Hi Peggy

A warm welcome to our ever growing band of MM'ers

Yep I was same but I didn't put them both together for some months after I started treatment.

Am sure you will get the help you need as and when for you and your Daughter, if not shout out loud.

Good Luck on the treatment you start and have a good day for your Birhtday (well…[Read more]

Hi Gill

First dont listen to Eve "re the drink" as its done me the world of good over the last 40 years lol.

But seriously a warm welcome to the site but sorry you had to join.
I was Diagnosed in Jan 2009 and had CDT then Stem cell harvest leading to a Stem cell transplant in december 2009, and am still in remission and doing good:-D still…[Read more]

Hi Jo

The young bride is doing great, and as for keeping me in check (just looked behind me to see she aint their;-) ) well she has a hard job doing that Lol.
Take a look at the photo and see how much I spoil the young bride (tom looks over his shoulder to make sure she cant see)

Hope your Doing Ok Jo xxxxx

Hi Joanne

Am pleased your Father in law is now on the treatment regime, and the advice I can give is for the pending treatment is Rest and take one day at a time:-D

Your Father in law will have his off days/weeks? but you will know it wont be "Him" it will be the drugs:-/ and not forgetting you and mother in law need your rest…[Read more]

Hi Gill

Well what a great lot of replie's you have 😀 and am sure I cant add anymore to this great advise you already have.

BUT am a Mere Male and you know we have to have our penny's worth 😀

First am sorry you had to join this great site, but also to let you know its also the best, its a roller coaster but to make it short, I am now…[Read more]

Hi Helen

Am Pleased your Mum is getting better, and am sure the Zometa will cause no more problem:-D
As for me well roughly I was diagnosed in Jan 2009 went on CDT, then had stem cell harvest and leading up to a Stem Cell Transplant in December 2009, went back to work In May 2010 on light duties, and thats where I stand now, and the only…[Read more]

Hi Helen and Mum

Sorry you are here 🙁 but its best place 😀

I am on Zometa and the first time I had it I had flue like symptoms for a few days (aches and pains in bone structure) but it only was that first time, I now go every four weeks for my infusion and so far tomorrow (thurs) will be my 13th and all is going great.

Good Luck to…[Read more]

Hi Joanne

I also am sorry you have had to joint this site, but trust me its the best place for help/advice and folk to listen to us when we need a rant.
As Kay says its an individual illness and not one thing suits another.
Take the pen and Paper and make notes its not going to be easy to remember everything, also ask the Consultant to send…[Read more]

Hi Christin

Yep I know all about takin three rather than one step:-D but as time went on I knew (nearly as much as Elaine) that I had to take it Easy so am sure your Dad will also get it Lol.

Love from a mere male 😎

Tom "Onwards and Upwards" xxx

Hi Vicki

Yes it made me weary and yes strugled to sleep at the same time (strange that Dex) but I got sleeping tablets and took them sparingly as i dint want to get hooked on them 😀

Am not sure if the Spondylitis ur Dad has is connected to the MM but am sure someone will pop on and advise 😎

I am just having four weekly Zometa…[Read more]

Hi Yamyam

Sorry to see you had to join but you have come to the correct place, and sorry to read you felt let down by the NHS 🙁 but now they have your Dad on the radar all should flow nice,as for me and only me I would go for anything to help put this dreaded MM on the sidelines until a cure comes along so for me I would do it.

Good Luck…[Read more]

Hi Colpot

Am sure your story will give us al hope that the light is at the back of the tunnel, well done and good luck

Tom "Onwards and UpwardsW

Lol its a good un Gill, nor can I cee whi they av bloked it ether ha ha.

Tom xx

Hi Carol

Well a well done you for getting more back that you felt you had lost 😀 its something that would have come natuarly to kick downon the horse to let it kknow who is the boss, well done you.
Good to hear you are back into taking not just your own but Hubbie's horse out, its anothe step forward:-) to as normal as we get with MM :-S…[Read more]

Hi Vicky

Well as for the CDT I was on that and got weaker and weaker as the cycles moved on so much so I had to pack in work:-( but hey its not all bad newa a year later after a succesfull Stem Cell Transplant I am back at work (still on light dutie.s) but hey its work and Money 😀

I got better with the CDT as my cycles went along and was…[Read more]

Hi Carol

Great to read about your remission:-D I have ben in remission for some time now, but it never made me want to get on a horse? yep am over 5'10 and the scare me to death ha ha, gosh they are so big and scary.

Am also with you Carol if you love it this MM cant stop you doing it and as you say its just at a differant pace :-D…[Read more]

Hi claire

Sorry I cant add to your post cept to say

Good Luck to your Mum in her treatment regime, and am sure some one will know a bit mmore about it.

Godd Luck

Tom "Onwards and Upwards" xx

Hi Meika,Christin and of course David

Like all the others above I also welcome you to this wonderful site.

You all have had some great advice fromthe others that at the moment all I can add is:::; take it one step at a time, and when David want to rest let him and not forgeting you two Mum and daughter you both also need to look after…[Read more]

Hi Bridget

Sorry to hear bout your pain:-( bit of a Begger this MM, hope you get sorted out 😀 and the pain is reduced.

Love and Hugs

Tom xxxx

Hi Michelle

Sorry to hear about your Mum and the setback she is having.

I also am chuffed the Dr is on the ball and sorting your Mum out 😀
Catcha Lata

Love and Hugs sent to your Mum (oh and one for you Michelle 😀 )

Tom "Onwards and Upwards" xxxx