tom replied to the topic Sensitive teeth in the forum General 14 years, 3 months ago
Hi David
Yes I am told that the Zometa messes with your teeth :-/ but am pleased to say (touching wood and fingers crossed) I dont have a problem with mine:-D
pleased yours is now on the mend 😎
Tom 🙂
tom replied to the topic Newcomer in the forum Newcomers 14 years, 3 months ago
Hi David
Yep still up and runn:::::::::::walking ha ha, and yes your red wine and cumbers did me the world of good 🙂
One "Upwards and Onwards" Tom 😀
tom replied to the topic I hope I don't sound crazy in the forum General 14 years, 3 months ago
Hey Roberta
Trust me girl you dont sound Crazy (well not as crazy as I) and if you need to vent what better place than here amongst friends and nearly Family 😎
Its a great thought if we all moved into an Estate (near a hospital ha ha) and then we would have neighbors that knew we get grouchy and tired after a hard days work. it could be…[Read more]
tom replied to the topic My Visitor in the forum General 14 years, 3 months ago
Hi Bridget
Its good to know they are with you and very knowledgeable in the drugs regime that needs to be used, I dont have a Mac Nurse, but hope if I need one she/he is as good as yours 😀
Like David I am pleased to say I am pain free (ish) unless I push myself too hard:-S
All the best on this wet Bank Holiday
Tom "Onwards and…[Read more]
tom replied to the topic Abject Misery in the forum General 14 years, 3 months ago
Hi Min and peter
Sorry to hear about treatment causing a Bloomin big blip in both your lives, I cant add nothing to the good points above as I am still in remission so can just send my Love and Hugs to you Both.
Tom xxx
tom replied to the topic Newcomer in the forum Newcomers 14 years, 3 months ago
Hi Carol
Sorry to hear about your Pain:-( no one should have to suffer the pain.
I see you do Horse riding (they scare me) I hope it isn't that that causes the pain? I know after I do things at home/garden I normally suffer a bit of pain.
I am about 16 Months post stem cell transplant and am in remission.
Good luck on your pain…[Read more]
tom replied to the topic Velcade & Me Pt.1 Oh dear me. in the forum Treatment 14 years, 3 months ago
Hi Dai
Well a whispered "Onwards and Upwards" and do you know I pressed the key pad real slow and quiet lol when I typed that he he.
Am Pleased you are feeling better albeit with a lack of sleep 🙁
Good Luck with it all.
Regards
Tom "Onwards and Upwards" 😎
tom replied to the topic Volcanic Diahhorea!! Velcade to blame??? in the forum Side-effects 14 years, 3 months ago
Hi Angelina and John
Hey dont we soon get better 😀 I recall after my SCT I asked when I might be going home on my 13th day and was told it will be about 7/10 days all being well 🙁 but 3 days later I was packing my case and heading home 😎
Took me some time to get into my eating habit dint ever think it would come back but hey ho its…[Read more]
tom replied to the topic Velcade & Me Pt.1 Oh dear me. in the forum Treatment 14 years, 3 months ago
Hi Dai
So sorry to hear about your "Bad Stint" Hope it gets better soon 😀
Not one for the written word Dai, but strength has always been my thing (in me head lol) so I am sending some of mine 😎 So if its "Only" (love the way you say it) a matter of pain well you and I plus others can beat it. all the best with it
Regards
Tom…[Read more]
tom replied to the topic Pain after sct: in the forum Side-effects 14 years, 3 months ago
Hi Liz
Am pleased it all got sorted, as I said I never have to suffer pain at all (hope he is correct ha ha)
Good Luck and hope the upt painkillers help 😀
Tom "Onwards and Upwards" xx
tom replied to the topic Volcanic Diahhorea!! Velcade to blame??? in the forum Side-effects 14 years, 3 months ago
Hi Angelina
Sorry to hear about Johns Problem 🙁
I have had CTD then SCT and so far am doing good only need Zometa once per month, so cant add to this apart from wishing John well 😀
Its been said John is in the best place and being looked after.
