https://forum.myeloma.org.uk/members/TEBEBE/activity/ Activity feed for TEBEBE. Wed, 22 Apr 2026 01:10:54 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 e949c7d2cab2ec113cd345e719a07649 http://www.myeloma.org.uk/forums/topic/started-treatment Sat, 02 Feb 2013 11:12:07 +0000 hi well i have now started my treatment of CDT what can i say its hard at first i felt anxious but the effect it has on my body i know there are things that are having an effect
i don't drink but i imagine a hangover that heaviness feeling tired lethargic tingling feeling in hands thankfully no sickness headache sometimes
i feel upbeat…[Read more]

]]> 7df60ae8134ca7fd3b1b9b5f09777bf1 http://www.myeloma.org.uk/forums/topic/just-been-diagnosed#post-87171 Mon, 21 Jan 2013 17:08:06 +0000 thanks vicky and colin all the best to you both

]]> 298916ad2f45db04bc26e70d13d7826e http://www.myeloma.org.uk/forums/topic/just-been-diagnosed#post-87162 Sun, 20 Jan 2013 14:31:48 +0000 hi Tom since speaking with you ive had loads of positive responses thanks for opening the door to me have a great day

]]> 0874f7fc72c1ea50cd297aa4b56f0f7e http://www.myeloma.org.uk/forums/topic/just-been-diagnosed#post-87168 Sun, 20 Jan 2013 14:28:49 +0000 hi chris
i found a forum site thats for amlyiodosis suffers but im gonna still keep the link with everyone here i knew something was not right with my body in June and the doctor was so good and quickly investigated they were so quick with everything and sent me to London where it was officially told what disease i had so im glad i know but…[Read more]

]]> b6fbbab789355de538c8e9dee55b52bd http://www.myeloma.org.uk/forums/topic/just-been-diagnosed#post-87166 Sun, 20 Jan 2013 14:22:44 +0000 hi mothas
thanks for replying yes its good thank you whoever set up this forum god bless you
i really thought the desease affected only women until tom wrote me so im learning more each day

]]> ecc67d126871a12dbaa823aed91c8283 http://www.myeloma.org.uk/forums/topic/just-been-diagnosed#post-87164 Sun, 20 Jan 2013 14:18:47 +0000 hi pat thank you for the kind word sand support its so good to know that i can finally talk to others who have the similar understanding and feelings about this disease in been battling for a few months and since i went to London royal free hospital for my first visit its made me more confident to share this
i think that everyone i have spoke to…[Read more]

]]> 24931007d458b8bfc65e34db6d57ceb4 http://www.myeloma.org.uk/forums/topic/just-been-diagnosed#post-87161 Sat, 19 Jan 2013 17:51:40 +0000 thanks tom wow you sound so positive just threw those words of encouragement you've made me feel ten times better thanks for that yes im gonna find out if there is a support group in my region

]]> f15f3e13aa1a7919dcccd42016b4e502 http://www.myeloma.org.uk/forums/topic/just-been-diagnosed Fri, 18 Jan 2013 18:34:04 +0000 hi my name is tebebe i have just been diagnosed with primary amyloidosis and am just trying to get my head round it all im a mother of 7 children and feel upset angry scared guilty and having lots of test feel my body has been invaided i
i trust and believe in god and have just had to put everthing over to him with the support of my family amd…[Read more]

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