tom replied to the topic stem cell collection failed in the forum General 13 years, 2 months ago
Hi Sue
I am pleased you found out am sure its all too much to take in at the moment and a worry when we read things that differ from our Dr advice.
Hope all goes well
Tom "Onwards and Upwards" xx
tom replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers 13 years, 2 months ago
Hi Ann and Peter
Yes I lost it but it comes back after treatment has stoped 🙂
Tom "Onwards and Upwards" xxx
tom replied to the topic started new treatment today in the forum Newcomers 13 years, 2 months ago
Hello Jeant
Just wanted to say Welcome and sorry I cant add to this but am sure some one wil pop along soon to answer it.
Good Luck to your Husband on his new treatment.
Love Tom"Onwards and Upwards" xx
tom replied to the topic stem cell collection failed in the forum General 13 years, 2 months ago
Hi Sue
I would phone the Nurse up on here and ask or phone the Hospital where your partner is being treated.
Sorry I cant be of more use in your Q
Tom xx
tom replied to the topic My Dad in the forum Newcomers 13 years, 2 months ago
Hi Jen
Welcome to the forum but also sorry you had to join:-( well I cant add anything to what has already been said apart from take one day at a time and go with the flow watch out for raised temp and infection's (gosh av said a lot) and get your Dad to rest when he feels tired.
Good Luck to you and your Dad in the MM Journey.
Tom…[Read more]
tom replied to the topic 2nd Relapse…I just knew it! in the forum General 13 years, 2 months ago
Hey Keith well what to say?? you know I feeel for us all when it fails such a darned illness this bloomin MM but am sure you are strong enough to fight it off and get back into remission 🙂
Get yourself off on your Holls and if you can push the MM into the background for a time.
Tom "Onwards and Upwards"
tom replied to the topic STC Failed! in the forum General 13 years, 2 months ago
Hi Andy well I am sorry the SCT hasn#t worked for you, this MM is a devil to work out everybody differant with the outcome to the treatment?.
I hope the new treatment works for you with no or little side effects.
Keep strong and well plus dont let the drought wet you hair 🙂
Tom "Onwards and Upwards"
tom replied to the topic Hospital in the forum General 13 years, 2 months ago
Hi Eve and Slim
Yes its a bugger these infections, I have lost count of how many I have had.
As for the nurse even my grandchildren know the rule Blow Wipe and wash 🙂 and she should know better.
Good Luck and hope the biotics kick in sooner than later
Love and Hugs to you both
Tom "Onwards and Upwards" xx
tom replied to the topic Home & Away in the forum General 13 years, 2 months ago
Well Thats great news dai, Its bad driving on moterways these days without the rain. I bet your both as proud as punch with each other for doing it together.
Good Luck on your next trip and I dont think the next one will be too far away.
Love to you Both
Tom "Onwards and Upwards"
tom replied to the topic Revlimid Failed in the forum Treatment 13 years, 2 months ago
Na then Tery
I love the way you cope with it all I also feel that its a head as well as a body challenge kepp them both strong and you are on to a winner.
Keep strong and well
Tom "Onwards and Upwards"
Ps great photo. I must take my young Bride to Scotland one day soon x
tom replied to the topic Hello to All in the forum Newcomers 13 years, 2 months ago
And A Good Morning to you also jacqui, what great news to read today well done Girl and long may it continue 😀
I know itsa a little bit of a rough crossing but the more folk that say its worth the trip the more will take that trip with more ease and less uncertainty.
As for your low levels of energy mine came back to an acceptable level…[Read more]
tom replied to the topic DT PACE in the forum Treatment 13 years, 2 months ago
Hi Paul
Pleased your doing better M8
The thing that helped me when I was weak when walking was a "Shooting Stick" ? I was lent it by a Neighbor when he seen how bad i was walking it has a seat on it I just carried the scick and when needed popped open the seat and had a rest it was great, so if you can find one get it works a treat.
Good…[Read more]
tom replied to the topic Hello, I' m new here! in the forum Newcomers 13 years, 2 months ago
Hello Jane
A warm welcome is extended to you and I wish you good luck for your ongoing trip with MM.
I also was on CDT as my first Line of treatment then had SCT and Zometa Infusion every four weeks for my Bones.
Hope to hear more from you soon
Love
Tom "Onwards and Upwards" xx
tom replied to the topic SCT Underway in the forum Treatment 13 years, 2 months ago
A Warm Welcome Home Slim 😀 gosh now then when I got home I at first found it scarey being out of hospital and not having a Nurse with me But I got over that pretty fast.
And Good Luck in your road to recovery Slim, If I remember correctly I was about a good two months before I felt the "Gosh Am Better" feeling and that was one great great…[Read more]
tom replied to the topic Them Bones, them bones, them dry bones… in the forum Treatment 13 years, 2 months ago
Dear Happy Chappy 🙂
If your Consultant is Happy and you are Happy and more important if Janet is Happy then am Happy.
Its good to feel comftarble with your Dr and feel he/she is listening to you and your problem
Keep up the good work Dai
Tom "Onwards and Upwards"
tom replied to the topic Kevs relapsed! in the forum General 13 years, 3 months ago
Hi Liz and Kev
Well am sorry to read about Kev's results, I hope and am sure they will soon sort it out and Kev is back to strenth, am sure you will but I have to say it so "Stay strong" and Fit hope its a short blip in the road of MM
Love
Tom "Onwards and Upwards" xx
tom replied to the topic My Loss in the forum End of Life and Grief 13 years, 3 months ago
Dear Carol
I am so sorry for your loss its hard for me to imagine what you are going through at the moment and am sure you will enjoy life again just a new way with new challenges.
Hugs for you
Tom xx
tom replied to the topic Velcade Experiences in the forum Side-effects 13 years, 3 months ago
Hi Deborah
I cant add to this one am afraid just wanted to welcome you and your Mum into the group but some one will pop in and sort out your Q.
All the best in the road to remission for your Mum
Tom "Onwards and Upwards" xx
tom replied to the topic Pancytopenic? in the forum General 13 years, 3 months ago
Hi Keith
Well this is another new one for me? aint a clue what it is nor what causes it?
Hope its soon sorted out Keith I bet your well fed up with all this stuff. Keep strong and fight the begger like I know you will
Tom "Onwards and Upwards"
tom replied to the topic Sue Marshall's Transplant in the forum Treatment 13 years, 3 months ago
Hi Eva and Sue
Just for info I had my transplant the day after my Melphalan.
I was told to eat as much as i could before and after the SCT as I would not want to eat after it. I also suffered a lot from the wretching wanting to be sick but wasn't sick but the anti sickness pills help a great deal. I also could not drink enough water so asked…[Read more]