tom replied to the topic Choices… in the forum Treatment 13 years, 4 months ago
Hi Dai
Well you have had some good thinking out loud time my Friend as for my treatment I think it was a great shock and i told him "You dont want me to decide what treatment I want are you?" when he gave me lots of leaflets/books :-/ where i was told that he and his team would decide the best road for me so I followed his lead and have to say…[Read more]
tom replied to the topic Hi all, Old man here! in the forum Newcomers 13 years, 4 months ago
Hi Jorge
A warm welcome to you.
As for a Carer? my young bride say's she has been my carer long before I got MM Lol, as for you returning to your Native Ireland for your "Final Days" am sure it will be years before that happens 😎
Keep fit and stay strong
Tom "Onwards and Upwards"
tom replied to the topic Newcomer… in the forum Newcomers 13 years, 4 months ago
Hi Tony
Welcome to[u][b] your [/b][/u]new group
I am same as David nowt special just MM 😀 CTD front line leading to SCT Dec 09 now fit (ish) and well 😀
Keep strong and this is the place when it gets a bit too much to have a moan and groan we all know what its like
Tom "Onwards and Upwards"
tom replied to the topic coughs, colds and the like in the forum Side-effects 13 years, 4 months ago
Great News David 😎 and am sure when you are all worked up at your Home you could visit mine am sure we have lots of stuff that needs fixing Lol
"Onwards and Upwards" My Friend 😀
tom replied to the topic New immune vaccines beng tested in the forum Treatment 13 years, 4 months ago
Hi Jet
Great link and I for one would be up for that if I ever need it 😀
Tom "Onwards and Upwards" xxx
tom replied to the topic coughs, colds and the like in the forum Side-effects 13 years, 4 months ago
Hi David
Well cough's and cold's :-/ I have to admite from having my SCT I have never coughed nor had as many poorly chest's that I can remember :-S and I used to smoke but am sure the gunge that built up in my lungs must have gone by now Lol 😉
But if all I suffer is the bloomin cough and the odd bad chest then am sure I will cope with…[Read more]
tom replied to the topic Ah, So… in the forum Side-effects 13 years, 4 months ago
Hi Dai
Well your last post made me chuckle Lol, am not sure how you could have a "Elegant Sling" you must post a photo :-).
But I am very pleased you are well on the way to being sorted.
I am sure that's what I would miss the driving so your not bad as you can take the sling off to drive, just dont alter the rear veiw mirror.
Its great…[Read more]
tom replied to the topic Mum going to have Velcade – any advice please? in the forum Treatment 13 years, 4 months ago
Hi Jill
I am pleased your Mum is doing good on the velcade 😀 and i hope it stays that way.
All the best to you and give your Mum a cuddle from me xxxx
Love Tom "Onwards and Upwards" xxx
tom replied to the topic Ah, So… in the forum Side-effects 13 years, 4 months ago
Aww Dai
You have been Janet's "brave little soldier", and I remember saying it could be "An age Thing" sorry M8:-/ and I know its a strange thing to say but at least you now know its a fracture and I bet your "well being " is better as you now know what you have to fight and you just might get less pain.
Good Luck with the "Coller and cuff"…[Read more]
tom replied to the topic Hi Ho…. Hi Ho… It's off to work we go… in the forum General 13 years, 4 months ago
Hi Helen
I had my SCT in December 09 but I went on sick in May 09:-( I was due to have one but they cancled it after they found out mine was "Reminal" (sorry folks for those word's :-S )
I wanted to go back to work its what kept me going on BAD Days, but all My Consultants and lead Nurses said I shouldn't go back to my work again as its too…[Read more]
tom replied to the topic bereavment in the forum End of Life and Grief 13 years, 4 months ago
Hi Stephen
I am so sorry to read about your Wife I send My Condolences to you and your Family.
And well done to you all for raising that ammount of money for us all.
Stay Strong and remember the good days
Regards
Tom x
tom replied to the topic Ah, So… in the forum Side-effects 13 years, 4 months ago
Bloomin heck Dai I bet that was scary :-0 I am pleased Janet was on the ball 😎
I have always been told if I feel Unwell then I should phone the ward up and talk to them and they will make the decision whether to pop up or stay at home, I have used that adout three times so far and it works for us 😎
Hope all goes well for Tomorrow Dai…[Read more]
tom replied to the topic Back to fight another day! in the forum Treatment 13 years, 4 months ago
Morning Mavis
My we are going through the wars 🙁 but going the correct way 😎
I wont be In Chapel today But I will say a prayer for us [u]all[/u] Today and hope that it helps us all am sure today is the day he will listen 🙂
Tell Gordon that you are correct its a temporary loan you are having with the stuff.
Mavis I was on CDT…[Read more]
tom replied to the topic Here's hoping for some normal pain… in the forum Treatment 13 years, 4 months ago
Morning Dai
I have had same over the months and told my Consultant and he checked me over and put it down to 1)Old age ((ish)) and 2) just doing too much and he tells me its not MM related so I will go with that. same symptoms as you Dai that bad toothache but in shoulder (right one) and down the arm, if I stretch the arm I get a sharp pain…[Read more]
tom replied to the topic Hello to you all x in the forum General 13 years, 4 months ago
Hi Gina
Great to hear from you 😀 and am very pleased you are all doing OK 😎 yes am sure the "Crying Days" will get less and less over time, but thats not to say your memory of your Mum will get less you will just remember the good days 😎
Keep going strong, you are doing a great Job
Love and Hugs Tom xxxx
tom replied to the topic SCT completed in the forum Treatment 13 years, 4 months ago
Hi Sarah and Henry
A well done to you both, keep it up and Henry will soon be (near) back to his old self.
Love and Hugs
Tom "Onwards and Upwards" xxxx
tom replied to the topic Joint pain in the forum Side-effects 13 years, 4 months ago
Hi Kay
Well am afraid Dai is correct and he keeps his money am sorry to say.
I had my SCT in Dec 2009 and I still get tired and I mean Real Tired.
so a sleep when your body tels you to and not think am all done its been X number of months, take your time an no rush
Good luck with the hair Lol xxx
Love Tom "Onwards and Upwards" xxx
tom replied to the topic WHAT TO DO NOW… in the forum End of Life and Grief 13 years, 4 months ago
Hi Nicola
I am pleased that your dad had a great send off, over 300 folk now that a big gathering as you say your Dad was a great man and having 300 plus at the wake is a tribute to your Dad.
Keep strong and Good luck with your Fundraising
And Its Ok to carry on through the nite 😀
Love Tom xxxx
tom replied to the topic Another newcomer in the forum Newcomers 13 years, 4 months ago
Hi Susie
A Warm welcome to this great site, hey am the (one of them) man for the giggles if you need them as for the para thingie bob I aint a clue :-/ if My Doc is smiling then am happy 😎 so al leave all the techie stuff to the others.
Take it one day at a time and as has been said dont do too much rest when your body tells you, and…[Read more]
tom replied to the topic Don't google it, I couldn't even spell it! in the forum Newcomers 13 years, 4 months ago
Hi NeelieAnd Dad
First of all That aint no rant trust me lol, and next a warm welcome into the site that now part belongs to you 😀 pull up a chair and have a seat as its gonna be a long ride am afraid.
Now your dad is confirmed as an MM sufferer am sure it wont be long before they stop his pain and get Dad sorted and into…[Read more]