TEBEBE

  • tom replied to the topic REMISSION. in the forum General 13 years, 8 months ago

    Hi Eve and Slim

    Well as you know I am in remission and only have Zometa every four weeks, but thats not to say I am back to my normal self (even if i knew what normal is/was)

    Had SCT in Dec 09 Back to work May 2010 and still working (well clocking on lol)

    I had to get some sleepy Tabs to help me to have a half decent nights sleep and…[Read more]

  • tom replied to the topic Grief in the forum End of Life and Grief 13 years, 8 months ago

    Hi Chrissie

    Iam so sorry to hear about David its such a shame to lose some one to this Bloody MM.

    Please dont beat yourself up over wether you should or should not have started the treatment as you know David was a fighter and wanted to do his best to beat it.

    Love and Hugs

    Tom xxxx

  • tom replied to the topic FAILED SCT I THINK!!!! in the forum Treatment 13 years, 8 months ago

    Hi Kay

    Aww Bless If its not one thing its another 🙁 Gout is pretty painful or so am told? heres me thinking you could only get gout in your Big Toe :-S yep am a numpty of the first order:-/

    Hope The Tabs work untill all bloods are checked.

    Love and cyber hugs

    Tom xxxx

  • tom replied to the topic headaches in the forum Side-effects 13 years, 8 months ago

    Hi Sarah and Henry

    Sorry but I have never suffered headaches, I hope Henry soon gets them sorted.

    Tom "Onwards and Upwards" xxxx

  • Hi Mari and Steve

    Well am pleased that Steve could drink on the combination of drugs and to be honest I never asked if I could :-0 Just thought if I shouldn't then they would have told me he he so it was out with the Vodka and red wine 😎 and here I sit in remission so it dint do me any harm 😎

    Hope Steve's ear is soon better and back on…[Read more]

  • Hi Helen and John

    I have never heard of the link between them both, just popped in to wish you both well.

    Tom "Onwards and Upwards" xxxx

  • tom replied to the topic The Holiday Is Over in the forum Treatment 13 years, 8 months ago

    Hi Bridget

    And al tell you you done more than me i am not sure where our washing machine is lol.

    I know that whatever this MM throws at you you will thrash it

    Lost of hugs and Love ((())

    Tom "Onwards and Upwards" xxxxxx

  • tom replied to the topic Velacade in the forum Treatment 13 years, 8 months ago

    Hi Nicola,Micky and the "Dick Head"

    Love the name your Dad gave it lol, and am pleased you Micky are having a bit of a treatment rest we all need one or two of those in the fight of the "Dick Head" (could be a film name that lmao)

    Wish I lived near you all as that bowl of trifle sounds great (aint had that for years and years)…[Read more]

  • tom replied to the topic FAILED SCT I THINK!!!! in the forum Treatment 13 years, 8 months ago

    Hi Kay

    What a roller coaster for you 🙁 and isn't it great to be told you have rheumatoid arthritis 😀 well it is better than bloomin MM in our bones 😎 and Kay if your pleased am pleased good luck 😀

    Love Tom "Onwards and Upwards" xxx

  • Hi Dai and Janet

    Sorry to read about your loss of remission (just a temporarily loss am sure)and Dont worry Janet we all know that Dai can do it:-D

    If anyone can do it your the man 😎 I know how you feel when you see your consultant looking at the screen and you notice the odd twitching.

    I hope you get the treatment you like and am…[Read more]

  • tom replied to the topic Is it back? in the forum General 13 years, 8 months ago

    Hi Amelie

    Am sure you know I had a successfull sct in December 2009 and am still in remission 😀

    But yes I have pain right ribs and Hips bu I have put that down to "Old age" and hard work over the years putting a strain on iccle ole me :-/ and My Dr has confirmed that the MM is not back 😎 and I might be wrong but dont levels go up and…[Read more]

  • Dai My Condolences to you and Yvonne's family at this sad Time.

    I also have seen friends pass away with Cancer that was diagnosed after I was its such a sad time.

    Hope you are keeping well and Take care.

    Tom x

  • Hi Graham

    good Luck for Thursdayay 😀

    As for symptoms well I went to my GP for what I described as if somebody had rolled up a towel and pushed it under my Lower rib(left side) I was told it was either a pulled muscle or a bruised rib? and that as they say is the start 😎 Once again Graham all the best for thursday

    Tom "Onwards and…[Read more]

  • Hi Michelle

    Just thought I would post and see how you are both doing? I hope Hubby is still staying strong.

    Sending Hugs and Love

    Tom ((())) xxxx

  • Hi Gina

    I for one am doing great Thank you for asking 😀 I hope you and your lovely Family are doing good? and hope the new hubby is doing as he is told (like me lol)

    I know you will still miss your Mum as I do mine, My Mum "Mary Doll" was not aware I had MM before she passed away I/we did not feel the need to cause her more…[Read more]

  • tom replied to the topic WORST DAY YET in the forum Newcomers 13 years, 8 months ago

    Hi Micky and Nicola

    Its Good to have a name for your Dad 😀

    I hope you remember that you need to have some space to yourself rather than all MM problems that way you can help Micky better 😎

    As for the Fund-Raising I myself have never tried it :-S and admire those that can do it 😎

    Catcha Lata say Hi to Micky for me 😀

    Love…[Read more]

  • tom replied to the topic WORST DAY YET in the forum Newcomers 13 years, 8 months ago

    Hi Nicola

    Am pleased your Dad (am sure he has a name lol) is feeling Perky as Perky is Good 🙂

    Tell your Dad from me Work aint all that you know 🙂 But I know how he feels I needed to get back to work to prove to Myself that am fit and healthy (now i should be so lucky he he) and now I feel as if I am near ready for packing it all in…[Read more]

  • tom replied to the topic WORST DAY YET in the forum Newcomers 13 years, 8 months ago

    Well done those Tabs thats great news Nicola am sure in a few days your Dad will feel much better:-D

    What your Dad said during his extreme discomfort and pain am sure when all has settled he will want to fight it all the way, your dad sounds like a fighter that was just a little punch drunk, now soon he will be putting on his gloves to fight…[Read more]

  • Hi May

    And a warm welcome to the group. Sorry to hear about your Mum.

    Its a worry when the treatment fails But there is a lot out their that will work its trying to find out what and when it will work. I tell Elaine (my young bride) when its time to sort things out the Dr will tell us just let them sort out all hiccups as we travel the road…[Read more]

  • Hi Glenn

    As for pain? well I have a bit of pain but am sure it isn't down to the myeloma :-S might be just old age as all my bloods (well thats what the tell me) are Ok, only effects I had with the Zometa was a flu like symptom for a few days after getting it infused :-/

    I also have a very supportive Family three grown up sons and soon to…[Read more]

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