TEBEBE

  • I have recently been diagnosed with Myeloma a depilating cancer which attacks your plasma cells and in turn destroys your bone marrow. Within 4 months (since February) this year having just turned the rip young age of 40…. I was just like everyone else without a care in the world, accept for a few bad spells of back pains, tiredness, and aches…[Read more]

  • tom replied to the topic Keeping up appearances in the forum General 13 years, 2 months ago

    Wendy as a "mere Male" that is (well so am told) Bald on Top I am not in a position to advise on Curls or waves Lol.

    Tom xxx

  • tom replied to the topic Hickman Line in the forum Treatment 13 years, 2 months ago

    Hi Eve and Slim

    Well I had a "Femoral" Line fitted and had it taken out on day 15 the day before I came home and all my bloods were OK, That said I was going to Castle Hill every week till my 100th day and some folk had the Hickman line in most of the 100 days that I attended? never thoght about asking why that thing stuck out the top was doing…[Read more]

  • Hi Gill

    Welcome Home I bet you were fed up

    You are correct its better for you when they find something ? anything to put a name to it:-/

    I see your eyes have got bad? some times I feel mine aint as good as they were? Youing Bride (elaine) tells me to go and get new glasses but I aint due for an eye test till next year:-0

    Keep strong…[Read more]

  • tom replied to the topic 3 litres a day in the forum General 13 years, 2 months ago

    Morning Dai and all

    Well done on the trip a double wammy 😀
    But its a shame when you book time away and get or feel ill.

    You now know you can do it so am sure its going to be the MM way? "Little and Often" 😎

    Tom "Onwards and Upwards" x

  • tom replied to the topic Keeping up appearances in the forum General 13 years, 2 months ago

    Hi Girls

    Eve keep your eye on Slim's facial hair when it grows back, mine sometimes I grew a Pencil tash like in the old movie's (or so am told lol) just a thin neat line grew all on its own, but my hair grew back darker with a lovely wispy curl Lol and gosh was I pleased to get rid of that lol.

    Helen I wish you luck with the Blond bit but…[Read more]

  • Avis replied to the topic Charity Chosen in the forum Under 50s 13 years, 2 months ago

    Thank you Eve

  • Avis replied to the topic Charity Chosen in the forum Under 50s 13 years, 2 months ago

    Thanks Gill, I will

  • Avis replied to the topic Charity Chosen in the forum Under 50s 13 years, 2 months ago

    Thanks Debs

  • Avis replied to the topic Charity Chosen in the forum Under 50s 13 years, 2 months ago

    thanks for your response, I am taking it easy I work as a office manager so my job is sitting down most of the day.

  • tom replied to the topic Keeping up appearances in the forum General 13 years, 2 months ago

    Happy New Hair Cut Helen, I hope Blondes have more fun you will have to let us all know Lol.

    I used Oillatum on my skin and still do 🙂 but what it wants is a good few days of sunshine 😎
    Catha Lata Blondie 😀

    Love Tom "Onwards and Upwards" xx

  • tom replied to the topic Plasma cell leukeamia in the forum General 13 years, 2 months ago

    Hey Only Me

    Keep going Girl I know its hard and I feel harder for the Carer/watcher than us with MM, as while we are confined to bed we can sleep.

    I hope the walk done you some good but please look after yourself also, you dont want to find yourself too Ill to visit, am sure its difficult to sleep but the power nap is also good for you half…[Read more]

  • tom replied to the topic SCT Colin in the forum Treatment 13 years, 2 months ago

    Hi Vicky and Colin

    Well I see as normal you have had some great and honest answers 😀

    Just to add a little bit more The treatment I went through from start to this day was for me "Pain Free" except when I was having the growth injections I had pain in my rib cage and that was intermittent for I think four days.

    And Like Helen said…[Read more]

  • tom replied to the topic SCT Colin in the forum Treatment 13 years, 2 months ago

    Hi you two

    Your more than welcome I and Elaine(the young bride) knows all too well how bad BUT how good its been for me, and as for the "Red Stufff" yep am partial to that its good for the MM 😀 and yes the Vodka is even Better for the MM 😎 drink too much and you forget you have it Lol.

    Keep strong and live life with a smile

    Love…[Read more]

  • tom replied to the topic SCT Colin in the forum Treatment 13 years, 2 months ago

    Hi Vicky and Colin

    Wow what a rush now?

    Well to answer one of your Q's I had my SCT in dec 2009 yes it was hard but and this I mean if it fails would I do it again Too true I would 😀 yes its hard yes its a long time in the "Getting Better" Dept but well well worth it 😎 because I sit here now two years and six months down the line in…[Read more]

  • tom replied to the topic Plasma cell leukeamia in the forum General 13 years, 2 months ago

    Hi Only Me

    I am so sorry to hear your Mum has got more to fight than MM and trust me Girl its Ok to feel down at times like these.

    That said I do wish and pray your Mum has longer with you all and is up for the fight, as always we never know what is around the corner.

    Keep strong and tell your Dad i am sending prayers for your…[Read more]

  • Avis started the topic Charity Chosen. in the forum Under 50s 13 years, 2 months ago

    Dear All

    Just to let you all know I was diagnosed in Nov 2010 and went through all my treatment, and now in Remission September will be one year….But the best news is that I nominated Myeloma UK for my company who were looking for a charity in the UK to sponsor and they have chosen Myleoma UK, my contribution to the charity as we need to…[Read more]

  • Hi Dee

    I also am 56 (57 July) I was diagnosed with MM in jan 2009, I have had CDT as front line treatment then onto SCT in December 09, Now back at work (light dutie's) and doing great 😀 It aint a walk in the park this MM trip but would I do the same treatment again ? well I have to answer a big YES as at the moment it has given me over two…[Read more]

  • Hi Rachael

    Am pleased your Mum Janice is home now (but keep an eye on her temp).

    Am sure it will be the meds your Mum is having that is making her loss her appetite, I was same after my SCT and it was hard to face a plate full so my Young Bride (Elaine) gave me a smaller plate with smaller portions so as not to over face me with…[Read more]

  • tom replied to the topic PLATELETS in the forum Treatment 13 years, 2 months ago

    Hi Eve and Slim

    Yes I understand your concern I was worried with every ache and pain cough or sneeze but the Dr's and Nurses said all will be fine and it was and is 😎 I had to have more blood once and platlets twice after i got out within my 100 days 🙁 but it picked me up a little bit each time they threw it in 😎 I was told "Tom you are…[Read more]

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