Wishing John a seedy recovery to get home soon.
Love
Tom "Onwards and Upwards"…
tom replied to the topic Pain after sct: in the forum Side-effects 14 years, 3 months ago
Hi Liz
I also say phone the Hospital and or the contact Number they gave you.
None of us are the same so need different drugs/meds at different times.
As for me I never hold back calling if need be, we all know our own bodies and what feels "Just not right" is when i call, pleased to say though Not had to call them for some time now :-D…[Read more]
tom replied to the topic Quietly Panicking! in the forum General 14 years, 3 months ago
Hi Gaye
Dont we know (or most of us do) about being blooming weary:-S I never know when am getting? (or do i just choose to ignore it?) but my young bride Elaine knows it well:-D so in that matter its all looked after
Good Luck on Thursday 😀 and dont let them make poodles with the Balloons he he
Love and Hugs
Tom "Onwards and…[Read more]
tom replied to the topic This diagnosis is such a shock in the forum Newcomers 14 years, 3 months ago
Hi Ali
Am sure when the SCT is due Guy will cope with it well:-D
and Positivity is a great thing, I feel it makes you better faster (but thats just me Ha ha)
Worry not about being busy and not getting on, just dont forget anything troubles you we are here for you.
Love
Tom "Onwards and Upwards" xx
tom replied to the topic Would just like a bit of advice about my mum please. in the forum General 14 years, 4 months ago
Hi Gina and Mum
Like all the others am pleased your Mum is Still holding back treatment 😀
And as for being tired :-/ tell me about it me I have fell asleep in the pub (and still sober he he) but my young bride Elaine now knows when I am getting tired and makes me go home/or stop what am doing (bless)
Yes its hard to sit back and wait…[Read more]
tom replied to the topic Anticipation in the forum Newcomers 14 years, 4 months ago
well David mine was on the 22nd November 1975 😀 now lets see three kids born?? :-/ names ??:-S you ask them and they will tell you its a erm Lee Craig no you Ha ha ye I still get mixed up with the three Sons Names and Grandkids ho ho Love them all (5) but even they know I get confused when I call them He he, Hey Ho am sure its just me 8-)…[Read more]
tom replied to the topic This diagnosis is such a shock in the forum Newcomers 14 years, 4 months ago
Hi Ali and Guy
Well am pleased Guy's problems are on the way to being resolved, the bone thing am not sure what if anything Guy is having to help with that? as Bridget says two drugs are used (that i know off) and the one I am having is the Zometa, and that in itself gives me no problems or side effects 😀
Please dont worry about throwing…[Read more]
tom replied to the topic Of Kevin and Patrick and Patrick and Michael et al… in the forum General 14 years, 4 months ago
Well Dai
What can I say :-/ Lord knows I wanted to say something but couldn't:-( I am so pleased that you Dai helped the likes of me in putting it across with feelings from our hearts, Lord how the tears seem to come easy 🙁
Love and many hugs
Tom xxx
tom replied to the topic Anticipation in the forum Newcomers 14 years, 4 months ago
Hi Annika
Am pleased your Husband has coped ok with his line of treatment and just go with the flow, both of you rest when you need to and dont do too much, as for the steroid's My young bride Elaine says that I was OK with the effects 😎 or was she just too kind :-/
Good Luck on the treatment, mine went smooth (ish) and Like Kathleen's…[Read more]
tom replied to the topic My father just got the news… in the forum Newcomers 14 years, 4 months ago
Hi Marian
Your welcome.
I hope when you read these post to your Parents it helped them at this difficult time.
Stick to this site its the best honest and true with few scary bits.
I take no notice of the "life Expectancy" as we have new drugs popping up these days 😎
Catch you Lata
Tom "Onwards and Upwards" xx