TEBEBE

  • hi well i have now started my treatment of CDT what can i say its hard at first i felt anxious but the effect it has on my body i know there are things that are having an effect
    i don't drink but i imagine a hangover that heaviness feeling tired lethargic tingling feeling in hands thankfully no sickness headache sometimes
    i feel upbeat…[Read more]

  • TEBEBE replied to the topic just been diagnosed in the forum Newcomers 11 years, 10 months ago

    thanks vicky and colin all the best to you both

  • TEBEBE replied to the topic just been diagnosed in the forum Newcomers 11 years, 10 months ago

    hi Tom since speaking with you ive had loads of positive responses thanks for opening the door to me have a great day

  • TEBEBE replied to the topic just been diagnosed in the forum Newcomers 11 years, 10 months ago

    hi chris
    i found a forum site thats for amlyiodosis suffers but im gonna still keep the link with everyone here i knew something was not right with my body in June and the doctor was so good and quickly investigated they were so quick with everything and sent me to London where it was officially told what disease i had so im glad i know but…[Read more]

  • TEBEBE replied to the topic just been diagnosed in the forum Newcomers 11 years, 10 months ago

    hi mothas
    thanks for replying yes its good thank you whoever set up this forum god bless you
    i really thought the desease affected only women until tom wrote me so im learning more each day

  • TEBEBE replied to the topic just been diagnosed in the forum Newcomers 11 years, 10 months ago

    hi pat thank you for the kind word sand support its so good to know that i can finally talk to others who have the similar understanding and feelings about this disease in been battling for a few months and since i went to London royal free hospital for my first visit its made me more confident to share this
    i think that everyone i have spoke to…[Read more]

  • TEBEBE replied to the topic just been diagnosed in the forum Newcomers 11 years, 10 months ago

    thanks tom wow you sound so positive just threw those words of encouragement you've made me feel ten times better thanks for that yes im gonna find out if there is a support group in my region

  • hi my name is tebebe i have just been diagnosed with primary amyloidosis and am just trying to get my head round it all im a mother of 7 children and feel upset angry scared guilty and having lots of test feel my body has been invaided i
    i trust and believe in god and have just had to put everthing over to him with the support of my family amd…[Read more]