tom says.
Charlie

It must have been so traumatic for you all. Living with Myeloma is enough on it's own, it must ave been a dreadful period. I found losing my Mum the most dreadful thing. How did your wife cope with all this?
I have started using a stress release CD which is quite helpful but I suppose we just have to accept it all and get on with…[Read more]

Thanks so much for all your replies. It has been really helpful and as Tom says – stress is an individual thing. I just can't seem to think of it all logically at the moment – maybe in time. I found just screaming a little release and crying of course. I suppose there is a period of time during which you…[Read more]

Maybe we shall try counselling as this is a hard thing to get through on your own. Or maybe singing like Tom does. I don't think my dogs would be too pleased if I screamed at them.

When you are on chemo, do you go out as usual amongst people and hope for the best, wear a mask or just stay indoors away from everyone? I have only…[Read more]

The singing sounds cool. What is really hard are the steroids and the strange moods. You just want the normal person back. Hopefully when we are through this it may be nearly normal again.

Upwards & Onwards Singing.
Love Charlie & Mary 🙂

I think if I went to counselling, I would cry all the way through it at the moment. A friend of mine swims and she says that helps. Maybe a massage would be good. Hope Frank's SCT goes well. Will you be near and able to visit? I think I shall try Reiki or reflexology. Anything that helps.

Love Mary >:-(

Love Mary & Charlie :-S

Sorry, I didn't realise you were supposed to go onto another thread. I shall try that, I did wonder. Nightmare, maybe I shall get it right next time. Thanks. I don't think I am thinking straight at the moment.
Love Mary & Charlie

Hope Velcade does not have side effects like the previous drugs. Charlie can't have Thalidomide now because of the clots/PE's and we have to decide whether to stay with the trials or have the treatment done on the Island (which would be much easier and less expensive).

Fingers crossed and everything else crosed that it all goes well…[Read more]

Wish we were drug free now. Hope it happens soon. Can't wait.
We see what will happen tomorrow at Southampton, which direction they choose to take with Charlie next.

Upwards and onwards and a few glasses of wine! :-/

Love Mary